My Epilepsy Story

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Epilepsy Facts

1 in 10 people will have a seizure.

1 in 26 people will develop epilepsy.

About 50,000 people die each year from epilepsy.

This is one of the things that people with epilepsy want the world to know. As I said in my last blog post, we asked the question on our Facebook page, “What is the one thing you wished people knew about epilepsy?” A common response was that more people have epilepsy than people with Autism. Epilepsy affects MORE people than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s COMBINED. Yet, epilepsy receives fewer federal dollars per patient than each of these diseases! What is wrong with this picture?

When we look at these numbers, we should be outraged that EPILEPSY IS STILL IN THE DARK! As a person living with epilepsy, I am passionate about raising funds for research. We desperately need more research for epilepsy. The more research we have, the more chances we have to find better treatments and a cure.

About 50,000 people die each year in the United States from epilepsy. Most people don’t realize that you can die from epilepsy. This is a serious medical issue that NEEDS to be addressed. Please join with us and share your “My Epilepsy Story” to put a face to epilepsy. We will change the tide for epilepsy by sharing our stories. I look forward to sharing our stories side by side to make a difference in this world for the next year, 6 years, 16 years, 26 years and beyond…..Stand tall and stand strong! Together we can!

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*Brandy Parker, Executive Director/Founder of My Epilepsy Story, with her son Samuel in photos above

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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