My Epilepsy Story

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info@myepilepsystory.org

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(615) 822-4224

Parents of Girls Diagnosed with Epilepsy

17 Nov
0

IT’S NOT JUST SEIZURESTM: Quality of Life Survey

Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living…

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28 Aug
0

Epilepsy Caregiver Support Guide

“I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy…

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03 Apr
0

MES Online Support Group

Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group!  In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about…

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Dr. Anup Patel Headshot
17 Dec
0

Transitioning from a Pediatric Neurologist to an Adult Neurologist

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…

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23 Oct
0

Heather’s Story

My story with epilepsy began right after my daughter turned two years old.  She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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14 Dec
0

Surviving the Holidays after Losing Your Daughter to Epilepsy

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

Stay Updated

Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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