Heavy with All: My Journey to Cry, Fight, and Rise
It’s 2 am, and I am lying here as my heart is heavy with all that is going on. I watch him struggle each day. What am I to do?…
Read More
Women With Epilepsy Day ’24
National Women With Epilepsy Day: Elevating awareness and supporting research for epilepsy, especially in women and girls, is a collective responsibility.
Read More
Shelter From the Storm
Blue Raider Contracting Epilepsy is often described as a lightening storm in the brain. For women and girls living with epilepsy, seizures are not the only thing that impact their…
Read More
Dear Doctor
Dear Doctor,
As I sit here to write you this note there are so many things to be said… We were supposed to be on the same team, fighting for my healthcare yet the “Healthcare System” has stolen you from my team.
Read More
Collaboration is Key
Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day! WOW, this has been an AMAZING journey to get us here! As I sit here thinking about…
Read More
The Epilepsy Transition Clinic
The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center About the Author: Sarita Maturu, DO Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in…
Read More
Dr. Margaret Beigel’s Story
Meet Dr. Margaret Beigel, an Ohio State University Neurology Resident Tell us a bit about yourself. Hey everyone, I am Margaret – a current PGY3 neurology resident at The…
Read More
Dr. Marika Antimisiaris’s Story
Meet Marika, an Ohio State Neurology Resident Tell us a bit about yourself. I moved around a lot growing up – lived in Oregon, California, New Jersey, Hawaii, and…
Read More
The Role of the Pharmacist and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. James W. McAuley. Dr. McAuley is Associate Dean of Academic Affairs, Professor of Pharmacy Practice, Neurology…
Read More
Meet Betty, An Ohio State Employee Living with Epilepsy
My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year. OSU is contributing to some…
Read More
Making Sense of 2020
As I sit here wondering what to write my heart aches for so many this year all across the world…. The heartache, pain, and loss can be so overwhelming to comprehend….
Read More
2020 Kimford J. Meador Research in Women with Epilepsy Award
The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…
Read More
Dr. Sandra Helmers Memorial Scholarship
I wanted to unveil this exciting news during our annual American Epilepsy Society (AES) meeting! I am writing to share with you about our newest award from the My Epilepsy Story…
Read More
Primary Care Physicians and Neurologist
Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country. We should be working together within our residency programs…
Read More
I See Your Eyes Above Your Mask
I see your eyes above the mask you are wearing each day while you are at work, at the grocery store, on the bus or walking on the street. I…
Read More
Pregnancy and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…
Read More
School Closings due to COVID-19
We are in uncertain times…. Coronavirus(COVID-19) is spreading, schools are closing and many jobs are transitioning to working from home. We need to remember that we will get through this…
Read More
Staying SAFE during the Coronavirus Outbreak
Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…
Read More
Dr. Sarita Maturu’s Story
I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…
Read More
Breastfeeding and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown…
Read More
Transitioning from a Pediatric Neurologist to an Adult Neurologist
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…
Read More
Fertility and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…
Read More
Managing your Medication during Pregnancy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …
Read More
Dr. Deepti Zutshi’s Story
Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family. Transferring that quality to becoming a doctor…
Read More
Managing Your Epilepsy & Tracking Your Seizures
On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures Robert Moss knows…
Read More
Tiffany’s Story
My name is Tiffany. I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash. I’d been married for only four months at this time. After diagnosis, I…
Read More
Maci’s Story
With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…
Read More
Christina’s Story
When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling…
Read More
It’s Back To School Time
BACK to SCHOOL TIPS from MES! Yes, Folks, it’s that time of year again…so here are 10 tips to help prepare your child and yourself for the upcoming school…
Read More
Meet our MES Ambassadors and Join With Us
California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…
Read More
MES Ambassador Program
MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the…
Read More
Fresh Fridays! New Summer Recipe Series
Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…
Read More
Join MES for Epilepsy Education Day at UK Healthcare on June 8th
We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day! Please join us and hear our Executive Director/Founder Brandy McFadden as the…
Read More
Sara’s Story
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was…
Read More
International Women with Epilepsy Day
March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have…
Read More
Coming Soon: International Women with Epilepsy Day
Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day! This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY…
Read More
Epilepsy & Stress
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience…
Read More
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…
Read More
Reflecting on 2018
As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes… I am thankful for all that we are are accomplishing at My…
Read MoreExercise During the Holidays
Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time…
Read MoreManaging Epilepsy and a Baby in the NICU
Managing Epilepsy with a Baby in the NICU Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…
Read MoreSurviving the Holidays after Losing Your Daughter to Epilepsy
My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…
Read MorePlease Join With Us
During this holiday season there is a day called #GivingTuesday where everyone joins TOGETHER and gives back to nonprofit organizations. This year on Tuesday, November 27, 2018 is #GivingTuesday. Please…
Read MoreDepression and Epilepsy
Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…
Read MoreDoes every woman living with epilepsy need a primary care doctor?
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…
Read More
Finding a Doctor & Coordinating Your Care
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Gregory Mathews from Silver Springs, Maryland on: How to Find…
Read More
Educating the Medical Community with a New Video Series
We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians…
Read MoreCONGRATULATIONS Ladies! We did it!!!
Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…
Read MoreTraveling with Epilepsy
The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…
Read More
Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician
[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….
Read More
I am just a teenage girl….Why do I have to have epilepsy?
Why ME??? I know it just isn’t fair! You were just like all the other girls just last week… Then it happened… You had a seizure and now your life…
Read MoreNew Research on Prescribing Medication in Pregnant Women with Epilepsy
Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…
Read More
What is Catamenial Epilepsy?
Catamenial Epilepsy: What is it, and what can be done about it? Catamenial epilepsy is not a specific type of epilepsy or type of seizure. The term simply…
Read More
Celebrating the Little Boy That Started it All
As I sit here thinking of the My Epilepsy Story (MES) organization and how far we have come it is bittersweet…. Hearing the voices and stories of women and girls…
Read More
Transitioning from Pediatric to Adult Neurology
Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues. It can be particularly…
Read MoreSo You Are College Bound…..Now What?
Graduations have come to an end and the summer is here. I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…
Read MoreFDA Approves Epidiolex
The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S. Studies in the U.S. of Epidiolex (a…
Read More
Epilepsy and Fertility
The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…
Read MoreKnow your Seizure Type
Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….
Read MoreKimford J. Meador Research in Women with Epilepsy Award
In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…
Read MoreThe Strength of a Movement: Her Epilepsy Story
When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn’t have any clue as…
Read MoreSeizureTracker.com isn’t just for tracking “SEIZURES”
In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished. Whether it is getting things done at…
Read MoreDepression, Anxiety, & Epilepsy……
Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety? This is such a great question! Many people are stressed over things in their lives yet that…
Read MoreEpilepsy Birth Control Registry
What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…
Read More
Home Exercise 101
Hello friends! I hope 2018 is treating you to lots of health and happiness so far. In my last post I discussed the importance of exercise for everyone, but especially…
Read MoreDeath is Hard….Yet We Celebrate a Life Fulfilled
When you hear the news that one of the women that was such a huge influence on your life as a young teenage girl has passed away there is first…
Read More
What about the Women and Girls?
The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but…
Read MoreAn Introduction to Health & Wellness
Hello from MES’s new Health & Wellness Director! It’s that time of year again. No, I’m not talking about the holidays, although I do hope you all had a happy…
Read More
College is a time of “Self-Discovery”…..
“College is a time of self-discovery and growth, but it can also be an intense four years of stress.” My first two years in college were especially hard on me;…
Read More
Beauty is Right in Front of You
As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…
Read More
Holiday Event Planning
At My Epilepsy Story, we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy. I want to introduce you to…
Read More
Exploring What Care a Pharmacist Can Provide for Women with Epilepsy
Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…
Read More
Are You Prepared for Your Neurology Appointment?
So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…
Read More
Reasons for Giving Thanks in the Midst of Epilepsy
On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…
Read More
A Partnership is Blooming
At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…
Read More
Epilepsy Safety with your Newborn Baby
Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster. The joy of having that precious baby in your arms brings a full…
Read More
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…
Read More
November is Epilepsy Awareness Month
It is that time of year again… Epilepsy Awareness Month! November is the month where many organizations promote Epilepsy Awareness. Here at My Epilepsy Story (MES), we are joining with…
Read More
The Future Belongs to You
“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt As we begin the graduation season, I am reflecting on what these young graduates…
Read More
“It always seems impossible…..”
“It always seems impossible until it’s done.” ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…
Read More
Ashley’s Story
My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…
Read More
I Have Lost……..
These past few days have been just overwhelmingly hard for our family. We have had to process the death of a beautiful little girl named Harper Howard and the daughter…
Read More
Memories in the Making
As I sit here thinking of 2015 and all that has happened this year, I am tearful. This year has been filled with many great memories. I am blessed to…
Read More
Meg’s Story
It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….
Read More
Ashley’s Story
My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember…
Read More
Elizabeth’s Story
I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due…
Read More
Choosing the Right Health Insurance Plan
Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have…
Read More
Governor Bill Haslam Proclaims November Epilepsy Awareness Month
Here at My Epilepsy Story, we do everything we can to make people aware of epilepsy, and how it impacts the daily lives of so many people. Thankfully, Governor Bill…
Read More
Rachel’s Story
My epilepsy story is a long and complicated one, with frustrating twists and turns. The journey to my diagnosis was not easy or crystal clear, and I had to fight…
Read More
Mariellen’s Story
My epilepsy story started with enjoying the 4th of July weekend out on the lake with family and friends in 2012. It was the perfect weekend filled with boating, fireworks,…
Read More
Living Without A Filter
“Never let the odds keep you from pursuing what you know in your heart you were meant to do.” – Satchel Paige As I sit here this evening, I sit…
Read More
MES003 – Brandy Interviews Dr. Loring
Brandy McFadden interviews Dr. Loring. Did you enjoy this episode? Please leave us a comment below and a positive review on iTunes. iTunes Link
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224
We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
Stay Updated
Receive valuable content and personal stories from other women and children just like yourself.
We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Navigation
Resources
Stay Updated
Receive valuable content and personal stories from other women and girls just like yourself.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
Copyright
2024
© All rights reserved. My Epilepsy Story
Website design by Navarro Creative Group