My Epilepsy Story

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info@myepilepsystory.org

Call Us

(615) 822-4224

epilepsy and women

01 Mar
1

Collaboration is Key

Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day!  WOW, this has been an AMAZING journey to get us here!  As I sit here thinking about…

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Artwork by Betty
18 Jan
0

Meet Betty, An Ohio State Employee Living with Epilepsy

My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year.  OSU is contributing to some…

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06 Dec
0

2020 Kimford J. Meador Research in Women with Epilepsy Award

The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care…

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09 Jun
0

Addressing Healthcare Disparities in Women with Epilepsy

My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a…

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10 May
0

Pregnancy and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo…

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06 Mar
0

Staying SAFE during the Coronavirus Outbreak

Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with…

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04 Feb
0

Dr. Sarita Maturu’s Story

I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality…

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04 Dec
0

Fertility and Epilepsy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research…

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27 Nov
0

Managing your Medication during Pregnancy

Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: “Managing Your Medication During Pregnancy“ …

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20 Nov
0

Managing Your Epilepsy & Tracking Your Seizures

On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures    Robert Moss knows…

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19 Nov
0

Tiffany’s Story

My name is Tiffany.  I’ve lived with epilepsy for over 10 years, having survived a seizure-car crash.  I’d been married for only four months at this time.  After diagnosis, I…

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12 Nov
0

Maci’s Story

With November being “National Epilepsy Awareness Month” I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for…

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17 Sep
0

Christina’s Story

When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling…

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31 Jul
0

Meet our MES Ambassadors and Join With Us

  California Ashley Garcia – CA My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have…

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Zucchini Pizza Bites
26 Jul
0

Fresh Fridays! It’s (healthy) PIZZA Time!

Happy Fresh Friday folks! I’m back to sharing healthy recipes this week but curious- did anyone try that workout last week? Whoo! That circuit is pretty great! Today I’m sharing…

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26 Jul
0

MES Ambassador Program

MES Ambassador Program    My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program.  This program will have MES Ambassadors from all across the…

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19 Jul
0

Fit Friday- Today’s A Great Day for EXERCISE!

Hi everyone! I thought I’d take a break from the recipes today & share an awesome full-body, body-weight only workout you can do right in your own living room. A…

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12 Jul
0

Fresh Fridays! Breakfast is Served

Happy Friday friends! You’ve heard the saying, “Breakfast is the most important meal of the day…” Well to each their own, but for me, breakfast is actually my favorite meal…

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Sheet Pan Fajitas
28 Jun
0

Fresh Fridays! Sheet Pan Supper

Hello friends! Welcome to another edition of Fresh Fridays! Today I’m sharing a recipe that will have a healthy & delicious dinner on the table in less than 30 minutes!…

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Keto Rollups
21 Jun
0

Fresh Fridays! – My Favorite Keto Snack

Happy Friday friends! It’s Jodi, MES Health & Wellness director here. I’ve been traveling for the past 2 weeks & I am sooo ready to get back to my routine!…

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Healthy Chicken Salad
14 Jun
0

Fresh Fridays! New Summer Recipe Series

Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do…

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20 Mar
0

Sara’s Story

I was 18-months-old when I had my first seizure.  It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless.  My father was…

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12 Mar
0

Self-Love

Self-Love is the regard for one’s own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic).  Self-love is not a bad thing when we do it correctly… In…

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Physician Mental Health - My Epilepsy Story
05 Feb
0

Epilepsy & Stress

  Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience…

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09 Jan
0

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant

Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant   In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures…

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07 Jan
0

Epilepsy in Latinx Community

How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately…

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30 Dec
0

Reflecting on 2018

As I reflect on 2018 the word that comes to mind is Thankful.  I am thankful for wishes… I am thankful for all that we are are accomplishing at My…

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27 Nov
0

The Power of Exercise

My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have…

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16 Nov
0

Depression and Epilepsy

Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss…

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14 Nov
0

Does every woman living with epilepsy need a primary care doctor?

We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy.  Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on:…

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07 Nov
0

Educating the Medical Community with a New Video Series

We are launching new videos this month for patients and the medical community.  We wanted to share with you one of our videos that will be used for educating physicians…

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02 Nov
0

CONGRATULATIONS Ladies! We did it!!!

Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is…

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21 Sep
0

What is Catamenial Epilepsy?

Catamenial Epilepsy: What is it, and what can be done about it?     Catamenial epilepsy is not a specific type of epilepsy or type of seizure.  The term simply…

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We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy.
Call Us (615) 822-4224

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

Stay Updated

Receive valuable content and personal stories from other women and children just like yourself.

We are an International, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy.

Stay Updated

Receive valuable content and personal stories from other women and girls just like yourself.

Disclaimer: Education materials on our website offer general medical information based on up-to-date evidence and, when available, practice guidelines. They are not intended for individual medical advice. Please refer to your treating physician to understand how this information may be applied to your care.

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