Brandy McFadden is a wife, mother, patient advocate, Executive Director/Founder of My Epilepsy Story, and a woman living with epilepsy.  She is a member of the American Epilepsy Society and the American Epilepsy Society Epilepsy Leadership Council (ELC). Mrs. McFadden is a member of the AES ELC: Surveillance/Prevention Working Group and Membership Committee, a Consultant and Patient Advocate on the MONEAD Project, and COPE. Mrs. McFadden was named PCORI Ambassador in 2014. In addition, she is also a member of the American Academy of Neurology: Epilepsy Quality Measure Development Work Group and the American Academy of Neurology: Women with Epilepsy Guideline Work Group.

Mrs. McFadden testified before the Institute of Medicine (IOM) about her personal epilepsy story in 2011, which inspired her to found, My Epilepsy Story. She has presented at numerous hospitals and universities for Grand Rounds throughout the United States to help doctors understand the importance of Patient-Centered care as well as ways to incorporate this when caring for their patients.  Mrs. McFadden also presents on the importance of Patient-Driven Research.

Mrs. McFadden’s passion is to advocate for cutting-edge clinical care and research for women living with epilepsy. She believes that we can “bridge the gap for women diagnosed with epilepsy” by having Women’s Epilepsy Clinics and Centers across the globe.  Also, she believes that women’s health issues related to epilepsy need to be addressed globally. Mrs. McFadden is also passionate about having a national pregnancy registry that is federally funded. In addition, she has an interest in finding out the FULL IMPACT that anti-seizure medications have on ALL people living with epilepsy.

Mrs. McFadden lives in Tennessee with her husband, James, and their three children, Samuel, Hannah-Kate, and David.