My Epilepsy Story

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info@myepilepsystory.org

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(615) 822-4224

epilepsy medication

01 Mar
1

Collaboration is Key

Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day!  WOW, this has been an AMAZING journey to get us here!  As I sit here thinking about…

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31 Jan
0

The Role of the Pharmacist and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. James W. McAuley.  Dr. McAuley is Associate Dean of Academic Affairs, Professor of Pharmacy Practice, Neurology…

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Artwork by Betty
18 Jan
0

Meet Betty, An Ohio State Employee Living with Epilepsy

My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year.  OSU is contributing to some…

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31 Dec
0

Making Sense of 2020

As I sit here wondering  what to write my heart aches for so many this year all across the world…. The heartache, pain, and loss can be so overwhelming to comprehend….

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06 Dec
0

2020 Kimford J. Meador Research in Women with Epilepsy Award

The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…

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04 Dec
0

Primary Care Physicians and Neurologist

Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country.  We should be working together within our residency programs…

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09 Jun
0

Addressing Healthcare Disparities in Women with Epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…

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10 May
0

Pregnancy and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…

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04 Feb
0

Dr. Sarita Maturu’s Story

I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…

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09 Jan
0

Breastfeeding and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown…

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Dr. Anup Patel Headshot
17 Dec
0

Transitioning from a Pediatric Neurologist to an Adult Neurologist

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…

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27 Nov
0

Managing your Medication during Pregnancy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …

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20 Nov
0

Managing Your Epilepsy & Tracking Your Seizures

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows…

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19 Nov
0

Tiffany’s Story

My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time.  After diagnosis, I…

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12 Nov
0

Maci’s Story

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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06 Jun
0

Join MES for Epilepsy Education Day at UK Healthcare on June 8th

We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day!  Please join us and hear our Executive Director/Founder Brandy McFadden as the…

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01 Mar
0

International Women with Epilepsy Day

March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day!  This has been a vision of mine for several years to have…

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09 Jan
0

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…

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30 Dec
0

Reflecting on 2018

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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16 Nov
0

Depression and Epilepsy

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…

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14 Nov
0

Does every woman living with epilepsy need a primary care doctor?

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…

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07 Nov
0

Educating the Medical Community with a New Video Series

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians…

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02 Nov
0

CONGRATULATIONS Ladies! We did it!!!

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…

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25 Oct
0

Traveling with Epilepsy

The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…

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24 Sep
0

New Research on Prescribing Medication in Pregnant Women with Epilepsy

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…

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26 Aug
0

Transitioning from Pediatric to Adult Neurology

Transitioning from Pediatric to Adult Neurologist   Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues.  It can be particularly…

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01 Aug
0

So You Are College Bound…..Now What?

Graduations have come to an end and the summer is here.   I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…

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03 Jul
0

Kimford J. Meador Research in Women with Epilepsy Award

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…

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11 May
0

SeizureTracker.com isn’t just for tracking “SEIZURES”

In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished.  Whether it is getting things done at…

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26 Apr
0

Seizure Freedom is NEVER Promised

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter…

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21 Apr
0

Depression, Anxiety, & Epilepsy……

Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety?  This is such a great question!  Many people are stressed over things in their lives yet that…

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10 Apr
0

Epilepsy Birth Control Registry

What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…

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13 Mar
0

What about the Women and Girls?

The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but…

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06 Jan
0

Be BOLD while living with Epilepsy in 2018

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the…

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14 Dec
0

Beauty is Right in Front of You

As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…

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30 Nov
0

Exploring What Care a Pharmacist Can Provide for Women with Epilepsy

  Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…

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28 Nov
0

Are You Prepared for Your Neurology Appointment?

So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…

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24 Nov
0

Reasons for Giving Thanks in the Midst of Epilepsy

On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…

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23 Nov
0

A Partnership is Blooming

At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…

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21 Nov
0

Epilepsy Safety with your Newborn Baby

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full…

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16 Nov
0

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…

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17 May
0

The Future Belongs to You

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates…

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25 Jan
0

Ashley’s Story

My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came…

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Harper-Story
11 Jan
0

I Have Lost……..

These past few days have been just overwhelmingly hard for our family. We have had to process the death of a beautiful little girl named Harper Howard and the daughter…

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05 Dec
0

Meg’s Story

It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….

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03 Dec
0

Ashley’s Story

My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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