Dear Doctor
Dear Doctor,
As I sit here to write you this note there are so many things to be said… We were supposed to be on the same team, fighting for my healthcare yet the “Healthcare System” has stolen you from my team.
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WWE C.A.R.E. Series: Featuring Dr. Anup Patel
My Epilepsy Story PRESENTS Dr. Anup Patel: WWE C.A.R.E. Series Two years ago, My Epilepsy Story interviewed Dr. Anup Patel, Section Chief of Pediatric Neurology at Nationwide Children’s Hospital, where he…
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MONEAD Study Group (2020) Summary
MONEAD Study Group Maternal Outcomes and Neurodevelopmental Effects of Antiepileptic Drugs The Ohio State University Medical Center’s Epilepsy Team held a journal club on the recently published article: Pennell PB, French JA,…
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The Epilepsy Transition Clinic
The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center About the Author: Sarita Maturu, DO Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in…
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The Role of the Pharmacist and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. James W. McAuley. Dr. McAuley is Associate Dean of Academic Affairs, Professor of Pharmacy Practice, Neurology…
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2020 Kimford J. Meador Research in Women with Epilepsy Award
The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…
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Primary Care Physicians and Neurologist
Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country. We should be working together within our residency programs…
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IT’S NOT JUST SEIZURESTM: Quality of Life Survey
Seizure Tracker IT’S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living…
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The “Doctor Is In” but Should I Go?
The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians. Although telemedicine has been around for several years, use has been limited,…
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Pregnancy and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…
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School Closings due to COVID-19
We are in uncertain times…. Coronavirus(COVID-19) is spreading, schools are closing and many jobs are transitioning to working from home. We need to remember that we will get through this…
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Staying SAFE during the Coronavirus Outbreak
Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…
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Breastfeeding and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown…
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Transitioning from a Pediatric Neurologist to an Adult Neurologist
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children’s Hospital and The…
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Fertility and Epilepsy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…
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Managing your Medication during Pregnancy
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …
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Managing Your Epilepsy & Tracking Your Seizures
On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures Robert Moss knows…
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Meet our MES Ambassadors and Join With Us
California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…
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MES Ambassador Program
MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the…
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Join MES for Epilepsy Education Day at UK Healthcare on June 8th
We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day! Please join us and hear our Executive Director/Founder Brandy McFadden as the…
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International Women with Epilepsy Day
March 1st is the 1st Annual International Women with Epilepsy Day! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have…
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Epilepsy & Stress
Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience…
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Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant
Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…
Read MoreDoes every woman living with epilepsy need a primary care doctor?
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…
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Finding a Doctor & Coordinating Your Care
We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Gregory Mathews from Silver Springs, Maryland on: How to Find…
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Educating the Medical Community with a New Video Series
We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians…
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Help! My Daughter was Diagnosed with Epilepsy….. I Need a Pediatrician
[title text=”Ask An Expert: Dr. Mukundan”] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy….
Read MoreNew Research on Prescribing Medication in Pregnant Women with Epilepsy
Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…
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What is Catamenial Epilepsy?
Catamenial Epilepsy: What is it, and what can be done about it? Catamenial epilepsy is not a specific type of epilepsy or type of seizure. The term simply…
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Transitioning from Pediatric to Adult Neurology
Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues. It can be particularly…
Read MoreSo You Are College Bound…..Now What?
Graduations have come to an end and the summer is here. I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at…
Read MoreFDA Approves Epidiolex
The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S. Studies in the U.S. of Epidiolex (a…
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Epilepsy and Fertility
The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…
Read MoreKnow your Seizure Type
Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….
Read MoreKimford J. Meador Research in Women with Epilepsy Award
In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…
Read MoreEpilepsy Birth Control Registry
What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect…
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Exploring What Care a Pharmacist Can Provide for Women with Epilepsy
Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the…
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Are You Prepared for Your Neurology Appointment?
So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…
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Women with Disabilities Must Tackle More Hurdles than Men in the Workplace
Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…
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November is Epilepsy Awareness Month
It is that time of year again… Epilepsy Awareness Month! November is the month where many organizations promote Epilepsy Awareness. Here at My Epilepsy Story (MES), we are joining with…
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Choosing the Right Health Insurance Plan
Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have…
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MES003 – Brandy Interviews Dr. Loring
Brandy McFadden interviews Dr. Loring. Did you enjoy this episode? Please leave us a comment below and a positive review on iTunes. iTunes Link
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Looking Forward with Dr. Jim McAuley of Ohio State University
Hello and let me introduce myself. My name is Dr. Jim McAuley and I am the Clinical Pharmacist in our Multidisciplinary Epilepsy Clinic and a consultant to our High-Risk OB…
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MES002 – Brandy Interviews Dr. Meador with the MONEAD Research Study
Today, Brandy Parker interviews Dr. Kimford Meador with the MONEAD Research Study. Most Women with epilepsy have normal pregnancies, but appear to be at risk for problems during pregnancy and…
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Children with Epilepsy and Other Developmental Disabilities
In 1979, the Centers for Disease Control and Prevention (CDC) was presented with a question: How many children have a developmental disability? Knowing more about the number and characteristics of…
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A Story of Pregnancy and Epilepsy
She was young, beautiful, and newly married. I was the third doctor she saw, because she did not want to hear what the other neurologists had told her. The first…
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Pregnancy and Epilepsy
Women with epilepsy, who are childbearing potential, and their physicians face difficult decisions about the risks and benefits of antiepileptic drug (AED) use during pregnancy. These decisions need to be…
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Stand Up For Epilepsy With One Voice
Epilepsy affects the lives of millions of people of all ages around the world. It is an unpredictable and potentially devastating group of diseases that can cause seizures, brain injury,…
Read MoreWe want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
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Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.
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