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Traumatic Brain Injury
A TBI can be caused by a blow, jolt or hit to the head. It is important to seek medical care IMMEDIATELY if you have injured your head. TBI’s can cause…
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Susan’s Epilepsy Story
My journey with epilepsy began in 1991 after a car accident triggered my first seizure. At the time, medical answers were limited, and surgical options felt long and frightening. But…
Read MoreInternational Women with Epilepsy Day (IWWED)
This International Women with Epilepsy Day (IWWED), we honor Strength—and invest in Change. Women with epilepsy lead, create, and make history every day, yet many still face barriers to healthcare,…
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Gifts From the Road That No One Wants to Travel
As I begin to look towards what lies ahead, I am grateful for the darkest of days that I have experienced. The dark days taught me to look deeper inside and…
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Addressing Healthcare Disparities in Women with Epilepsy
My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…
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Transitioning from a Pediatric Neurologist to an Adult Neurologist
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…
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Fertility and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…
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Managing your Medication during Pregnancy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …
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Managing Your Epilepsy & Tracking Your Seizures
On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures Robert Moss knows…
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Tiffany’s Story
My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time. After diagnosis, I…
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MES Ambassador Program
MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the…
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Sara’s Story
I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was…
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International Women with Epilepsy Day
March 1st is the Annual International Women with Epilepsy Day (IWWED)! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have…
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Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…
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Epilepsy in Latinx Community
How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately…
Read MoreReflecting on 2018
As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes… I am thankful for all that we are are accomplishing at My…
Read MoreSurviving the Holidays after Losing Your Daughter to Epilepsy
My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of…
Read MoreDepression and Epilepsy
Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…
Read MoreDoes every woman living with epilepsy need a primary care doctor?
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…
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Educating the Medical Community with a New Video Series
We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians…
Read MoreCONGRATULATIONS Ladies! We did it!!!
Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…
Read MoreTraveling with Epilepsy
The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an…
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I am just a teenage girl….Why do I have to have epilepsy?
Why ME??? I know it just isn’t fair! You were just like all the other girls just last week… Then it happened… You had a seizure and now your life…
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Transitioning from Pediatric to Adult Neurology
Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues. It can be particularly…
Read MoreFDA Approves Epidiolex
The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S. Studies in the U.S. of Epidiolex (a…
Read MoreKnow your Seizure Type
Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….
Read MoreKimford J. Meador Research in Women with Epilepsy Award
In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…
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Beauty is Right in Front of You
As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…
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Holiday Event Planning
At My Epilepsy Story, Â we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy. Â I want to introduce you to…
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Exploring What Care a Pharmacist Can Provide for Women with Epilepsy
Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…
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Are You Prepared for Your Neurology Appointment?
So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…
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Reasons for Giving Thanks in the Midst of Epilepsy
On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season…
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A Partnership is Blooming
At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…
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Epilepsy Safety with your Newborn Baby
Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster. The joy of having that precious baby in your arms brings a full…
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Women with Disabilities Must Tackle More Hurdles than Men in the Workplace
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…
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November is Epilepsy Awareness Month
It is that time of year again… Epilepsy Awareness Month! November is the month where many organizations promote Epilepsy Awareness. Here at My Epilepsy Story (MES), we are joining with…
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“It always seems impossible…..”
“It always seems impossible until it’s done.” ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…
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I Have Lost……..
These past few days have been just overwhelmingly hard for our family. We have had to process the death of a beautiful little girl named Harper Howard and the daughter…
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Meg’s Story
It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….
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Ashley’s Story
My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember…
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Choosing the Right Health Insurance Plan
Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have…
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
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We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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Receive valuable content and personal stories from other women and girls just like yourself.
Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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