Heavy with All: My Journey to Cry, Fight, and Rise
It’s 2 am, and I am lying here as my heart is heavy with all that is going on. I watch him struggle each day. What am I to do?…
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Women With Epilepsy Day ’24
National Women With Epilepsy Day: Elevating awareness and supporting research for epilepsy, especially in women and girls, is a collective responsibility.
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WWE C.A.R.E. Seminar Series Event
WWE C.A.R.E. Seminar Series Event Neurologic Co-morbidities in Women with Epilepsy My Epilepsy Story invites all healthcare professionals and students to REGISTER TODAY for the next installment in the W.E….
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Shelter From the Storm
Blue Raider Contracting Epilepsy is often described as a lightening storm in the brain. For women and girls living with epilepsy, seizures are not the only thing that impact their…
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Dear Doctor
Dear Doctor,
As I sit here to write you this note there are so many things to be said… We were supposed to be on the same team, fighting for my healthcare yet the “Healthcare System” has stolen you from my team.
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WWE C.A.R.E. Series: Featuring Dr. Anup Patel
My Epilepsy Story PRESENTS Dr. Anup Patel: WWE C.A.R.E. Series Two years ago, My Epilepsy Story interviewed Dr. Anup Patel, Section Chief of Pediatric Neurology at Nationwide Children’s Hospital, where he…
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Dr. Whitney Woodhall’s Story
Meet Dr. Whitney Woodhall, a Nationwide Children’s Resident 1. Tell Us About Yourself. I am originally from western MI, and came to Ohio for my pediatric neurology residency at Nationwide…
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Collaboration is Key
Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day! WOW, this has been an AMAZING journey to get us here! As I sit here thinking about…
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MONEAD Study Group (2020) Summary
MONEAD Study Group Maternal Outcomes and Neurodevelopmental Effects of Antiepileptic Drugs The Ohio State University Medical Center’s Epilepsy Team held a journal club on the recently published article: Pennell PB, French JA,…
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The Epilepsy Transition Clinic
The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center About the Author: Sarita Maturu, DO Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in…
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Dr. Margaret Beigel’s Story
Meet Dr. Margaret Beigel, an Ohio State University Neurology Resident Tell us a bit about yourself. Hey everyone, I am Margaret – a current PGY3 neurology resident at The…
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Dr. Marika Antimisiaris’s Story
Meet Marika, an Ohio State Neurology Resident Tell us a bit about yourself. I moved around a lot growing up – lived in Oregon, California, New Jersey, Hawaii, and…
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The Role of the Pharmacist and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. James W. McAuley. Dr. McAuley is Associate Dean of Academic Affairs, Professor of Pharmacy Practice, Neurology…
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Meet Betty, An Ohio State Employee Living with Epilepsy
My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year. OSU is contributing to some…
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Ohio State University & MES Partnership
We are excited to announce our partnership with The Ohio State University, Wexner Medical Center to EMPOWER women and girls living with epilepsy in 2021. Their center includes physicians, whom…
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Making Sense of 2020
As I sit here wondering what to write my heart aches for so many this year all across the world…. The heartache, pain, and loss can be so overwhelming to comprehend….
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2020 Kimford J. Meador Research in Women with Epilepsy Award
The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…
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Dr. Sandra Helmers Memorial Scholarship
I wanted to unveil this exciting news during our annual American Epilepsy Society (AES) meeting! I am writing to share with you about our newest award from the My Epilepsy Story…
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Primary Care Physicians and Neurologist
Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country. We should be working together within our residency programs…
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Thanksgiving 2020: Safer At Home
Thanksgiving 2020 2020 has been a long, eventful year with the Covid-19 pandemic. Many will be tempted to reconnect with family and friends across the country or your home state…
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IT’S NOT JUST SEIZURESTM: Quality of Life Survey
Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living…
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I See Your Eyes Above Your Mask
I see your eyes above the mask you are wearing each day while you are at work, at the grocery store, on the bus or walking on the street. I…
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Epilepsy Caregiver Support Guide
“I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy…
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Homeschool vs. Traditional School during COVID-19
COVID-19 has ushered in a new normal in many aspects of our lives. Along with the drastic changes in our basic social behavior and habits there are many new questions…
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Dr. McAuley’s Story
In my crazy busy weekly schedule, I look forward to Wednesday mornings. I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient…
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The “Doctor Is In” but Should I Go?
The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians. Although telemedicine has been around for several years, use has been limited,…
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Addressing Healthcare Disparities in Women with Epilepsy
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…
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Pregnancy and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…
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5 Ways to Help Your Child Cope
Are You a Recently Furloughed or Laid-Off Parent? We live in uncertain times as we are confronted with the collateral damage of the COVID19 pandemic. I understand that not only is…
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Nurse Rachel Ward-Mitchell’s Story
I started working with people with epilepsy without any intention to make it my specialty. I took a position as a nurse at the University of Kentucky on a busy…
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Fiscally Surviving Covid-19
CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has…
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MES Online Support Group
Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group! In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about…
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School Closings due to COVID-19
We are in uncertain times…. Coronavirus(COVID-19) is spreading, schools are closing and many jobs are transitioning to working from home. We need to remember that we will get through this…
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Staying SAFE during the Coronavirus Outbreak
Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…
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2nd Annual International Women With Epilepsy Day!
Facebook Twitter Google-plus Linkedin Instagram Join Us on March 1st To celebrate International Women With Epilepsy Day, My Epilepsy Story will be hosting a Live Chat via Zoom on March…
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Dr. Sarita Maturu’s Story
I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…
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Breastfeeding and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown…
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Season of Giving 2019
Thank you all for your support this past year! Thank your for supporting our mission to advocate, educate, and research for women and girls living with epilepsy! Your contributions this…
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Transitioning from a Pediatric Neurologist to an Adult Neurologist
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…
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Fertility and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…
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Managing your Medication during Pregnancy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …
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Dr. Deepti Zutshi’s Story
Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family. Transferring that quality to becoming a doctor…
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Managing Your Epilepsy & Tracking Your Seizures
On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures Robert Moss knows…
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Tiffany’s Story
My name is Tiffany. I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash. I’d been married for only four months at this time. After diagnosis, I…
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Maci’s Story
With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…
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Heather’s Story
My story with epilepsy began right after my daughter turned two years old. She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went…
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Melissa’s Story
My epilepsy story didn’t start until 2012. At that time, I had my first seizure, but did not know it was a seizure. About 2 weeks later, I had 2…
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Betty’s Story
My name is Betty and I have had epilepsy since I was 2 years old. I was not allowed to do anything because of my epilepsy, so it made me…
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Rachel’s Story
My name is Rachel and I am from Louisiana. I was diagnosed with Epilepsy in January of 2015. I was 26 years old at the time. It started one afternoon…
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Christina’s Story
When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling…
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It’s Back To School Time
BACK to SCHOOL TIPS from MES! Yes, Folks, it’s that time of year again…so here are 10 tips to help prepare your child and yourself for the upcoming school…
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Fresh Friday- Its Burger Time!
Hello friends & Happy Friday! Can you believe we’re well into AUGUST already? Where has this year gone? I am starting to see more & more of my friends posting…
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Meet our MES Ambassadors and Join With Us
California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…
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Fresh Fridays! It’s (healthy) PIZZA Time!
Happy Fresh Friday folks! I’m back to sharing healthy recipes this week but curious- did anyone try that workout last week? Whoo! That circuit is pretty great! Today I’m sharing…
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MES Ambassador Program
MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the…
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Fit Friday- Today’s A Great Day for EXERCISE!
Hi everyone! I thought I’d take a break from the recipes today & share an awesome full-body, body-weight only workout you can do right in your own living room. A…
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Fresh Fridays! Breakfast is Served
Happy Friday friends! You’ve heard the saying, “Breakfast is the most important meal of the day…” Well to each their own, but for me, breakfast is actually my favorite meal…
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Fresh Fridays! Crispy Smashed Potatoes
Hello friends! Hope everyone had a really happy & safe Independence Day with your family & friends! We spent ours driving around the outskirts of Boise until about 11:30pm so…
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Fresh Fridays! Sheet Pan Supper
Hello friends! Welcome to another edition of Fresh Fridays! Today I’m sharing a recipe that will have a healthy & delicious dinner on the table in less than 30 minutes!…
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Fresh Fridays! – My Favorite Keto Snack
Happy Friday friends! It’s Jodi, MES Health & Wellness director here. I’ve been traveling for the past 2 weeks & I am sooo ready to get back to my routine!…
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Fresh Fridays! New Summer Recipe Series
Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…
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Join MES for Epilepsy Education Day at UK Healthcare on June 8th
We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day! Please join us and hear our Executive Director/Founder Brandy McFadden as the…
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Sara’s Story
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was…
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International Women with Epilepsy Day
March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have…
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Coming Soon: International Women with Epilepsy Day
Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day! This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY…
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Epilepsy & Stress
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience…
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Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…
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Epilepsy in Latinx Community
How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately…
Read MoreReflecting on 2018
As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes… I am thankful for all that we are are accomplishing at My…
Read MoreExercise During the Holidays
Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time…
Read MoreManaging Epilepsy and a Baby in the NICU
Managing Epilepsy with a Baby in the NICU Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…
Read MoreSurviving the Holidays after Losing Your Daughter to Epilepsy
My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…
Read MorePlease Join With Us
During this holiday season there is a day called #GivingTuesday where everyone joins TOGETHER and gives back to nonprofit organizations. This year on Tuesday, November 27, 2018 is #GivingTuesday. Please…
Read MoreDepression and Epilepsy
Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…
Read MoreDoes every woman living with epilepsy need a primary care doctor?
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…
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Finding a Doctor & Coordinating Your Care
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Gregory Mathews from Silver Springs, Maryland on: How to Find…
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Educating the Medical Community with a New Video Series
We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians…
Read MoreCONGRATULATIONS Ladies! We did it!!!
Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…
Read MoreTraveling with Epilepsy
The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…
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Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician
[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….
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I am just a teenage girl….Why do I have to have epilepsy?
Why ME??? I know it just isn’t fair! You were just like all the other girls just last week… Then it happened… You had a seizure and now your life…
Read MoreNew Research on Prescribing Medication in Pregnant Women with Epilepsy
Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…
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What is Catamenial Epilepsy?
Catamenial Epilepsy: What is it, and what can be done about it? Catamenial epilepsy is not a specific type of epilepsy or type of seizure. The term simply…
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Celebrating the Little Boy That Started it All
As I sit here thinking of the My Epilepsy Story (MES) organization and how far we have come it is bittersweet…. Hearing the voices and stories of women and girls…
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Transitioning from Pediatric to Adult Neurology
Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues. It can be particularly…
Read MoreSo You Are College Bound…..Now What?
Graduations have come to an end and the summer is here. I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…
Read MoreFDA Approves Epidiolex
The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S. Studies in the U.S. of Epidiolex (a…
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Epilepsy and Fertility
The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…
Read MoreKnow your Seizure Type
Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….
Read MoreKimford J. Meador Research in Women with Epilepsy Award
In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…
Read MoreThe Strength of a Movement: Her Epilepsy Story
When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn’t have any clue as…
Read MoreSeizureTracker.com isn’t just for tracking “SEIZURES”
In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished. Whether it is getting things done at…
Read MoreDepression, Anxiety, & Epilepsy……
Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety? This is such a great question! Many people are stressed over things in their lives yet that…
Read MoreEpilepsy Birth Control Registry
What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…
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Home Exercise 101
Hello friends! I hope 2018 is treating you to lots of health and happiness so far. In my last post I discussed the importance of exercise for everyone, but especially…
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
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Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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