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info@myepilepsystory.org
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(615) 822-4224
Susan’s Epilepsy Story
My journey with epilepsy began in 1991 after a car accident triggered my first seizure. At the time, medical answers were limited, and surgical options felt long and frightening. But…
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Dear Doctor
Dear Doctor,
As I sit here to write you this note there are so many things to be said… We were supposed to be on the same team, fighting for my healthcare yet the “Healthcare System” has stolen you from my team.
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Dr. Whitney Woodhall’s Story
Meet Dr. Whitney Woodhall, a Nationwide Children’s Resident 1. Tell Us About Yourself. I am originally from western MI, and came to Ohio for my pediatric neurology residency at Nationwide…
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Dr. Margaret Beigel’s Story
Meet Dr. Margaret Beigel, an Ohio State University Neurology Resident Tell us a bit about yourself. Hey everyone, I am Margaret – a current PGY3 neurology resident at The…
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Dr. Marika Antimisiaris’s Story
Meet Marika, an Ohio State Neurology Resident Tell us a bit about yourself. I moved around a lot growing up – lived in Oregon, California, New Jersey, Hawaii, and…
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Meet Betty, An Ohio State Employee Living with Epilepsy
My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year. Â OSU is contributing to some…
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Dr. McAuley’s Story
In my crazy busy weekly schedule, I look forward to Wednesday mornings. I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient…
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Addressing Healthcare Disparities in Women with Epilepsy
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…
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MES Online Support Group
Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group! In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about…
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Dr. Sarita Maturu’s Story
I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…
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Dr. Deepti Zutshi’s Story
Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family. Transferring that quality to becoming a doctor…
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Tiffany’s Story
My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time. After diagnosis, I…
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Maci’s Story
With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…
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Heather’s Story
My story with epilepsy began right after my daughter turned two years old. She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went…
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Melissa’s Story
My epilepsy story didn’t start until 2012. At that time, I had my first seizure, but did not know it was a seizure. About 2 weeks later, I had 2…
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Betty’s Story
My name is Betty and I have had epilepsy since I was 2 years old. I was not allowed to do anything because of my epilepsy, so it made me…
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Rachel’s Story
My name is Rachel and I am from Louisiana. I was diagnosed with Epilepsy in January of 2015. I was 26 years old at the time. It started one afternoon…
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Christina’s Story
When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling…
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Sara’s Story
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was…
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Ashley’s Story
My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…
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Meg’s Story
It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….
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Ashley’s Story
My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember…
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Elizabeth’s Story
I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due…
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Rachel’s Story
My epilepsy story is a long and complicated one, with frustrating twists and turns. The journey to my diagnosis was not easy or crystal clear, and I had to fight…
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Mariellen’s Story
My epilepsy story started with enjoying the 4th of July weekend out on the lake with family and friends in 2012. It was the perfect weekend filled with boating, fireworks,…
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Grace’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Grace’s Story: In June 2008, my 10-year…
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Sara’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Sara’s Story: Hello, My name is Sara…
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Olivia’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Shannon writes: In 2009, my husband, Mike…
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Addison’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: We knew febrile seizures were…
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Heidi’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Heidi writes: Hi, my name is Heidi….
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Scarlett’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Scarlett was born June 19th,…
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Carolina’s Story
Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Eric writes: On August 22, 2011 Carolina…
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Harper’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Harper writes: [image title=”Harper’s Story”…
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Chelsea’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Chelsea was born…
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Gianna’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image align=”left” size=”small”]https://myepilepsystory.org/wp-content/uploads/2012/11/giannastory.jpg[/image]On…
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Gatewood’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: My memories until…
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Monica’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image source_type=”attachment_id” source_value=”241″…
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Amanda’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Amanda was born…
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Meg’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: It was March…
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Kathryn’s Story
Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] I was just finished my…
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
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Stay Updated
Receive valuable content and personal stories from other women and girls just like yourself.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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