My Epilepsy Story

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05 Oct
0

The Race

I ran my first 5k this year with my best friend.  As I was running the race, I started out strong with all these people surrounding me looking fresh and…

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05 Oct
0

Gianna’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image align=”left” size=”small”]https://myepilepsystory.org/wp-content/uploads/2012/11/giannastory.jpg[/image]On…

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02 Oct
0

Gatewood’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: My memories until…

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05 Sep
0

Monica’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image source_type=”attachment_id” source_value=”241″…

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06 Aug
0

Life is what happens to you while you’re busy making other plans…..

This quote from John Lennon, “Life is what happens to you while you’re busy making other plans.” has really hit home lately.   I am a planner by nature, however…

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05 Aug
0

Amanda’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Amanda was born…

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28 Jul
1

Decisions…….

In life we make choices…..some turn out to be the worst decision and others turn out to be the best thing that has ever happened to us.  As I sit…

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05 Jul
0

Meg’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: It was March…

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30 Jun
0

Enjoying the moment….

This has been a very stressful week personally.  As I sit here this evening, I am enjoying the moments that I have had with my three beautiful children.  I hear…

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21 Jun
0

What is it like to be you?

This evening I watched the movie, The Help, and LOVED it!  It has the song from Mary J. Blige, The Living Proof, which I also love…. As I watched the movie…

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19 Jun
0

My baby is gone……..

[image source_type=”attachment_id” source_value=”326″ align=”left” size=”medium” autoHeight=”true”] I haven’t blogged about my youngest before so I wanted to share about him.  David just turned three today and I am amazed at…

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18 Jun
0

ANSWERS………………

Hold on and be patient!  The answers are not always right in front of us……We live in a right now day and age.  We want everything instantly!  We are always…

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06 Jun
0

Are You A Leader?

What is a leader?  Who in your life do you consider a leader?  One definition of leader is a person who rules, guides, or inspires others.  As I looked this…

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05 Jun
0

Kathryn’s Story

Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] I was just finished my…

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04 Jun
0

Time to focus….

Well I am making my list of things to get done…..Time to start picking back up on the My Epilepsy Story organization.  I have had a lot going on personally…

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03 Jun
0

Anger

I decided to look up the definition of anger today……one definition was : A strong feeling of displeasure, resentment, or hostility. I have been reading a wonderful book and the…

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01 Jun
0

Through My Daughter’s Eyes……

I blog a lot about my son Samuel so I thought I would share about my precious little girl, Hannah Kate…..You see this beautiful little girl is almost 5 years…

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24 May
1

Limbo….

Don’t you just hate being in limbo?  What does that actually mean, you might ask…..well one definition is prolonged uncertainty.  I hate the uncertainty of things!  When you think you…

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16 May
0

Who’s Your Hero?

I looked up the definition of a hero this evening.  The definition was, “a man of distinguished courage or ability, admired for his brave deeds and noble qualities.”  As I…

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14 May
1

When Will This Storm End?

When will this storm end….This past week has been a horrible storm for our family.  I watch myself walk to the left and there is a storm.  I move to…

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13 May
0

Mother’s Day

Well today is Mother’s Day and I find myself reflecting on what type of mother I am.  I often wonder if my children will sit around when they are older…

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08 May
0

Embrace Where You Are…..

Last week Samuel told the priest all about the “dry, large intestines” while he was about to receive communion.  As I was kneeling next to him, all I could do…

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18 Apr
0

Busy times…

Life has been extremely busy this past month.  As I sit and think of all the new things happening in my life I am overwhelmed…. Samuel has done AMAZING at…

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11 Mar
0

Holding on too tight…..

I have arrived in Atlanta this evening for some meetings with doctors at Emory University and to meet with some people from the Center for Disease Control (CDC).  I am…

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28 Feb
0

Tears through the testing….

 Well today Samuel started his first day of school at the private school here in town.  He did a great job and went the whole day.  The teacher seems very…

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28 Feb
0

Tears through the test results…..

Well today has been a day of new beginnings in our home.  Samuel started his first day at school and did a great job.  The teacher was wonderful with him…

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12 Feb
2

Testing….

Well we arrived in Boston on Friday evening.  I am so fortunate to have my best friend accompany me with her son on this trip.  It has been great to…

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11 Feb
0

Day 1 in Boston…..

We had a great visit today with Dr. Bauman from the Ladders

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10 Feb
0

Boston Bound……

Well we are headed to Boston to be a part of a research project on children that were exposed to valproate in utero.  I am excited to have Samuel participate…

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22 Jan
0

Taking Chances and Trusting……..

I had to take some time before I wrote this blog but here it is……. As we walk on this journey with Samuel it can be very exciting, rewarding, confusing,…

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10 Jan
1

LIVING PROOF……..

Well I had to take this last month to process the things that have happened since my trip to Baltimore…..As I went to the American Epilepsy Society Annual Meeting I…

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28 Nov
1

The Countdown begins….

Well the countdown has begun in our home…..The countdown for the children is the holiday season and for me it is my trip to the American Epilepsy Society Annual Meeting….

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06 Nov
1

Don’t give up, the beginning is always the hardest……

This past week has been extremely busy as I try to prepare things to head to Baltimore, Maryland for the annual American Epilepsy Society meeting in December.  Our Facebook page…

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30 Oct
2

And so it begins…..

We are about to enter November which is Epilepsy Awareness Month.  As things for the organization have really begun to go, it is sink or swim now……Facebook has really taken…

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22 Oct
0

Everyday Health…..

There is an exciting new series on Everyday Health….. On October 22 they will air an episode on Canine Assistance Service Dogs featuring someone living with epilepsy… Follow the link…

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17 Oct
2

Reflection…..

Tonight as reflect on the things of the past week my heart is filled with joy and sadness….Joy as Samuel climbed a tree and sadness as I sat with parents…

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25 Sep
0

Come on people…….

Well this has been an interesting time over the last few weeks.  As I sat in one of Samuel’s classes this week (it was the first day) there were two…

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07 Sep
0

Do I have the strength to keep going……

You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. ~Eleanor Roosevelt A Facebook friend posted this quote by Eleanor…

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23 Aug
3

Fresh Start….

Well these past few weeks have been extremely full…..A close friend died and left behind his amazing wife and two beautiful children. I will begin to go back to the…

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05 Aug
0

Is he special needs?

This past week has been very busy.  When I went to exercise at the gym for the first time I was excited.  The kids were all ready to go and…

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30 Jul
0

Mothers…..

Lately I have been blessed to meet some wonderful mothers that give me inspiration. As I sit and listen to these mothers talk about their children and the challenges they…

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29 Jul
0

Finding a cure….

There has been much discussion lately in regards to finding a cure for epilepsy. Some people believe that it is taking away from therapy treatments for patients with epilepsy.  As…

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23 Jul
0

Processing….

As I finally sit here to write for the first time since attending Baby Cece’s visitation, words cannot even begin to describe the pain I saw in her parents eyes……My…

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18 Jul
0

Baby Cece….

It is with great sadness to say that little Cece died late last night…..This sweet little baby that I had the chance to meet for only a little while has…

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13 Jul
0

Sweet Cece

Last night I had the chance to meet sweet Cece…This sweet little baby suffers from epilepsy.  Last night as I stood at the foot of her crib at the hospital…

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11 Jul
0

The beginning…

At the age of 15 I had a seizure and I was wondering what my life would hold.  I didn’t want anyone to know that I had epilepsy.  I thought…

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07 Jul
0

The Journey Begins……..

After much thought and consideration my journey begins as I share My Epilepsy Story…….

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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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