My Epilepsy Story

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Chelsea’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy.
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She writes:

Chelsea was born September 28, 1992 and brought more joy into our lives than we can express in words. At the age of 11, she began having occasional seizures, until one night, April 19, 2009, at the age of 16, Chelsea died very unexpectedly after having a seizure in her sleep. No one ever told us a seizure could take her life. The term, SUDEP (Sudden Unexplained Death in Epilepsy) is a term we would learn to know all too well.

Chelsea loved life! She lived every day to the fullest and never ceased to amaze us with her creativity and imagination. From believing she was a baby fox or a mama kitty as a young girl, to pretending to be a mermaid lying helplessly on the floor inside her bedroom (you know, Mermaids can’t walk); there was never a dull moment. She had a pink alien friend named “Sweetie” who went on many wonderful adventures with her. To most, Sweetie looked like a simple pink baby blanket. “Britany” was her special teddy bear friend who had her own passport and traveled everywhere with her. The stories she would write and the pictures she would draw amazed us. She loved to read and would get on and off the school bus with her nose in a book; she just couldn’t get enough. As she grew into the beautiful young woman that she was, her love and appreciation for life and those around her grew even stronger. Her love for shopping and design labels grew too. Chelsea’s room was immaculate and her school notebooks were color-coordinated and uniquely decorated; complete with a Disney Princess folder inside each one. She took on most school assignments with great enthusiasm. There was no such thing as a simple book report. Instead, they were projects that typically involved a trip to a store for special art supplies to make them just so.

Chelsea was as incredibly beautiful on the inside as she was on the outside. She never wanted to be limited to just one group of friends; she genuinely wanted to be friends with EVERYONE! She loved who she was and even loved her name! It was important for her to be her own person and often referred to herself as a “dork” with pride! Chelsea touched many lives and we are amazed at how many she continues to touch even after her passing.

The Chelsea Hutchison Foundation was created in loving memory of our precious daughter, Chelsea Alice Hutchison.
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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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