My Epilepsy Story

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Brandy's Personal Posts

27 Apr
0

WWE C.A.R.E. Seminar Series Event

WWE C.A.R.E. Seminar Series Event Neurologic Co-morbidities in Women with Epilepsy My Epilepsy Story invites all healthcare professionals and students to REGISTER TODAY for the next installment in the W.E….

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03 Mar
0

Shelter From the Storm

Blue Raider Contracting Epilepsy is often described as a lightening storm in the brain.  For women and girls living with epilepsy,  seizures are not the only thing that impact their…

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12 Jan
0

Dear Doctor

Dear Doctor,

As I sit here to write you this note there are so many things to be said… We were supposed to be on the same team, fighting for my healthcare yet the “Healthcare System” has stolen you from my team.

I know you spent many years dreaming of becoming a doctor and helping thousands of patients. I am sure you would be up late in medical school studying hard and struggling through the long nights thinking that in the end these long nights would pay off when you entered into your residency program. I am sure you read many research articles and longed to help patients just like the ones in the articles you read. As you applied for residency programs across the country, I know you must have been nervous and excited to see where your next educational journey would lead you. I know the residency interviews were probably overwhelming and you probably second guessed every answer you gave during those interviews on your way home, only hoping that the residency programs saw your passion to help patients. The months were probably grueling as you were waiting for The Match results to see where you would train next. I am sure that you were on my team during this time as well, just not officially as we had not yet met. Our paths would soon cross, you would officially join my team as my doctor and healthcare advocate.

I know the first few years after you joined my team you were full of life, enthusiasm and thought our team would win. We thought we could conquer the world together and the sky was the limit for us. However, “someone” kept stealing parts of you a little at a time.

Each time I saw you your light began to seem as if it wasn’t as bright. Your eyes showed you were growing weary and your heart began to put up a wall. I don’t blame you because your heart began to have a wall built around it… I know you didn’t want to build that wall, the wall was built by the people stealing you from my team. Your time with me began to be cut shorter and shorter each time we saw each other. I could see in your eyes and hear it in your voice that you longed for more time with me but “someone” was telling you that you were not allowed to see me for long periods of time any longer. Each time we saw each other our team meetings became more of “a quick throw me a bottle of water” like a runner in a race receives as they are trying to finish a race. Eventually our team meetings were cut to 15 or 20 minutes max. You quickly entered our meeting room and tried to make eye contact while staring at your computer to take notes. Our team was falling apart, you knew it and I knew it.

As our team began to fall apart, our time was cut even further and we were pushed to emails in a portal. You were stolen from my team and I got mad at you. Please don’t blame me, as I won’t blame you. We were meant to win but the cards became stacked against us. The “someone” that stole you was our “Institution of Healthcare”. They made you join teams (seeing more patients) even though it was impossible to be your best with everyone. Your home life, body and mental health has suffered.

Your dreams of being on my team are completely gone and you are in survival mode just like I am. The healthcare system has failed you and I, which has caused us to be mad at one another. They took our DREAM TEAM and crumbled it. They have stolen our time together and our time apart. They make you spend hours on the phone fighting insurance companies for approval of tests and medications. They make me spend hours on the phone fighting for these things as well. They make you fight and defend yourself against pharmaceutical companies when things go wrong with their medications. They make me fight the same thing too… They have divided our team and cut our time with one another so we cannot compare notes. I am here to tell you I want OUR team back! I want us to go back to where were when we first met. I want us to remember the sky is the limit and to win together. Please come back to our team and TAKE BACK OUR HEALTHCARE. We can fight together and take on these giants TOGETHER by saying enough is enough.

Sincerely,

Your Patient and Teammate

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01 Mar
1

Collaboration is Key

Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day!  WOW, this has been an AMAZING journey to get us here!  As I sit here thinking about…

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22 Feb
0

The Epilepsy Transition Clinic

The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center About the Author: Sarita Maturu, DO Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in…

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Artwork by Betty
18 Jan
0

Meet Betty, An Ohio State Employee Living with Epilepsy

My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year.  OSU is contributing to some…

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01 Jan
0

Ohio State University & MES Partnership

We are excited to announce our partnership with The Ohio State University, Wexner Medical Center to EMPOWER women and girls living with epilepsy in 2021. Their center includes physicians, whom…

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31 Dec
0

Making Sense of 2020

As I sit here wondering  what to write my heart aches for so many this year all across the world…. The heartache, pain, and loss can be so overwhelming to comprehend….

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06 Dec
0

2020 Kimford J. Meador Research in Women with Epilepsy Award

The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…

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05 Dec
1

Dr. Sandra Helmers Memorial Scholarship

I wanted to unveil this exciting news during our annual American Epilepsy Society (AES) meeting! I am writing to share with you about our newest award from the My Epilepsy Story…

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04 Dec
0

Primary Care Physicians and Neurologist

Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country.  We should be working together within our residency programs…

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25 Nov
0

Thanksgiving 2020: Safer At Home

Thanksgiving 2020 2020 has been a long, eventful year with the Covid-19 pandemic. Many will be tempted to reconnect with family and friends across the country or your home state…

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26 Oct
0

I See Your Eyes Above Your Mask

I see your eyes above the mask you are wearing each day while you are at work, at the grocery store, on the bus or walking on the street. I…

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29 Jul
0

Homeschool vs. Traditional School during COVID-19

COVID-19 has ushered in a new normal in many aspects of our lives.  Along with the drastic changes in our basic social behavior and habits there are many new questions…

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Dr. McAuley
22 Jul
0

Dr. McAuley’s Story

In my crazy busy weekly schedule, I look forward to Wednesday mornings.  I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient…

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07 Jul
0

The “Doctor Is In” but Should I Go?

The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians.  Although telemedicine has been around for several years, use has been limited,…

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09 Jun
0

Addressing Healthcare Disparities in Women with Epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…

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06 May
0

5 Ways to Help Your Child Cope

Are You a Recently Furloughed or Laid-Off Parent? We live in uncertain times as we are confronted with the collateral damage of the COVID19 pandemic. I understand that not only is…

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01 May
0

Nurse Rachel Ward-Mitchell’s Story

I started working with people with epilepsy without any intention to make it my specialty. I took a position as a nurse at the University of Kentucky on a busy…

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28 Apr
0

Fiscally Surviving Covid-19

CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has…

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03 Apr
0

MES Online Support Group

Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group!  In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about…

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International Women With Epilepsy Day Events
25 Feb
0

2nd Annual International Women With Epilepsy Day!

Facebook Twitter Google-plus Linkedin Instagram Join Us on March 1st To celebrate International Women With Epilepsy Day, My Epilepsy Story will be hosting a Live Chat via Zoom on March…

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22 Dec
0

Season of Giving 2019

Thank you all for your support this past year! Thank your for supporting our mission to advocate, educate, and research for women and girls living with epilepsy! Your contributions this…

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09 Aug
0

Fresh Friday- Its Burger Time!

Hello friends & Happy Friday! Can you believe we’re well into AUGUST already? Where has this year gone? I am starting to see more & more of my friends posting…

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31 Jul
0

Meet our MES Ambassadors and Join With Us

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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06 Jun
0

Join MES for Epilepsy Education Day at UK Healthcare on June 8th

We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day!  Please join us and hear our Executive Director/Founder Brandy McFadden as the…

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12 Mar
0

Self-Love

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In…

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01 Mar
0

International Women with Epilepsy Day

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have…

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International Women With Epilepsy Day Events
25 Feb
0

Coming Soon: International Women with Epilepsy Day

Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day!  This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY…

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08 Jan
0

THRIVE

At the beginning of each year my husband, James, chooses a word for our family to be our guidance and focus for that year.  Each year our family waits to…

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30 Dec
0

Reflecting on 2018

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My…

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18 Dec
0

Managing Epilepsy and a Baby in the NICU

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…

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14 Dec
0

Surviving the Holidays after Losing Your Daughter to Epilepsy

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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26 Nov
0

Please Join With Us

During this holiday season there is a day called #GivingTuesday where everyone joins TOGETHER and gives back to nonprofit organizations.  This year on Tuesday, November 27, 2018 is #GivingTuesday. Please…

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16 Nov
0

Depression and Epilepsy

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…

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02 Nov
0

CONGRATULATIONS Ladies! We did it!!!

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…

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25 Oct
0

Traveling with Epilepsy

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…

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28 Sep
0

I am just a teenage girl….Why do I have to have epilepsy?

Why ME???  I know it just isn’t fair!  You were just like all the other girls just last week… Then it happened… You had a seizure and now your life…

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12 Sep
0

Celebrating the Little Boy That Started it All

As I sit here thinking of the My Epilepsy Story (MES) organization and how far we have come it is bittersweet…. Hearing the voices and stories of women and girls…

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03 Jul
0

Kimford J. Meador Research in Women with Epilepsy Award

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…

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10 Jun
0

The Strength of a Movement: Her Epilepsy Story

When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn’t have any clue as…

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11 May
0

SeizureTracker.com isn’t just for tracking “SEIZURES”

In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished.  Whether it is getting things done at…

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26 Apr
0

Seizure Freedom is NEVER Promised

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter…

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21 Apr
0

Depression, Anxiety, & Epilepsy……

Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety?  This is such a great question!  Many people are stressed over things in their lives yet that…

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10 Apr
0

Epilepsy Birth Control Registry

What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…

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20 Mar
0

Death is Hard….Yet We Celebrate a Life Fulfilled

When you hear the news that one of the women that was such a huge influence on your life as a young teenage girl has passed away there is first…

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19 Mar
0

Proclaim Your Story

The first time I genuinely told my story, it was to complete strangers. I was shadowing a pediatric neurologist and knowing my background, he asked me to share my experience…

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13 Mar
0

What about the Women and Girls?

The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but…

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06 Jan
0

Be BOLD while living with Epilepsy in 2018

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the…

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04 Oct
0

College is a time of “Self-Discovery”…..

“College is a time of self-discovery and growth, but it can also be an intense four years of stress.”  My first two years in college were especially hard on me;…

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14 Dec
0

Beauty is Right in Front of You

As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…

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01 Dec
0

Holiday Event Planning

At My Epilepsy Story,  we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy.  I want to introduce you to…

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23 Nov
0

A Partnership is Blooming

At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…

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21 Nov
0

Epilepsy Safety with your Newborn Baby

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full…

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15 Nov
0

November is Epilepsy Awareness Month

It is that time of year again… Epilepsy Awareness Month!  November is the month where many organizations promote Epilepsy Awareness.  Here at My Epilepsy Story (MES),  we are joining with…

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17 May
0

The Future Belongs to You

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates…

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07 May
0

“It always seems impossible…..”

“It always seems impossible until it’s done.”  ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…

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12 Mar
0

Mosaic

A mosaic is something that resembles a picture or decoration that is made up of diverse elements. These broken pieces are what makes a mosaic beautiful.   In our brokenness of…

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Harper-Story
11 Jan
0

I Have Lost……..

These past few days have been just overwhelmingly hard for our family. We have had to process the death of a beautiful little girl named Harper Howard and the daughter…

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31 Dec
0

Memories in the Making

As I sit here thinking of 2015 and all that has happened this year, I am tearful. This year has been filled with many great memories. I am blessed to…

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18 Sep
0

Living Without A Filter

“Never let the odds keep you from pursuing what you know in your heart you were meant to do.” – Satchel Paige As I sit here this evening, I sit…

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21 Jun
0

Happy Father’s Day

I read this saying last week and thought I would share it with you on Father’s Day. “The GREATEST thing a Father can do for his children is to LOVE…

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19 Jun
0

Time, Where have you gone?

Where has the time gone???? My baby has now turned 6! Life gets busy and time passes so quickly. We think that we will have time to treasure every moment…

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22 May
0

Don’t be a “Yes-Man”…. Advocate

As I sit and reflect on things that I have heard from parents and the things happening in society I am reminded of what my role is as an ADVOCATE….

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10 May
0

This isn’t what I would have chosen

As Mother’s Day is here, I have thought about what Mother’s Day means to me personally. For me at times, it has been hard to juggle three little children especially…

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11 Mar
0

Silence

When the whole world is silent, even one voice becomes powerful. ~Malala Yousafzai In this world we don’t always see the reason why things happen. I often find myself thinking…

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18 Nov
0

Struggle

Fall has set in and winter is approaching quickly…. I have not written in quite some time. I have been asked, “When are you going to write again? I am…

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02 Oct
0

The Wall Street Journal

We have EXCITING news to announce…. We were featured in The Wall Street Journal this week. Dr. David Loring’s PCORI Funded project, COPE, that follows children that are newly diagnosed…

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25 Sep
0

Are You A Force To Be Reckoned With?

Today is a beautiful Fall day here in Nashville. As, the leaves are beginning to change and my windows are open so that I can feel the beautiful Fall winds…

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17 Sep
0

Can You Help Us Make A Difference?

The past few months have been so busy. School has started for the children, and my husband is back to work nonstop as the Headmaster at the school where Samuel…

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06 Aug
0

Are We Really Educating Our Children?

This week was the start of school for my three young children. The “rat race” has begun here in Tennessee, like so many other places across the country. As we…

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15 Jul
0

Amor Vincit Omnia

“Amor Vincit Omnia” in latin means Love Conquers All….. In my life, love has conquered all. On July 6, 2014 I married the love of my life. Our love story…

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10 May
0

Mother’s Day 2014

As we approach Mother’s Day this Sunday, I have been pondering what I should write for this blog post. In fact, I have rewritten this post several times only to…

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01 May
0

Relationships….

Over the last few years I have focused on others quite a bit. I have had friends and my board members constantly reminding me to slow down, breathe, and focus…

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28 Apr
0

Missed Opportunities

I sit here in Nashville on this rainy day to share with you some of my thoughts that have been circling around in my mind. A few weeks ago I…

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lightning
05 Feb
0

Is it REALLY worth the pain and heartache?

Adversity is the mother of progress. ~Mahatma Gandhi In life we face challenges that can be EXTREMELY hard. We have to sit down and decide if it is worth the…

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Brandy Parker
16 Jan
1

Strength, Courage and Tears…

Over the last few years people have been saying over and over to me, “Brandy you are so strong!” “We don’t see how you do everything that you are doing.”…

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02 Jan
0

Keep Walking

“The world is looking back on a year that was, but what matters is what’s in front of you. KEEP WALKING.” I read this quote in The New York Times…

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Samuel in Math Class
22 Nov
0

Our New Journey

As we begin to prepare for the Thanksgiving season I wanted to share with everyone some things that are on the horizon and that I am thankful for. Our story…

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13 Nov
0

“Retarded or World Changer? You Decide……”

I have spent the last few days recovering from my trip to the American Epilepsy Society Annual Meeting.  This year it was held in San Diego.   I was gone…

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Visiting family in Louisiana
07 Nov
0

The Road Not Taken

Tonight as I sit here thinking of this past week and the week ahead I am filled with mixed emotions. My long weekend started in my home state of Louisiana….

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vol state and my epilepsy story
31 Oct
0

Vol State Student Warns of the Impact of Epilepsy Medication During Pregnancy

The following is a press release from Volunteer State Community College about an upcoming speaking engagement with Brandy McFadden and My Epilepsy Story. Brandy McFadden could see that her son…

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redleaves
30 Oct
0

I wish things were the way they used to be.

Someone recently said to me that they “wished things would go back to the way it used to be”. This made me ponder on the things of my past….I have…

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14 Oct
0

Full Plate

Life has been so busy here. I have so many things to update everyone on. We have had two wonderful benefits for the organization since I last blogged. One was…

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06 May
0

A Hundred Reasons To Cry or A Thousand Reasons To Smile

When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile. ~Author Unknown I read this quote several months ago and was…

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29 Apr
0

Full Circle

I have been waiting for the right time to share with everyone about a new board member for the organization. We are blessed here at My Epilepsy Story to add…

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19 Apr
0

Busy Times

Life has been extremely busy over the past few weeks! Samuel has begun taking OT and PT at a new therapy center closer to our home. The therapists have been…

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Spring Deer
10 Apr
0

Spring Has Arrived

Spring is here, and I love it! As I sit here this evening, I am reflecting on Spring and the beauty that is beginning to bloom. I went for a…

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26 Mar
0

Epilepsy Facts

1 in 10 people will have a seizure. 1 in 26 people will develop epilepsy. About 50,000 people die each year from epilepsy. This is one of the things that…

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20 Mar
0

Epilepsy Fears

About two weeks ago on our Facebook page, I asked “What is the one thing you wished people knew about epilepsy?”. I received a lot of great responses to this…

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18 Mar
0

Heartache and Joy

Well the weekend is ending and a new week is ahead of us. As I reflect on all the things that need to be done I am tired yet I…

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10 Mar
0

We need to EDUCATE and ADVOCATE!

As I reflect on my weekend this evening I have mixed emotions. I took my daughter, Hannah Kate, to a Vanderbilt basketball game with a friend on Saturday afternoon. We…

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03 Mar
0

What Mountain Are You Climbing?

In life, we have to make choices that are not easy. We can choose to sit in our “place of sorrow” or choose to climb out of it. Not that…

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25 Feb
0

What Do You DREAM?

This evening as I sit here and prepare for my week ahead the word DREAM comes to mind…..You see, dreams do come true when we pursue them. [blockquote cite=”Henry David…

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23 Feb
0

What Do You Dare To BELIEVE?

[blockquote cite=”Albert Einstein”]It is better to believe than to disbelieve; in doing you bring everything to the realm of possibility.[/blockquote] I was reminded of this quote today. I loved it…

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exciting news
14 Feb
0

Exciting News!

Tonight I finally decided to sit down and write about the EXCITING things that are going on with the organization. We just filed our paperwork for the State of Tennessee…

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10 Feb
0

Painful Place or Blossom? You Decide…

“AND THE DAY CAME WHEN THE RISK TO REMAIN TIGHT IN A BUD WAS MORE PAINFUL THAN THE RISK IT TOOK TO BLOSSOM.” ~Anais Nin I came across this on…

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holdhands
05 Feb
0

What’s Your Reason To Be Brave?

What’s your reason to be BRAVE? My reason to be BRAVE is for everyone that lives with or is affected by neurological disorders. I do not understand the complexities of…

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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