My Epilepsy Story

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Helpful Epilepsy Information

Dr. Anup Patel Headshot
05 May
0

WWE C.A.R.E. Series: Featuring Dr. Anup Patel

My Epilepsy Story PRESENTS Dr. Anup Patel: “Importance of Proper Transition From Pediatric to Adult Neurology” Two years ago, My Epilepsy Story interviewed Dr. Anup Patel, Section Chief of Pediatric Neurology…

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22 Feb
0

The Epilepsy Transition Clinic

The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center About the Author: Sarita Maturu, DO Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in…

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01 Jan
0

Ohio State University & MES Partnership

We are excited to announce our partnership with The Ohio State University, Wexner Medical Center to EMPOWER women and girls living with epilepsy in 2021. Their center includes physicians, whom…

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17 Nov
0

IT’S NOT JUST SEIZURESTM: Quality of Life Survey

Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living…

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28 Aug
0

Epilepsy Caregiver Support Guide

“I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy…

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29 Jul
0

Homeschool vs. Traditional School during COVID-19

COVID-19 has ushered in a new normal in many aspects of our lives.  Along with the drastic changes in our basic social behavior and habits there are many new questions…

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07 Jul
0

The “Doctor Is In” but Should I Go?

The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians.  Although telemedicine has been around for several years, use has been limited,…

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09 Jun
0

Addressing Healthcare Disparities in Women with Epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…

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28 Apr
0

Fiscally Surviving Covid-19

CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has…

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03 Apr
0

MES Online Support Group

Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group!  In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about…

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06 Mar
0

Staying SAFE during the Coronavirus Outbreak

Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…

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Dr. Anup Patel Headshot
17 Dec
0

Transitioning from a Pediatric Neurologist to an Adult Neurologist

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…

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04 Dec
0

Fertility and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…

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20 Nov
0

Managing Your Epilepsy & Tracking Your Seizures

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows…

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31 Jul
0

Meet our MES Ambassadors and Join With Us

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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06 Jun
0

Join MES for Epilepsy Education Day at UK Healthcare on June 8th

We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day!  Please join us and hear our Executive Director/Founder Brandy McFadden as the…

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International Women With Epilepsy Day Events
25 Feb
0

Coming Soon: International Women with Epilepsy Day

Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day!  This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY…

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07 Jan
0

Epilepsy in Latinx Community

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately…

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18 Dec
0

Managing Epilepsy and a Baby in the NICU

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…

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14 Dec
0

Surviving the Holidays after Losing Your Daughter to Epilepsy

My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…

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25 Oct
0

Traveling with Epilepsy

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…

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03 Oct
0

Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician

[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….

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24 Sep
0

New Research on Prescribing Medication in Pregnant Women with Epilepsy

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…

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21 Sep
0

What is Catamenial Epilepsy?

Catamenial Epilepsy: What is it, and what can be done about it?     Catamenial epilepsy is not a specific type of epilepsy or type of seizure.  The term simply…

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26 Aug
0

Transitioning from Pediatric to Adult Neurology

Transitioning from Pediatric to Adult Neurologist   Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues.  It can be particularly…

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01 Aug
0

So You Are College Bound…..Now What?

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…

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18 Jul
0

FDA Approves Epidiolex

The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S.  Studies in the U.S. of Epidiolex (a…

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My Epilepsy Story
16 Jul
0

Epilepsy and Fertility

The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…

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09 Jul
0

Know your Seizure Type

Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….

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03 Jul
0

Kimford J. Meador Research in Women with Epilepsy Award

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…

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10 Jun
0

The Strength of a Movement: Her Epilepsy Story

When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn’t have any clue as…

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11 May
0

SeizureTracker.com isn’t just for tracking “SEIZURES”

In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished.  Whether it is getting things done at…

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26 Apr
0

Seizure Freedom is NEVER Promised

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter…

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21 Nov
0

Epilepsy Safety with your Newborn Baby

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full…

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15 Nov
0

November is Epilepsy Awareness Month

It is that time of year again… Epilepsy Awareness Month!  November is the month where many organizations promote Epilepsy Awareness.  Here at My Epilepsy Story (MES),  we are joining with…

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17 Nov
0

Choosing the Right Health Insurance Plan

Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

Stay Updated

Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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