My Epilepsy Story

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info@myepilepsystory.org

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(615) 822-4224

Women

04 Dec
0

Fertility and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…

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27 Nov
0

Managing your Medication during Pregnancy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …

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19 Nov
0

Tiffany’s Story

My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time.  After diagnosis, I…

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31 Jul
0

Meet our MES Ambassadors and Join With Us

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…

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Healthy Chicken Salad
14 Jun
0

Fresh Fridays! New Summer Recipe Series

Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…

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06 Jun
0

Join MES for Epilepsy Education Day at UK Healthcare on June 8th

We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day!  Please join us and hear our Executive Director/Founder Brandy Parker-McFadden as the…

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30 Dec
0

Reflecting on 2018

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My…

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18 Dec
0

Managing Epilepsy and a Baby in the NICU

Managing Epilepsy with a Baby in the NICU   Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks,…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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16 Nov
0

Depression and Epilepsy

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…

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14 Nov
0

Does every woman living with epilepsy need a primary care doctor?

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…

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24 Sep
0

New Research on Prescribing Medication in Pregnant Women with Epilepsy

  Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around…

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My Epilepsy Story
16 Jul
0

Epilepsy and Fertility

The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am…

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09 Jul
0

Know your Seizure Type

Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD….

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03 Jul
0

Kimford J. Meador Research in Women with Epilepsy Award

In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause,…

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10 Jun
0

The Strength of a Movement: Her Epilepsy Story

When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn’t have any clue as…

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11 May
0

SeizureTracker.com isn’t just for tracking “SEIZURES”

In today’s world we are all busy with LIFE… We never seem to have enough time in the day to get everything accomplished.  Whether it is getting things done at…

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26 Apr
0

Seizure Freedom is NEVER Promised

Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming.  First, the utter…

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21 Apr
0

Depression, Anxiety, & Epilepsy……

Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety?  This is such a great question!  Many people are stressed over things in their lives yet that…

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20 Mar
0

Death is Hard….Yet We Celebrate a Life Fulfilled

When you hear the news that one of the women that was such a huge influence on your life as a young teenage girl has passed away there is first…

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13 Mar
0

What about the Women and Girls?

The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but…

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11 Jan
0

An Introduction to Health & Wellness

Hello from MES’s new Health & Wellness Director! It’s that time of year again. No, I’m not talking about the holidays, although I do hope you all had a happy…

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06 Jan
0

Be BOLD while living with Epilepsy in 2018

It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018.  As I reflect on the…

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04 Oct
0

College is a time of “Self-Discovery”…..

“College is a time of self-discovery and growth, but it can also be an intense four years of stress.”  My first two years in college were especially hard on me;…

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14 Dec
0

Beauty is Right in Front of You

As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the…

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01 Dec
0

Holiday Event Planning

At My Epilepsy Story,  we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy.  I want to introduce you to…

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28 Nov
0

Are You Prepared for Your Neurology Appointment?

So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than…

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23 Nov
0

A Partnership is Blooming

At My Epilepsy Story, we are partnering with different companies to help “Bridge the Gap“ for women and girls living with epilepsy. In forming partnerships, this allows us to serve women…

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21 Nov
0

Epilepsy Safety with your Newborn Baby

Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster.  The joy of having that precious baby in your arms brings a full…

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16 Nov
0

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace

Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading…

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15 Nov
0

November is Epilepsy Awareness Month

It is that time of year again… Epilepsy Awareness Month!  November is the month where many organizations promote Epilepsy Awareness.  Here at My Epilepsy Story (MES),  we are joining with…

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17 May
0

The Future Belongs to You

“The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt   As we begin the graduation season, I am reflecting on what these young graduates…

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07 May
0

“It always seems impossible…..”

“It always seems impossible until it’s done.”  ~Nelson Mandela As I begin to think about Mother’s Day, I am reminded of all the wonderful women that have been brought into…

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05 Dec
0

Meg’s Story

It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team….

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13 Nov
0

Rachel’s Story

My epilepsy story is a long and complicated one, with frustrating twists and turns. The journey to my diagnosis was not easy or crystal clear, and I had to fight…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

Stay Updated

Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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