Generated by All in One SEO v4.9.5.1, this is an llms.txt file, used by LLMs to index the site. # My Epilepsy Story | Epilepsy Support We help women and girls living with epilepsy ## Sitemaps - [XML Sitemap](https://myepilepsystory.org/sitemap.xml): Contains all public & indexable URLs for this website. ## Posts - [News & Articles](https://myepilepsystory.org/news-and-articles/) - Susan’s Epilepsy Story Gifts From the Road That No One Wants to Travel Heavy with All: My Journey to Cry, Fight, and Rise Women With Epilepsy Day ’24 Share this post On Key Related Posts Susan’s Epilepsy Story Gifts From the Road That No One Wants to Travel Heavy with All: My Journey to Cry, - [Susan's Epilepsy Story](https://myepilepsystory.org/susans-epilepsy-story/) - Susan shares her story of seeking answers for years after a car accident led to her first seizure. Epilepsy, seizures, women's health and epilepsy surgery. - [Gianna's Story](https://myepilepsystory.org/giannas-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image align="left" size="small"]https://myepilepsystory.org/wp-content/uploads/2012/11/giannastory.jpg[/image]On February 25, 2002 our little five-pound miracle Gianna Cecelia was born. Arriving six weeks early, and the lone survivor of triplets, our beautiful little angel - [Amanda's Story](https://myepilepsystory.org/amandas-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Amanda was born November 14, 1997. She had her first seizure when she was about 11 months old. Doctors thought this seizure was most likely a febrile seizure, - [Meg's Story](https://myepilepsystory.org/megs-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school - [Chelsea's Story](https://myepilepsystory.org/chelseas-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Chelsea was born September 28, 1992 and brought more joy into our lives than we can express in words. At the age of 11, she began having occasional - [Gatewood's Story](https://myepilepsystory.org/gatewoods-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: My memories until 2005 are pretty clear. After that, the memories fade for a few years, and then pick back up somewhere in 2008. I still fight back - [Quiet Noise.....](https://myepilepsystory.org/quiet-noise/) - I spent this past weekend away trying to escape from the reality of life.  It is funny how when you go to find a quiet place to retreat to, that "quiet place" is really full of noise.....As I sat listening to the "quiet"  all I heard was noise....The endless questions of why things had happened - [The Race](https://myepilepsystory.org/the-race/) - I ran my first 5k this year with my best friend.  As I was running the race, I started out strong with all these people surrounding me looking fresh and upbeat.  As everyone turned on the first street and began to run up the hill, you could see how some of us needed to breathe - [Kathryn’s Story](https://myepilepsystory.org/kathryns-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] I was just finished my AA degree and was beginning my BS degree in counseling. I had transferred to a University in a different state that had everything I was - [Long Days......](https://myepilepsystory.org/long-days/) - As I reflect on the last few months of my life, I am thinking of how long the days have become. Is it really longer or is the fact that I have so much going on? I am so thankful for all the wonderful and exciting things that are beginning with the My Epilepsy Story. - [Justice……](https://myepilepsystory.org/justice/) - The past few days have been hard as I reflect on the tragic loss in Newtown, Ct. I have held my three children closer these past few days. When Hannah Kate was getting out of the car at school this morning, I kissed her one extra time before she ran off to see her kindergarten - [Don't give up, the beginning is always the hardest......](https://myepilepsystory.org/dont-give-up-the-beginning-is-always-the-hardest/) - This past week has been extremely busy as I try to prepare things to head to Baltimore, Maryland for the annual American Epilepsy Society meeting in December.  Our Facebook page for My Epilepsy Story is moving with lots of stories being added daily.  As I read them it makes my heart break to see what - [Fresh Start....](https://myepilepsystory.org/fresh-start/) - Well these past few weeks have been extremely full.....A close friend died and left behind his amazing wife and two beautiful children.I will begin to go back to the gym as the person who was "not so nice" to Samuel is no longer working there.  I sit and ponder about when is the right time - [Meaning of LOVE......](https://myepilepsystory.org/meaning-of-love/) - I decided to look up the definition of "love" today.....1. a profoundly tender, passionate affection for another person.2. a feeling of warm personal attachment or deep affection, as a parent, child, or friend.3. a person toward who love is felt; beloved person; sweetheart.4. used in direct address as a term of endearment, affection......Love is a - [ANSWERS..................](https://myepilepsystory.org/answers/) - Hold on and be patient!  The answers are not always right in front of us......We live in a right now day and age.  We want everything instantly!  We are always wanting the newest treatment, television, cell phones, iPad, iPod, computer,etc...  What every happened with the good old stuff?  How many still visit the actual library - [Missed Opportunities](https://myepilepsystory.org/missed-opportunities/) - I sit here in Nashville on this rainy day to share with you some of my thoughts that have been circling around in my mind. A few weeks ago I went away to my place where I like to go to escape, Sewanee, TN. I must admit, this is the place where I can breathe - [Keep Walking](https://myepilepsystory.org/keep-walking/) - "The world is looking back on a year that was, but what matters is what's in front of you. KEEP WALKING." I read this quote in The New York Times yesterday and pondered it for a bit. We all have our times of looking at the past year and wondering what could have been or - [Strength, Courage and Tears...](https://myepilepsystory.org/strength-courage-and-tears/) - Over the last few years people have been saying over and over to me, "Brandy you are so strong!" "We don't see how you do everything that you are doing." "How do you keep everything together?" These are just a few of the things that have been said to me as I have navigated on - [Upcoming Grand Rounds](https://myepilepsystory.org/upcoming-grand-rounds/) - As part of our educational program at My Epilepsy Story, we are educating the medical community about the patient perspective of epilepsy. In accomplishing this integral part of our educational approach, we are making Grand Rounds presentations to various hospitals and medical sites throughout the world. Grand Rounds are an important teaching tool and ritual - [Relationships....](https://myepilepsystory.org/relationships/) - Over the last few years I have focused on others quite a bit. I have had friends and my board members constantly reminding me to slow down, breathe, and focus a bit on myself. After my recent trip to Sewanee, I was reminded of how short life is. As I said in my last blog - [Mother's Day 2014](https://myepilepsystory.org/mothers-day-2014/) - As we approach Mother's Day this Sunday, I have been pondering what I should write for this blog post. In fact, I have rewritten this post several times only to tell myself that I needed to scrap what I had written and start again…… Being a mother is not easy. I became a mother 10 - [Amor Vincit Omnia](https://myepilepsystory.org/amor-vincit-omnia/) - "Amor Vincit Omnia" in latin means Love Conquers All….. In my life, love has conquered all. On July 6, 2014 I married the love of my life. Our love story is one of trials, triumphs and heartaches. Rob and I met several years ago by chance when I went to visit a school for children - [Can You Help Us Make A Difference?](https://myepilepsystory.org/can-you-help-us-make-a-difference/) - The past few months have been so busy. School has started for the children, and my husband is back to work nonstop as the Headmaster at the school where Samuel attends. Fall is rapidly approaching, and I have been busy with many things for the organization. One of my friends just had a precious baby - [Are You A Force To Be Reckoned With?](https://myepilepsystory.org/are-you-a-force-to-be-reckoned-with/) - Today is a beautiful Fall day here in Nashville. As, the leaves are beginning to change and my windows are open so that I can feel the beautiful Fall winds start to blow. I am pondering what will change for epilepsy just as the season is changing. As I sit here and think about how - [Struggle](https://myepilepsystory.org/struggle/) - Fall has set in and winter is approaching quickly…. I have not written in quite some time. I have been asked, "When are you going to write again? I am waiting to see your next update." I have sat and pondered on what to write about. November is Epilepsy Awareness Month and there are so - [The Wall Street Journal](https://myepilepsystory.org/the-wall-street-journal/) - We have EXCITING news to announce…. We were featured in The Wall Street Journal this week. Dr. David Loring's PCORI Funded project, COPE, that follows children that are newly diagnosed with epilepsy was highlighted. This is so important to bring awareness to Patient Centered Research. Make sure you read the article and watch our live - [Memories in the Making](https://myepilepsystory.org/memories-in-the-making/) - As I sit here thinking of 2015 and all that has happened this year, I am tearful. This year has been filled with many great memories. I am blessed to have gotten to know so many other women and girls living with epilepsy. As I listen to their stories my heart breaks and rejoices with - [Reasons for Giving Thanks in the Midst of Epilepsy](https://myepilepsystory.org/thanksgiving/) - On this Thanksgiving Holiday, as the Education Coordinator for My Epilepsy Story (MES), I want to reflect on the many things that I am truly thankful for this holiday season . As well as, share my feelings as a husband of a woman living with epilepsy. First of all, I am Thankful for my faith - [Exploring What Care a Pharmacist Can Provide for Women with Epilepsy](https://myepilepsystory.org/pharmacist/) - Most women with epilepsy take antiepileptic drugs for a substantial portion of their life. This chronic therapy creates an opportunity for pharmacists to play a significant role in the care of women with epilepsy. For this reason and the fact that pharmacists remain one of the most accessible and trusted healthcare professionals, this brief - [Holiday Event Planning](https://myepilepsystory.org/event-planning/) - At My Epilepsy Story,  we love to share with you what other Women With Epilepsy are doing in their lives while managing their epilepsy.  I want to introduce you to Ashley Gelfound and let you see what wonderful things she is doing with her life.  Thank you Ashley for sharing your talents with us!  - [Beauty is Right in Front of You](https://myepilepsystory.org/beauty-tips/) - As we head into the coldest months of the year we all need a pick me up to make us feel better especially after the hustle and bustle of the holiday season.  Women face self-esteem issues and women with epilepsy are not excluded from these feelings.  We are all trying to make ourselves fit this - [Harper's Story](https://myepilepsystory.org/harpers-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Harper writes: [image title="Harper's Story" align="left" size="small"]https://myepilepsystory.org/wp-content/uploads/2012/10/Harper-Story.jpg[/image]My name is Harper Elle Howard and I was born April 12, 2010. My family often times calls me Harperpotamus. I am well cared - [I wish things were the way they used to be.](https://myepilepsystory.org/i-wish-things-were-the-way-they-used-to-be/) - Someone recently said to me that they “wished things would go back to the way it used to beâ€. This made me ponder on the things of my past….I have thought of the way things were in my past and often wondered if I ever wanted that old life or way of living…. I think - [The Road Not Taken](https://myepilepsystory.org/the-road-not-taken/) - Tonight as I sit here thinking of this past week and the week ahead I am filled with mixed emotions. My long weekend started in my home state of Louisiana. As I boarded the plane in Nashville, I thought of the last time I made the trip home. My last trip home was to see - [Our New Journey](https://myepilepsystory.org/our-new-journey/) - As we begin to prepare for the Thanksgiving season I wanted to share with everyone some things that are on the horizon and that I am thankful for. Our story has been a hard one to share and live; yet it needs to be shared. I have often struggled with how much do I share - [Looking Forward with Dr. Jim McAuley of Ohio State University](https://myepilepsystory.org/looking-forward-with-dr-jim-mcauley-of-ohio-state-university/) - Hello and let me introduce myself. My name is Dr. Jim McAuley and I am the Clinical Pharmacist in our Multidisciplinary Epilepsy Clinic and a consultant to our High-Risk OB clinic at Ohio State University. Looking forward... At this time of year especially, I like to look forward. For example, as I prepare to travel - [Is it REALLY worth the pain and heartache?](https://myepilepsystory.org/is-it-really-worth-the-pain-and-heartache/) - Adversity is the mother of progress. ~Mahatma Gandhi In life we face challenges that can be EXTREMELY hard. We have to sit down and decide if it is worth the pain and heartache to have the end result. I was recently asked to attend a meeting at a school for a student that has epilepsy. - [Tiffany's Story](https://myepilepsystory.org/tiffanys-story/) - My name is Tiffany.  I've lived with epilepsy for over 10 years, having survived a seizure-car crash.  I'd been married for only four months at this time. After diagnosis, I had to stop working, my husband and I lost our home, and had to begin our lives all over again.  Inspired by this tragedy, we - [Staying SAFE during the Coronavirus Outbreak](https://myepilepsystory.org/staying-safe-during-the-coronavirus-outbreak/) - Preparing for the Coronavirus can be stressful so we have compiled a list of things to help you during this time: Wash your hands for at least 20 seconds with soap and water especially after using the restroom, before a meal, and after sneezing, blowing your nose or coughing. Stay home if you are sick - [Fiscally Surviving Covid-19](https://myepilepsystory.org/fiscally-surviving-covid-19/) - CARES ACT (2020) + Unemployment Benefits Millions of Americans have been either laid off or furloughed, and are thus without a reliable source of income. The global Covid-19 pandemic has changed the rules of traditional unemployment by expanding who is eligible for benefits. Many people like gig workers or self-employed workers are traditionally not eligible - [Nurse Rachel Ward-Mitchell's Story](https://myepilepsystory.org/nurse-rachel-ward-mitchells-story/) - I started working with people with epilepsy without any intention to make it my specialty. I took a position as a nurse at the University of Kentucky on a busy medical surgical unit which also housed our epilepsy monitoring unit, where I stayed for 7 years. At the end of those seven years, I was - [The "Doctor Is In" but Should I Go?](https://myepilepsystory.org/the-doctor-is-in-but-should-i-go/) - The COVID-19 pandemic has brought unprecedented changes in how patients can receive medical care and access their physicians. Although telemedicine has been around for several years, use has been limited, mostly due to restrictions in insurance coverage, location where telemedicine could be performed and the need for ‘HIPAA compliant’ platforms. However, beginning in March, both - [Homeschool vs. Traditional School during COVID-19](https://myepilepsystory.org/homeschool-vs-traditional-school-during-covid-19/) - COVID-19 has ushered in a new normal in many aspects of our lives. Along with the drastic changes in our basic social behavior and habits there are many new questions that need to be addressed. As we head into another school year the prospects of determining whether to send your children back to school, have - [Epilepsy Caregiver Support Guide](https://myepilepsystory.org/epilepsy-caregiver-support-guide/) - “I will never forget the first time I saw my wife have a seizure. I felt pure panic, fear, confusion, uncertainty, and most of all helplessness. My knowledge of epilepsy came from what I’d seen on TV and movies. After a multitude of tests, hospital and doctors’ visits we received the diagnosis of epilepsy. And - [IT'S NOT JUST SEIZURESTM: Quality of Life Survey](https://myepilepsystory.org/seizure-tracker-injs-survey/) - Seizure Tracker IT'S NOT JUST SEIZURESTM (INJS) Initiative Epilepsy is so much more than just a medical diagnosis. Quality of life can often be overlooked and the impact of living with seizures on self and family is limitedly understood. To better improve on this aspect of epilepsy care, My Epilepsy Story is partnering with Seizure Tracker to promote a - [Thanksgiving 2020: Safer At Home](https://myepilepsystory.org/thanksgiving-2020-safer-at-home/) - Thanksgiving 2020 2020 has been a long, eventful year with the Covid-19 pandemic. Many will be tempted to reconnect with family and friends across the country or your home state for Thanksgiving 2020. However, with Covid cases and deaths sharply rising, it is safer to stay at home. Many underestimate or misunderstand Covid and what - [Ohio State University & MES Partnership](https://myepilepsystory.org/ohio-state-university-mes-partnership/) - We are excited to announce our partnership with The Ohio State University, Wexner Medical Center to EMPOWER women and girls living with epilepsy in 2021.Their center includes physicians, whom are board certified in epilepsy, clinical neurophysiology, or both, full-time EEG technologists, a dedicated epilepsy nurse practitioner, and a pharmacist specializing in epilepsy drug treatments.Ohio State - [Making Sense of 2020](https://myepilepsystory.org/making-sense-of-2020/) - As I sit here wondering  what to write my heart aches for so many this year all across the world.... The heartache, pain, and loss can be so overwhelming to comprehend.  Every year we think this will be the year to change or bring greatness into our lives.  As I reflect back on 2020 for My - [Meet Betty, An Ohio State Employee Living with Epilepsy](https://myepilepsystory.org/meet-betty-an-ohio-state-employee-living-with-epilepsy/) - My Epilepsy Story (MES) is partnering with The Ohio State University, Wexner Medical Center (OSU) to EMPOWER Women and Girls Living with Epilepsy this year.  OSU is contributing to some of our Transportation Program and Educational materials this year.  Today we are spotlighting Betty, an OSU employee and woman living with epilepsy, that is in our - [Dr. Marika Antimisiaris's Story](https://myepilepsystory.org/dr-marika-antimisiariss-story/) - Meet Marika, an Ohio State Neurology Resident Tell us a bit about yourself. I moved around a lot growing up – lived in Oregon, California, New Jersey, Hawaii, and Kentucky – but sort of consider Louisville, KY to be my hometown as that’s where I went to college and medical school. My husband is - [Dr. Whitney Woodhall's Story](https://myepilepsystory.org/whitney-woodhall-story/) - Meet Dr. Whitney Woodhall, a Nationwide Children's Resident 1. Tell Us About Yourself. I am originally from western MI, and came to Ohio for my pediatric neurology residency at Nationwide Children’s Hospital. 2. Why did you go into medicine and specifically neurology? I love the intersection between science and society. I find the brain fascinating, and - [WWE C.A.R.E. Series: Featuring Dr. Anup Patel](https://myepilepsystory.org/anup-patel-peds-to-adult-neuro/) - My Epilepsy Story PRESENTS Dr. Anup Patel: WWE C.A.R.E. Series Two years ago, My Epilepsy Story interviewed Dr. Anup Patel, Section Chief of Pediatric Neurology at Nationwide Children’s Hospital, where he explained the importance of having a transition plan for teens with epilepsy. Now, this upcoming May 20th, Dr. Anup Patel will be the Keynote Speaker for MES’s WWE - [Shelter From the Storm](https://myepilepsystory.org/shelter-from-the-storm/) - Blue Raider Contracting Epilepsy is often described as a lightening storm in the brain. For women and girls living with epilepsy, seizures are not the only thing that impact their lives. Having a roof over their heads and financial security impacts their day to day lives as well. Finding a place to live that is - [Heavy with All: My Journey to Cry, Fight, and Rise](https://myepilepsystory.org/heavy-with-all-my-journey-to-cry-fight-and-rise/) - It’s 2 am, and I am lying here as my heart is heavy with all that is going on. The weight has been unbearable in the last few months. My heart feels as though it has had a ton of bricks on it... - [Women With Epilepsy Day '24](https://myepilepsystory.org/women-with-epilepsy-day-24/) - National Women With Epilepsy Day: Elevating awareness and supporting research for epilepsy, especially in women and girls, is a collective responsibility. - [Gifts From the Road That No One Wants to Travel](https://myepilepsystory.org/gifts-from-the-road-that-no-one-wants-to-travel/) - As I begin to look towards what lies ahead, I am grateful for the darkest of days that I have experienced. The dark days taught me to look deeper inside and sit still to feel every pain and emotion. To learn to sit in the unknown and be patient. Patient and quiet like I have never been - [International Women with Epilepsy Day](https://myepilepsystory.org/international-women-with-epilepsy-day/) - March 1st is the Annual International Women with Epilepsy Day (IWWED)! Today is International Women with Epilepsy Day! This has been a vision of mine for several years to have a day devoted to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the World and it is so exciting to see the - [Dr. Sandra Helmers Memorial Scholarship](https://myepilepsystory.org/dr-sandra-helmers-memorial-scholarship/) - I wanted to unveil this exciting news during our annual American Epilepsy Society (AES) meeting! I am writing to share with you about our newest award from the My Epilepsy Story (MES) organization, the Dr. Sandra Helmers Memorial Scholarship for young women living with epilepsy that want to go to college or trade school. Dr. Helmers was - [Dear Doctor](https://myepilepsystory.org/dear-doctor/) - Dear Doctor, As I sit here to write you this note there are so many things to be said... We were supposed to be on the same team, fighting for my healthcare yet the "Healthcare System" has stolen you from my team. - [WWE C.A.R.E. Seminar Series Event](https://myepilepsystory.org/wwe-c-a-r-e-seminar-series-event/) - WWE C.A.R.E. Seminar Series Event Neurologic Co-morbidities in Women with Epilepsy My Epilepsy Story invites all healthcare professionals and students to REGISTER TODAY for the next installment in the W.E. C.A.R.E. Seminar Series! Dr. Mary A O’Neal and Dr. P. Emanuela Voinescu of Brigham and Women’s Hospital will be discussing the neurological co-morbidities in women - [Vol State Student Warns of the Impact of Epilepsy Medication During Pregnancy](https://myepilepsystory.org/vol-state-student-warns-of-the-impact-of-epilepsy-medication-during-pregnancy/) - The following is a press release from Volunteer State Community College about an upcoming speaking engagement with Brandy McFadden and My Epilepsy Story. Brandy McFadden could see that her son Samuel was having problems. He wasn’t developing verbal skills and social skills as one might expect. That concern began her journey down a medical investigation - [MES003 - Brandy Interviews Dr. Loring](https://myepilepsystory.org/mes003-brandy-interviews-dr-loring/) - Brandy McFadden interviews Dr. Loring. Did you enjoy this episode? Please leave us a comment below and a positive review on iTunes. iTunes Link - [Epilepsy Facts](https://myepilepsystory.org/epilepsy-facts/) - 1 in 10 people will have a seizure. 1 in 26 people will develop epilepsy. About 50,000 people die each year from epilepsy. This is one of the things that people with epilepsy want the world to know. As I said in my last blog post, we asked the question on our Facebook page, "What - [Atlanta and the CDC](https://myepilepsystory.org/atlanta-and-the-cdc/) - Well I have arrived home from Atlanta and had a couple of days to recoup from my trip. For those of you that didn't know, I went to Atlanta to meet with some people at the CDC and to have a meeting on the MONEAD Research Study that is about to begin. This was an - [Hello November......](https://myepilepsystory.org/hello-november/) - Well November is Epilepsy Awareness Month. As I sit here on this Sunday afternoon preparing for my trip to Atlanta to meet with some doctors at Emory, I am thinking of all the people that live with epilepsy. Not only am I thinking of the ones who live with epilepsy but I am also thinking - [Kimford J. Meador Research in Women with Epilepsy Award](https://myepilepsystory.org/kimford-j-meador-research-women-epilepsy-award/) - In life, there are few people that are true world changers. I believe that the medical community has the opportunity to be full of world changers if they stop, pause, and remember the reason they chose the medical field as their career. A few chose this field because they wanted to make money however, I - [Join MES for Epilepsy Education Day at UK Healthcare on June 8th](https://myepilepsystory.org/join-mes-for-epilepsy-education-day-at-uk-healthcare-on-june-8th/) - We are excited to announce that we will be at UK Healthcare for their annual Epilepsy Education Day! Please join us and hear our Executive Director/Founder Brandy McFadden as the keynote speaker. Brandy will be sharing about living with epilepsy and learning how to THRIVE while on this journey of living with epilepsy. We are - [Primary Care Physicians and Neurologist](https://myepilepsystory.org/primary-care-physicians-and-neurologist/) - Primary Care Physicians (PCPS) and Neurologists should be working hand and hand to provide quality healthcare to patients across the country. We should be working together within our residency programs to facilitate this cultural change while our doctors are still in training. When we educate the primary care physician on the American Academy of Neurology - [Collaboration is Key](https://myepilepsystory.org/collaboration-is-key/) - Collaboration is Key Today is our 3rd Annual International Women With Epilepsy Day! WOW, this has been an AMAZING journey to get us here! As I sit here thinking about what brought us to this day, I think of all the people that have worked together to change the lives of millions of women and - [Dr. McAuley's Story](https://myepilepsystory.org/dr-mcauleys-story/) - In my crazy busy weekly schedule, I look forward to Wednesday mornings. I enthusiastically anticipate this 4-hour block of time as I know I will be working in our outpatient epilepsy clinic. I am so blessed to have this opportunity to work not only with my favorite Nurse Practitioner (Lucretia Long), but also with many - [Goodbye Horrible, Hello Wonderful.....](https://myepilepsystory.org/goodbye-horrible-hello-wonderful/) - Well as I sit and reflect on 2012, I am full of emotions….I have experienced the best and worst times……I found my calling and that is to share about living with epilepsy to help others and change the world. There was a time where I felt that "Epilepsy" had stolen my dreams and my future - [If You Were Brave......](https://myepilepsystory.org/if-you-were-brave/) - Recently I had written about Janie Wells , an author who has written the book "Payment for Passage". I have read and reread this book many times over the past few months. Janie shares her story of losing her daughter, Joann, after being attacked and murdered. This book is a MUST read for everyone! When - [Carolina's Story](https://myepilepsystory.org/carolinas-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Eric writes: On August 22, 2011 Carolina Barcelos Carneiro de Oliveira Miller passed away as a result of Sudden Unexpected Death in Epilepsy (SUDEP.) She was just 25 years old and she - [Which Path Do I Take?](https://myepilepsystory.org/which-path-do-i-take/) - Which path do I take? Have you ever been in a situation where you are trying to decide which way to go? Do I take this job? Do I move? Do I stay in this relationship? Do I try this new medication? Do I switch doctors? Do I make the decision to have half of - [Anchor......](https://myepilepsystory.org/anchor/) - Today I spent the day working on a brochure for the My Epilepsy Story. I was excited and frustrated all at the same time. I must say that I am thankful for my WONDERFUL web designer, Andy McClung of AM Perspectives (www.amperspectives.com), who gave me a great idea about getting the brochure done quickly. Thank - [Scarlett's Story](https://myepilepsystory.org/scarletts-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: Scarlett was born June 19th, 2010. The Doctors said she was born at 37 weeks, though we disagree with them. She didn't have any of the normal newborn reflexes. She - [Exciting News!](https://myepilepsystory.org/exciting-news/) - Tonight I finally decided to sit down and write about the EXCITING things that are going on with the organization. We just filed our paperwork for the State of Tennessee to be a nonprofit here! We should receive our paperwork within the next two weeks and then on to the IRS!!!!!! I had a wonderful - [Sara's Story](https://myepilepsystory.org/saras-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Sara's Story: Hello, My name is Sara Gustafson and I am 31 years old. I was diagnosed with partial-complex epilepsy on September 15, 2009, at age 29. At times I think of - [What Mountain Are You Climbing?](https://myepilepsystory.org/what-mountain-are-you-climbing/) - In life, we have to make choices that are not easy. We can choose to sit in our "place of sorrow" or choose to climb out of it. Not that climbing out is easy, but sitting in this "place of sorrow" is not easy either. One of the definitions of the word climb is "to - [We need to EDUCATE and ADVOCATE!](https://myepilepsystory.org/we-need-to-educate-and-advocate/) - As I reflect on my weekend this evening I have mixed emotions. I took my daughter, Hannah Kate, to a Vanderbilt basketball game with a friend on Saturday afternoon. We had so much fun watching the game and watching her soak up all the excitement! She yelled, cheered, ate popcorn, and then cheered again. When - [Epilepsy Fears](https://myepilepsystory.org/epilepsy-fears/) - About two weeks ago on our Facebook page, I asked "What is the one thing you wished people knew about epilepsy?". I received a lot of great responses to this question. I have decided that we will share some of these answers the next few weeks as well how to address the answers that were - [Home Exercise 101](https://myepilepsystory.org/home-exercise-101/) - Hello friends! I hope 2018 is treating you to lots of health and happiness so far. In my last post I discussed the importance of exercise for everyone, but especially for those of you with epilepsy ("regular exercise, even as little as walking 2 times per week, provides health benefits including reduction of seizures"). I - [The My Epilepsy Story Podcast is coming!](https://myepilepsystory.org/the-my-epilepsy-story-podcast-is-coming/) - Fun things are happening at My Epilepsy Story, and today I wanted to tell you about a new epilepsy education resource we will be launching in May (possibly sooner). The My Epilepsy Story podcast! I am very excited about this podcast. In April, we are finalizing our episode guide and practicing recording in different environments. - [Grace's Story](https://myepilepsystory.org/graces-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Grace's Story: In June 2008, my 10-year old daughter, Grace started to experience epileptic seizures and after months of testing at several hospitals her condition was confirmed as an extremely rare epilepsy - [Spring Has Arrived](https://myepilepsystory.org/spring-has-arrived/) - Spring is here, and I love it! As I sit here this evening, I am reflecting on Spring and the beauty that is beginning to bloom. I went for a hike last week with a friend over spring break. As we were walking, we could see so many things because the trees were bare. We - [The Future Belongs to You](https://myepilepsystory.org/the-future-belongs-to-you/) - “The future belongs to those who believe in the beauty of their dreams.” ~Eleanor Roosevelt As we begin the graduation season, I am reflecting on what these young graduates will encounter as they enter the world. The path that is in front of them is full of choices that will lead to different roads. - [New Research on Prescribing Medication in Pregnant Women with Epilepsy](https://myepilepsystory.org/epilepsy-and-pregnancy/) - Background – Why? In the early 2000’s, results from several antiepileptic drug (AED) pregnancy registries revealed that valproate the highest risks of AEDs for congenital malformations. In addition around the same time, researchers from the NIH NEAD study examined the short and long-term outcomes in babies exposed to four different AEDs during pregnancy. From - [Virginia Mei's Journey](https://myepilepsystory.org/virginiamei/) - My husband and I recently adopted a precious little girl, Virginia Mei, from China. Virginia Mei’s adoption was a special needs adoption. We chose Virginia Mei knowing she had hydrocephalus- fluid on the brain. In China, we were informed from caregivers in her orphanage that she had a shunt in her head to help relieve the - [Fresh Fridays! New Summer Recipe Series](https://myepilepsystory.org/fresh-fridays-new-summer-recipe-series/) - Hello friends! Jodi Suglio, MES Health & Wellness director here. As promised in my lil Facebook teaser post earlier this week (if you don’t follow us on our socials, do it!), I present “Fresh Fridays!”, a weekly healthy recipe share from some of my favorite chefs, dietitians, & go-to nutrition bloggers. I will be specifically - [It's Back To School Time](https://myepilepsystory.org/its-back-to-school-time/) - BACK to SCHOOL TIPS from MES! Yes, Folks, it’s that time of year again…so here are 10 tips to help prepare your child and yourself for the upcoming school year! Set your kids sleep schedule back ‘to school time’ two weeks before the first day so that they can get into the school - [School Closings due to COVID-19](https://myepilepsystory.org/school-closings-due-to-covid-19/) - We are in uncertain times.... Coronavirus(COVID-19) is spreading, schools are closing and many jobs are transitioning to working from home. We need to remember that we will get through this if we continue to work together during this global pandemic. My Epilepsy Story (MES) is committed to helping you as you navigate the new normal - [Pregnancy and Epilepsy](https://myepilepsystory.org/pregnancy-and-epilepsy-2/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Kimford J. Meador, Dr. Meador is a Neurologist and Professor of Neurology in Palo Alto, CA at Stanford University School of Medicine in the Department of Neurology & Neurological Sciences and currently sees patients at Stanford Neuroscience Health Center. - [Heartache and Joy](https://myepilepsystory.org/heartache-and-joy/) - Well the weekend is ending and a new week is ahead of us. As I reflect on all the things that need to be done I am tired yet I am very excited about the possibilities that are coming my way. This weekend was wonderful to be able to spend it with my family. My - [AUTISM and EPILEPSY](https://myepilepsystory.org/autism-and-epilepsy/) - I sit here this evening beginning to blog, my mind is full of words, yet my soul is full of so many emotions that I don't know which one to begin with…..I look at my sweet little boy that wants so much to please me and as he tries to communicate, he cannot express himself - [I See Your Eyes Above Your Mask](https://myepilepsystory.org/i-see-your-eyes-above-your-mask/) - I see your eyes above the mask you are wearing each day while you are at work, at the grocery store, on the bus or walking on the street. I see how tired you are of the endless fighting on social media, during this election cycle, in our government, in our places of work, with - [Testing....](https://myepilepsystory.org/testing/) - Well we arrived in Boston on Friday evening. I am so fortunate to have my best friend accompany me with her son on this trip. It has been great to see Samuel bond with another child and learn from his example. As I sit here this evening processing the events of the testing, I am - [And so it begins.....](https://myepilepsystory.org/and-so-it-begins/) - We are about to enter November which is Epilepsy Awareness Month. As things for the organization have really begun to go, it is sink or swim now......Facebook has really taken off with people sharing my personal story and My Epilepsy Story. As people share the photo of Samuel and I, with the quote "Epilepsy is - [Reflection.....](https://myepilepsystory.org/reflection/) - Tonight as reflect on the things of the past week my heart is filled with joy and sadness....Joy as Samuel climbed a tree and sadness as I sat with parents in a support group for children that have epilepsy. Some of these children will never climb a tree, walk, or speak. I began attending this - [Decisions.......](https://myepilepsystory.org/decisions/) - In life we make choices.....some turn out to be the worst decision and others turn out to be the best thing that has ever happened to us. As I sit back and look at decisions that I have made in my life, I sometimes wonder, was that the best decision....We do not get to have - [Limbo....](https://myepilepsystory.org/limbo/) - Don't you just hate being in limbo? What does that actually mean, you might ask.....well one definition is prolonged uncertainty. I hate the uncertainty of things! When you think you have life figured out here comes the limbo part....UGH!! Is this teaching us to work on things in ourselves so that we may leave this - [When Will This Storm End?](https://myepilepsystory.org/when-will-this-storm-end/) - When will this storm end....This past week has been a horrible storm for our family. I watch myself walk to the left and there is a storm. I move to the right and there is another storm. I try to move forward on the straight path and there is a huge storm. I try to - [LIVING PROOF........](https://myepilepsystory.org/living-proof/) - Well I had to take this last month to process the things that have happened since my trip to Baltimore.....As I went to the American Epilepsy Society Annual Meeting I was prepared to soak up all I could on epilepsy research. This was exciting to be able hear from the experts in the field of - [The Countdown begins....](https://myepilepsystory.org/the-countdown-begins/) - Well the countdown has begun in our home.....The countdown for the children is the holiday season and for me it is my trip to the American Epilepsy Society Annual Meeting. I have never attended the meeting before but I am eager to go this year.The Parker home has had many changes this year... we have - [The Epilepsy Transition Clinic](https://myepilepsystory.org/epilepsy-transition-clinic/) - The Epilepsy Transition Clinic Sponsored by: Ohio State Wexner Medical Center The Ohio State Wexner Medical Center has partnered with Nationwide Children’s Hospital to create the Epilepsy Transition Clinic. This project launched in May of 2019 to create a smooth transition between pediatric neurology into adult neurology to ensure that there is no gap in - [Dr. Margaret Beigel's Story](https://myepilepsystory.org/dr-margaret-beigels-story/) - Meet Dr. Margaret Beigel, an Ohio State University Neurology Resident Tell us a bit about yourself. Hey everyone, I am Margaret - a current PGY3 neurology resident at The Ohio State University. I am a Ohio native and grew up in a big family with 7 brothers and sisters. My childhood was filled with - [The Role of the Pharmacist and Epilepsy](https://myepilepsystory.org/the-role-of-the-pharmacist-and-epilepsy/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. James W. McAuley. Dr. McAuley is Associate Dean of Academic Affairs, Professor of Pharmacy Practice, Neurology and Pharmacology at The Ohio State University. Dr. McAuley is very active in the Comprehensive Epilepsy Program at OSU Wexner Medical Center, where he interacts - [2020 Kimford J. Meador Research in Women with Epilepsy Award](https://myepilepsystory.org/2020-kimford-j-meador-research-in-women-with-epilepsy-award/) - The Kimford J. Meador Research in Women with Epilepsy Award is awarded to provide support for ealy career clinician scientists who have made significant contributions to understanding and better care for women with epilepsy. This year’s recipient is Dr. Sally Mathias. Her research was on Efficacy, Safety and Need Change of Zonisamide During Pregnancy in Women - [Dr. Sarita Maturu's Story](https://myepilepsystory.org/dr-sarita-maturus-story/) - I became interested in epilepsy very soon after I started my Neurology residency. The intricacies of the disease, the ability to make a meaningful difference in terms of treatment and quality of life, and the wonderful patients that I get to see that have been diagnosed with this chronic condition have made me want to work - [Breastfeeding and Epilepsy](https://myepilepsystory.org/breastfeeding-and-epilepsy/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Gholam Motamedi, Professor of Neurology and Director of the Comprehensive Epilepsy Center at Georgetown University Hospital in Washington, D.C. on: "Breastfeeding and Epilepsy" https://youtu.be/RkahQnFr_Ps Dr. Gholam Motamedi is a Professor of Neurology at Georgetown University Hospital. He - [Transitioning from a Pediatric Neurologist to an Adult Neurologist](https://myepilepsystory.org/pediatric-to-adult-neurology/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Anup Patel, Associate Professor of Neurology and Pediatrics, at Nationwide Children's Hospital and The Ohio State University Medical Center in Columbus, Ohio on: "Transitioning from a Pediatric Neurologist to an Adult Neurologist" https://youtu.be/cVjH3vqlJ-s Anup Patel, M.D. is board - [Fertility and Epilepsy](https://myepilepsystory.org/fertility-and-epilepsy/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Page B. Pennell, Professor of Neurology, at Harvard Medical School and Director of Research at Brigham and Women's Hospital in Boston on: "Fertility and Epilepsy" https://www.youtube.com/watch?v=gjDzNbMy0bk Page B. Pennell, MD is a Professor of Neurology at Harvard - [Managing your Medication during Pregnancy](https://myepilepsystory.org/managing-your-medication-during-pregnancy/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Torbjörn Tomson, Department of Neurology, at Karolinska University Hospital in Stockholm, Sweden on: "Managing Your Medication During Pregnancy" https://www.youtube.com/watch?v=wmhuI7w73ck Torbjörn Tomson is Professor of Neurology and Epileptology at the Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden and head of the Epilepsy - [Dr. Deepti Zutshi's Story](https://myepilepsystory.org/dr-deepti-zutshis-story/) - Taking care of others has always been strong personality traits instilled in me by watching my mother do the same for her family. Transferring that quality to becoming a doctor and providing care for others is due to the nurturing of my father. My journey into medicine started young and I cannot imagine any other - [Managing Your Epilepsy & Tracking Your Seizures](https://myepilepsystory.org/managing-your-epilepsy-tracking-your-seizures/) - On our series to EMPOWER Women and Girls Living with Epilepsy, today we hear from Robert Moss, Co-Founder of SeizureTracker.com on: Managing your Epilepsy & Tracking your Seizures https://www.youtube.com/watch?v=CtpB_oeHRU0 Robert Moss knows first hand how it feels to have a child with Tuberous Sclerosis Complex and Epilepsy. It was the helplessness he felt in his own - [Maci's Story](https://myepilepsystory.org/macis-story/) - With November being "National Epilepsy Awareness Month" I thought now would be an appropriate time to put something out there about the invisible disability that I have lived with for about 10 years. Until earlier this year when Disney's young adult actor, Cameron Boyce, passed away in his sleep from a seizure, epilepsy hasn't gotten - [Christina's Story](https://myepilepsystory.org/christinas-story/) - When I was in 8th grade I had my first seizure. After not being able to see and then losing all motor skills, my feet were shaking and I was internally yelling at myself to stop this nonsense and not cause a scene. I then woke up on the floor surrounded by my mom and paramedics. I - [Meet our MES Ambassadors and Join With Us](https://myepilepsystory.org/meet-our-mes-ambassadors-and-join-with-us/) - California My name is Ashley Garcia. I am a 23 year old student from CA. I was diagnosed with epilepsy at age 13, and have been seizure free for 4 years. I became involved with My Epilepsy Story because I believe it plays a vital role in helping women realize they are not alone - [MES Ambassador Program](https://myepilepsystory.org/mes-ambassador-program/) - MES Ambassador Program My Epilepsy Story (MES) is excited to announce we are accepting applications for our Ambassador Program. This program will have MES Ambassadors from all across the country that join with us to EMPOWER women and girls living with epilepsy and to represent My Epilepsy Story. To apply for our ambassador program you will need to be a: - [Sara's Story](https://myepilepsystory.org/saras-story-2/) - I was 18-months-old when I had my first seizure. It was during a very high fever, so considered a febrile seizure, but it was a seizure nonetheless. My father was a doctor who had been a front line medic in World World II, but, the story goes, he completely lost his cool when I had - [Self-Love](https://myepilepsystory.org/self-love/) - Self-Love is the regard for one's own well-being and happiness (chiefly considered as a desirable rather than narcissistic characteristic). Self-love is not a bad thing when we do it correctly... In life, many women and girls do not love themselves whether it is from the pressures of society or from the pain of our pasts. We - [Coming Soon: International Women with Epilepsy Day](https://myepilepsystory.org/coming-soon-international-women-with-epilepsy-day/) - Coming Soon!! We are excited to announce that March 1st is our first annual International Women with Epilepsy Day! This day is to EMPOWER Women and Girls Living with Epilepsy in EVERY corner of the world. At My Epilepsy Story (MES), we are going to 'Bridge the Gap' by Advocating, Researching and Educating for these young girls - [Epilepsy & Stress](https://myepilepsystory.org/epilepsy-stress/) - Today on our EMPOWERING Women and Girls Living with Epilepsy video series we hear from Dr. Michael Privitera from the Epilepsy Center at the University of Cincinnati Gardner Neuroscience Institute in Cincinnati, Ohio on : "Epilepsy & Stress" https://www.youtube.com/watch?time_continue=26&v=yXYiAS612r0 Dr. Michael Privitera is Professor of Neurology and Director of the Epilepsy Center at - [Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant](https://myepilepsystory.org/frontal-lobe-epilepsy-and-pregnancy/) - Women with Frontal Lobe Epilepsy Most Likely to Have More Seizures While Pregnant In a new finding, 53 percent of women with frontal lobe epilepsy, in which the seizures begin in the front of the brain, experience more frequent seizures during pregnancy, suggests a study that was presented at the American Epilepsy Society Annual - [THRIVE](https://myepilepsystory.org/thrive/) - At the beginning of each year my husband, James, chooses a word for our family to be our guidance and focus for that year. Each year our family waits to hear what he has chosen for our family word. I must say that the word we have each year is a constant reminder of the - [Reflecting on 2018](https://myepilepsystory.org/reflecting-on-2018/) - As I reflect on 2018 the word that comes to mind is Thankful. I am thankful for wishes... I am thankful for all that we are are accomplishing at My Epilepsy Story (MES). I am thankful for the amazing women and girls living with epilepsy that I have had the opportunity to meet this year. - [Exercise During the Holidays](https://myepilepsystory.org/exercise-during-the-holidays/) - Happy holidays friends! I hope this finds you well, I know it’s been awhile since I’ve last posted. I imagine, like me, you are diligently preparing for some amazing time with friends & family to celebrate this wonderful time of year. Cleaning, cooking, decorating, shopping, traffic, parties & school programs, traveling… things can get really - [Managing Epilepsy and a Baby in the NICU](https://myepilepsystory.org/epilepsy-and-nicu/) - Managing Epilepsy with a Baby in the NICU Last April 2017 my daughter, Zoey, came into this world a lot earlier than expected. She was born at 31 weeks, 5 days, weighing only 3 lbs. I remember several hours after her birth being wheeled up to the NICU to meet my daughter for the - [Surviving the Holidays after Losing Your Daughter to Epilepsy](https://myepilepsystory.org/surviving-the-holidays/) - My friend, Brandy with My Epilepsy Story, reached out to me and asked if I would write something that might help others like me, who have experienced the tragedy of loss. Something that would help them be able to get through the holidays with a little comfort in knowing they are not alone. Something that - [The Power of Exercise](https://myepilepsystory.org/the-power-of-exercise/) - My name is Mary, and I have intractable epilepsy. I was diagnosed with epilepsy when I was 14, and my seizures are complex partial with secondary generalization. My seizures have never been controlled, so I’ve had many surgeries in an attempt to identify the focal point and resect it. Within the last five years, I - [Please Join With Us](https://myepilepsystory.org/3518-2/) - During this holiday season there is a day called #GivingTuesday where everyone joins TOGETHER and gives back to nonprofit organizations. This year on Tuesday, November 27, 2018 is #GivingTuesday. Please join with us on #GivingTuesday and donate to Women and Girls Living with Epilepsy. My Epilepsy Story (MES) is "Bridging the Gap" by Advocating, Researching - [Depression and Epilepsy](https://myepilepsystory.org/depression-and-epilepsy/) - Depression and Epilepsy You may not know but depression and epilepsy can go hand in hand, so it is prudent to be aware of any potential triggers, such as loss of sunlight. As the days grow shorter it is important to be on guard against onset of seasonal symptoms. Here are a few things I’ve - [Does every woman living with epilepsy need a primary care doctor?](https://myepilepsystory.org/does-every-woman-living-with-epilepsy-need-a-primary-care-doctor/) - We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Richmond Akatue from Meharry Medical College in Nashville, Tennessee on: Does every women living with epilepsy need a primary care doctor? https://youtu.be/JPysvpCOeYU Dr. Richmond Akatue is an Associate Professor of Medicine. Dr. Akatue - [Finding a Doctor & Coordinating Your Care](https://myepilepsystory.org/finding-a-doctor-coordinating-your-care/) - We are launching a new video series to EMPOWER Women and Girls Living with Epilepsy. Today we hear from Dr. Gregory Mathews from Silver Springs, Maryland on: How to Find a Doctor & Coordinating Your Care https://youtu.be/NHHQCfIl1tI Dr. Mathews is a neurologist in Silver Spring, Maryland and he owns a practice specializing in the - [Educating the Medical Community with a New Video Series](https://myepilepsystory.org/educating-the-medical-community-with-a-new-video-series/) - We are launching new videos this month for patients and the medical community. We wanted to share with you one of our videos that will be used for educating physicians as well as the medical community as a whole. My Epilepsy Story (MES) believes that we need to educate the patient as well the medical - [CONGRATULATIONS Ladies! We did it!!!](https://myepilepsystory.org/congratulations-ladies-we-did-it/) - Women living with epilepsy CONGRATULATIONS most of us have been successful…. we have sent the message to our daughters that you keep secrets. We have taught them that it is okay to live in silence and shame. We have shown them by our actions that we do not tell others that we live with epilepsy - [Traveling with Epilepsy](https://myepilepsystory.org/traveling-with-epilepsy/) - The captain’s voice breaks through my efforts of ignoring my talkative seat mate, who is practically sitting in my lap. “Due to a severe thunderstorm and circling the airport for an hour waiting for a safe break to land, we are running low on fuel. We will divert to Greensboro, NC to refuel. Those with connecting - [Help! My Daughter was Diagnosed with Epilepsy..... I Need a Pediatrician](https://myepilepsystory.org/help-my-daughter-was-diagnosed-with-epilepsy-i-need-a-pediatrician/) - [title text="Ask An Expert: Dr. Mukundan"] Today Dr. Chetan R. Mukundan will answer a few questions from parents about finding a pediatrician to care for your daughter and her epilepsy. We want you to remember that we are working together as a team with the Pediatric Neurologist to care for your daughter. We are also - [I am just a teenage girl....Why do I have to have epilepsy?](https://myepilepsystory.org/i-am-just-a-teenage-girl-why-do-i-have-to-have-epilepsy/) - Why ME??? I know it just isn’t fair! You were just like all the other girls just last week… Then it happened… You had a seizure and now your life is completely different. Your parents are always checking on you and won’t give you any space. You don’t want anyone to know you have epilepsy. You - [What is Catamenial Epilepsy?](https://myepilepsystory.org/what-is-catamenial-epilepsy/) - Catamenial Epilepsy: What is it, and what can be done about it? Catamenial epilepsy is not a specific type of epilepsy or type of seizure. The term simply refers to a situation for women with epilepsy who are of reproductive age who have seizures in association with their menstrual cycle. Therefore, the term - [Celebrating the Little Boy That Started it All](https://myepilepsystory.org/celebrating-little-boy-started/) - As I sit here thinking of the My Epilepsy Story (MES) organization and how far we have come it is bittersweet…. Hearing the voices and stories of women and girls impacted by epilepsy and how their lives are being changed makes my heart fill with joy. Yet, I fully realize that MES would not be - [Transitioning from Pediatric to Adult Neurology](https://myepilepsystory.org/pediatric-adult-neurology/) - Transitioning from Pediatric to Adult Neurologist Transitions are always difficult, but can also be rewarding when done with preparation and awareness of the important issues. It can be particularly difficult to leave the neurologist who may have been the one who diagnosed you with epilepsy and guided you through difficult times. There are several - [So You Are College Bound.....Now What?](https://myepilepsystory.org/college-bound-now/) - Graduations have come to an end and the summer is here. I sit here thinking about attending our “Oldest Daughter, Ire”, from another set of parents, high school graduation at the end of May. As we sat watching her graduate from Franklin High School it reminded me of how quickly the school years go by - [FDA Approves Epidiolex](https://myepilepsystory.org/fda-approves-epidiolex/) - The FDA approval of EPIDIOLEX will soon bring to market the first plant based drug derived from the cannabis plant in the U.S. Studies in the U.S. of Epidiolex (a plant based cannabidiol or “CBD” formulation) have been ongoing for a number of years. Data from these studies has helped to provide evidence that led - [Epilepsy and Fertility](https://myepilepsystory.org/epilepsy-and-fertility/) - The first article I would like to discuss is about fertility in women with epilepsy. This is a topic I (understandably) get many questions about in my clinic and am happy to have a study to refer to now. There are so many stigmas associated with women with epilepsy and their ability to conceive. Up - [Know your Seizure Type](https://myepilepsystory.org/know-seizure-type/) - Know your seizures! A first time and refresher guide to understanding different seizure types for people with epilepsy. Dr. Michael Kinney MB, MRCP (U.K.) and Dr. Kimford J. Meador MD. Introduction In every area of medicine it’s important that the words used between the doctor or health care professional and the person with the condition, - [The Strength of a Movement: Her Epilepsy Story](https://myepilepsystory.org/strength-movement-epilepsy-story/) - When I initially started my senior project, I knew that I wanted to combine my interests of psychology/science and dance to create a piece. I didn't have any clue as to what that piece would consist of. I was interested in a procedure we had studied a while ago in AP Psych, the corpus callosotomy, - [SeizureTracker.com isn't just for tracking "SEIZURES"](https://myepilepsystory.org/seizure-tracker-isnt-just-tracking-seizures/) - In today's world we are all busy with LIFE... We never seem to have enough time in the day to get everything accomplished. Whether it is getting things done at work, doing laundry, cooking, cleaning, exercise, and spending time with our family or friends. At the end of the day, I am just exhausted and - [Seizure Freedom is NEVER Promised](https://myepilepsystory.org/seizure-freedom-never-promised-2/) - Seizure freedom is never promised…. As I wrap my brain around the fact that I have just had my first seizure in years, the emotions are overwhelming. First, the utter fear that has consumed me is almost too much to bear. The fear of if another seizure will come or what people will think of - [Depression, Anxiety, & Epilepsy......](https://myepilepsystory.org/depression-anxiety-epilepsy/) - Depression, Anxiety, and Epilepsy….. How to know if I have Depression or Anxiety? This is such a great question! Many people are stressed over things in their lives yet that does not mean you have depression or anxiety. However, Depression and Anxiety are real issues that need to be addressed with your doctor. As patients, - [Epilepsy Birth Control Registry](https://myepilepsystory.org/epilepsy-birth-control-registry/) - What is safe and effective contraception for women with epilepsy? Background We know that reproductive hormones such as the ones that are in various forms of hormonal contraception can affect the excitability of nerve cells in the brain and thereby potentially make it easier or harder to have a seizure. In a survey of 1,144 - [Death is Hard....Yet We Celebrate a Life Fulfilled](https://myepilepsystory.org/death-life-fulfilled/) - When you hear the news that one of the women that was such a huge influence on your life as a young teenage girl has passed away there is first a feeling of, “This can’t be possible”, then as it sinks in, the tears begin to flow….. After hearing of Ms. Debbie’s passing I called - [Proclaim Your Story](https://myepilepsystory.org/proclaim-your-story/) - The first time I genuinely told my story, it was to complete strangers. I was shadowing a pediatric neurologist and knowing my background, he asked me to share my experience with epilepsy with one of his patients. She was having a difficult time in school, she was isolating herself from her family, and she felt - [What about the Women and Girls?](https://myepilepsystory.org/what-about-the-women-and-girls/) - The world seems ever changing and yet I feel as though so much still remains the same…Each day new things are being presented to us to explore and experience, but we remain further behind for women’s health in regard to epilepsy. At times, we think we have made huge strides in the area for women - [An Introduction to Health & Wellness](https://myepilepsystory.org/introduction/) - Hello from MES's new Health & Wellness Director! It's that time of year again. No, I'm not talking about the holidays, although I do hope you all had a happy holiday season! I'm talking about those darn resolutions. Mid to late December most folks have at least 1 or 2 things in mind that they'd - [Be BOLD while living with Epilepsy in 2018](https://myepilepsystory.org/be-bold-epilepsy-2018/) - It’s New Year’s Eve, the end of 2017, and the time of year when everyone is setting their New Year’s resolutions and goals for 2018. As I reflect on the past year, I look at what I have accomplished and the things that I have not accomplished.... We tend to be harder on ourselves than - [College is a time of "Self-Discovery".....](https://myepilepsystory.org/college-is-a-time-of-self-discovery/) - "College is a time of self-discovery and growth, but it can also be an intense four years of stress." My first two years in college were especially hard on me; both emotionally draining and mentally demanding. I found myself in a new state across the country where I did not know a single person. My - [Are You Prepared for Your Neurology Appointment?](https://myepilepsystory.org/dr-visit/) - So, you’ve scheduled an appointment with a new neurologist and you’ve waited weeks (even months) for the appointed time. But….are you prepared for the visit? There’s much more involved than knowing where and when. The medical staff wants to be part of your healthcare team and appreciates if you are an active participant in the - [A Partnership is Blooming](https://myepilepsystory.org/partnership/) - At My Epilepsy Story, we are partnering with different companies to help "Bridge the Gap" for women and girls living with epilepsy. In forming partnerships, this allows us to serve women and girls diagnosed with epilepsy without seeking funding from them, the patient. It allows the patient and their families to come to us and just - [Epilepsy Safety with your Newborn Baby](https://myepilepsystory.org/epilepsy-safety-with-your-newborn-baby/) - Your new baby has arrived and you are excited, tired, sleep deprived and on emotional roller coaster. The joy of having that precious baby in your arms brings a full range of emotions. You think to yourself... "I made it and my baby is here safe and sound.", "I just need some sleep.", " Am - [Women with Disabilities Must Tackle More Hurdles than Men in the Workplace](https://myepilepsystory.org/epilepsy-workplace/) - Women with Disabilities Must Tackle More Hurdles than Men in the Workplace November is Epilepsy Awareness Month, and organizations around the country – like My Epilepsy Story – are spreading the word to help girls, women and families get the resources and tools they need to advocates for themselves, and for a better future. As - [November is Epilepsy Awareness Month](https://myepilepsystory.org/november-is-epilepsy-awareness-month/) - It is that time of year again... Epilepsy Awareness Month! November is the month where many organizations promote Epilepsy Awareness. Here at My Epilepsy Story (MES), we are joining with other epilepsy organization to promote this important awareness. 1 in 26 people will develop epilepsy in their lifetime and HALF of these people are FEMALES! - ["It always seems impossible....."](https://myepilepsystory.org/it-always-seems-impossible/) - "It always seems impossible until it's done." ~Nelson Mandela As I begin to think about Mother's Day, I am reminded of all the wonderful women that have been brought into my life over the past few years. The women that I am reflecting on are women that live with epilepsy on a daily basis. We - [Mosaic](https://myepilepsystory.org/mosaic/) - A mosaic is something that resembles a picture or decoration that is made up of diverse elements. These broken pieces are what makes a mosaic beautiful. In our brokenness of living with epilepsy we have shattered dreams. These shattered dreams might be of a child impacted by seizures, infertility from epilepsy, loss of a wife - [Ashley's Story](https://myepilepsystory.org/ashleys-story-2/) - My epilepsy story began when I was 3 years old. I came down with a severe case of Roseola and had a really high fever. One morning my mom came into my room and found me having a seizure. No one knows exactly how long the seizure lasted, but if a seizure lasts for a - [I Have Lost........](https://myepilepsystory.org/i-have-lost/) - These past few days have been just overwhelmingly hard for our family. We have had to process the death of a beautiful little girl named Harper Howard and the daughter of one of my best friends. Harper was 5 years old with beautiful blue eyes and she was so innocent. My journey with Harper began - [Meg's Story](https://myepilepsystory.org/megs-story-2/) - It was March of my freshman year of high school. My childhood dream had come true, and I was just finishing my first season on the high school basketball team. On the way home from school that Friday, I was in a car accident with four other girls. An ambulance rushed me to the hospital - [Ashley's Story](https://myepilepsystory.org/ashleys-story/) - My name is Ashley. I am twenty years old and I have epilepsy. I was thirteen when I had my first grand mal seizure, and admittedly I do not remember much of it. My family and I were on our way to Washington and we had left before sunrise to get an early start. A - [Elizabeth's Story](https://myepilepsystory.org/elizabeths-story/) - I was diagnosed with juvenile myoclonic epilepsy the weekend after attending my orientation at The Ohio State University. I started treatment with medication just three weeks before I was due to move from Michigan to Columbus, Ohio to begin my freshman year. Imagine the worry that my mother went through. My seizures actually began when - [Choosing the Right Health Insurance Plan](https://myepilepsystory.org/choosing-the-right-health-insurance-plan/) - Choosing the right health insurance plan from the exchange Gone are the days of worrying about not having your pre-existing condition covered by your new insurance company. New considerations have arisen from the health insurance exchange created by the Affordable Care Act. For those not covered under an employer group plan choosing a new plan - [Governor Bill Haslam Proclaims November Epilepsy Awareness Month](https://myepilepsystory.org/governor-bill-haslam-proclaims-november-epilepsy-awareness-month/) - Here at My Epilepsy Story, we do everything we can to make people aware of epilepsy, and how it impacts the daily lives of so many people. Thankfully, Governor Bill Haslam sees things the same way, and granted our request to make November "Epilepsy Awareness Month" for Tennessee. We'd like to formally thank everyone who - [Rachel's Story](https://myepilepsystory.org/rachels-story/) - My epilepsy story is a long and complicated one, with frustrating twists and turns. The journey to my diagnosis was not easy or crystal clear, and I had to fight and advocate for myself and my own health. It begins in the late summer of 2011. I had just arrived to our vacation destination with - [Mariellen's Story](https://myepilepsystory.org/mariellens-story/) - My epilepsy story started with enjoying the 4th of July weekend out on the lake with family and friends in 2012. It was the perfect weekend filled with boating, fireworks, and celebrating our 4 year anniversary. My now husband Blake and I met in the mountains 4th of July weekend and love to celebrate each - [Living Without A Filter](https://myepilepsystory.org/living-without-a-filter/) - “Never let the odds keep you from pursuing what you know in your heart you were meant to do.” – Satchel Paige As I sit here this evening, I sit and think of all the things that have happened since I last blogged. My husband and I celebrated our anniversary on Cape Cod for two - [Happy Father's Day](https://myepilepsystory.org/happy-fathers-day/) - I read this saying last week and thought I would share it with you on Father's Day. "The GREATEST thing a Father can do for his children is to LOVE their Mother." As I read those words, I thought of my husband and children as well as so many others out there in this world. - [Time, Where have you gone?](https://myepilepsystory.org/time-where-have-you-gone/) - Where has the time gone???? My baby has now turned 6! Life gets busy and time passes so quickly. We think that we will have time to treasure every moment and then I quickly realize that those moments are gone. David, is our full of life son! He soaks up every second of the day - [Don't be a "Yes-Man"…. Advocate](https://myepilepsystory.org/dont-be-a-yes-man-advocate/) - As I sit and reflect on things that I have heard from parents and the things happening in society I am reminded of what my role is as an ADVOCATE. When I look up the word Advocate in the dictionary the meaning is: a person who argues for or supports a cause or policy We - [This isn't what I would have chosen](https://myepilepsystory.org/this-isnt-what-i-would-have-chosen/) - As Mother's Day is here, I have thought about what Mother's Day means to me personally. For me at times, it has been hard to juggle three little children especially having one child with autism. I have always felt as though I was stealing time from the younger children while trying to give Samuel every - [Silence](https://myepilepsystory.org/silence/) - When the whole world is silent, even one voice becomes powerful. ~Malala Yousafzai In this world we don't always see the reason why things happen. I often find myself thinking why has this happened or how could this happen? I have found that as I sit here pondering these questions my blood begins to boil - [Are We Really Educating Our Children?](https://myepilepsystory.org/are-we-really-educating-our-children/) - This week was the start of school for my three young children. The "rat race" has begun here in Tennessee, like so many other places across the country. As we gathered school supplies and clothes for the children, I began to think about the word EDUCATION. I decided to Google "education" just to see what - [MES002 - Brandy Interviews Dr. Meador with the MONEAD Research Study](https://myepilepsystory.org/mes002-brandy-interviews-dr-meador-with-the-monead-research-study/) - Today, Brandy Parker interviews Dr. Kimford Meador with the MONEAD Research Study. Most Women with epilepsy have normal pregnancies, but appear to be at risk for problems during pregnancy and adverse outcomes in their children. The purpose of this observational study is to establish the risk and determine the factors or contributions to those risks. - [MES001: Announcing the First My Epilepsy Story Podcast!](https://myepilepsystory.org/mes001-announcing-the-first-my-epilepsy-story-podcast/) - We are very excited to announce the very first episode of the new My Epilepsy Story podcast! WE ARE advocating, researching, and educating women and children living with epilepsy. We will be releasing at least one new episode a month starting out and have plans to increase the publishing frequency after the first few episodes. - ["Retarded or World Changer? You Decide......"](https://myepilepsystory.org/retarded-or-world-changer-you-decide/) - I have spent the last few days recovering from my trip to the American Epilepsy Society Annual Meeting. This year it was held in San Diego. I was gone for 5 days and it was FILLED with lots of meetings and lectures. We had our first board meeting for My Epilepsy Story. It was - [My Epilepsy Story Charity Event In Atlanta](https://myepilepsystory.org/my-epilepsy-story-charity-event-in-atlanta/) - Visit us in Atlanta at the Hard Rock Cafe for another excited My Epilepsy Story Charity Event. Special guests include Jake Head, PSDREX and The Economy. September 20, 2013 from 7-10 PM See you there! - [Photos from July 27, 2013 Hard Rock Event](https://myepilepsystory.org/photos-from-july-27-2013-hard-rock-event/) - We greatly enjoyed our second evening raising money for My Epilepsy Story at the Hard Rock Cafe in Nashville, TN. It was a night full of music, fun, laughter and friends. Thank you all for coming out! Here are a few photos from the event. - [Children with Epilepsy and Other Developmental Disabilities](https://myepilepsystory.org/children-with-epilepsy-and-other-developmental-disabilities/) - In 1979, the Centers for Disease Control and Prevention (CDC) was presented with a question: How many children have a developmental disability? Knowing more about the number and characteristics of children with developmental disabilities, such as epilepsy, can help us to understand the magnitude of these conditions and how improvements can be made to help - [My Epilepsy Story Fundraiser at the Hard Rock Cafe In Nashville](https://myepilepsystory.org/my-epilepsy-story-fundraiser-at-the-hard-rock-cafe-in-nashville/) - We are excited to partner with Astar Promotions for event fundraising to help achieve our goals. Astar Promotions has offices in Nashville, TN; Chicago, IL; and Wisconsin and work closely with the Hard Rock Cafe network. They will be donating a portion of the door from their Country at the Rock concert series in Nashville, - [A Story of Pregnancy and Epilepsy](https://myepilepsystory.org/a-story-of-pregnancy-and-epilepsy/) - She was young, beautiful, and newly married. I was the third doctor she saw, because she did not want to hear what the other neurologists had told her. The first neurologist told her she had epilepsy and that she needed to take medication. The second neurologist told her to consider brain surgery. I told her - [Pregnancy and Epilepsy](https://myepilepsystory.org/pregnancy-and-epilepsy/) - Women with epilepsy, who are childbearing potential, and their physicians face difficult decisions about the risks and benefits of antiepileptic drug (AED) use during pregnancy. These decisions need to be addressed prior to pregnancy, as about half of the pregnancies in the USA are not planned. Effective seizure control for the potential mother is extremely - [A Hundred Reasons To Cry or A Thousand Reasons To Smile](https://myepilepsystory.org/a-hundred-reasons-to-cry-or-a-thousand-reasons-to-smile/) - When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile. ~Author Unknown I read this quote several months ago and was reminded of it this weekend. In life we don't get to choose what happens to us, we can only choose what we do when bad - [Full Circle](https://myepilepsystory.org/full-circle/) - I have been waiting for the right time to share with everyone about a new board member for the organization. We are blessed here at My Epilepsy Story to add Dr. Kay Solar. She is a board certified OB/GYN where she now practices gynecology at Woman's Hospital in Baton Rouge, Louisiana. She is a talented - [Busy Times](https://myepilepsystory.org/busy-times-2/) - Life has been extremely busy over the past few weeks! Samuel has begun taking OT and PT at a new therapy center closer to our home. The therapists have been just wonderful with him. We look forward to continuing our progress with OT and PT. Samuel also went to Vanderbilt Children's Hospital to have a - [Stand Up For Epilepsy With One Voice](https://myepilepsystory.org/stand-up-for-epilepsy-with-one-voice/) - Epilepsy affects the lives of millions of people of all ages around the world. It is an unpredictable and potentially devastating group of diseases that can cause seizures, brain injury, and cognitive and psychiatric disabilities. It is an often misunderstood and stigmatized disorder, and as a result many patients may attempt to hide their condition. - [Mother's Day](https://myepilepsystory.org/mothers-day/) - Well today is Mother's Day and I find myself reflecting on what type of mother I am. I often wonder if my children will sit around when they are older and say that I was a good mother.... I love my children unconditionally and want the best for them. As mothers we all have big - [Full Plate](https://myepilepsystory.org/full-plate/) - Life has been so busy here. I have so many things to update everyone on. We have had two wonderful benefits for the organization since I last blogged. One was in Atlanta and the other was in Nashville. They both were held at The Hard Rock Cafe and AStar promotions helped coordinate both of these. - [Who's Your Hero?](https://myepilepsystory.org/whos-your-hero/) - I looked up the definition of a hero this evening. The definition was, "a man of distinguished courage or ability, admired for his brave deeds and noble qualities." As I look at Samuel, he is my hero. He fights to speak out in a world that is cruel and unkind. It takes courage and strength - [July 27, 2013 My Epilepsy Story Benefit at the Hard Rock Cafe in Nashville](https://myepilepsystory.org/july-27-2013-my-epilepsy-story-benefit-at-the-hard-rock-cafe-in-nashville/) - You are invited to the My Epilepsy Story Benefit at the Hard Rock Cafe in Nashville, TN on July 27, 2013 at 7pm. It will be a LOUISIANA SATURDAY NIGHT at the Hard Rock Cafe. The cost is $5 to get in and a portion of the proceeds will go to the My Epilepsy Story - [Through My Daughter's Eyes......](https://myepilepsystory.org/through-my-daughters-eyes/) - I blog a lot about my son Samuel so I thought I would share about my precious little girl, Hannah Kate.....You see this beautiful little girl is almost 5 years old. Hannah Kate looks at this world through her big beautiful brown eyes with passion. She loves with every ounce that she weighs. She loves - [Anger](https://myepilepsystory.org/anger/) - I decided to look up the definition of anger today......one definition was : A strong feeling of displeasure, resentment, or hostility.I have been reading a wonderful book and the author spoke of when she was in counseling her counselor had her write 50 things she was angry about. I have never thought of myself as - [Time to focus....](https://myepilepsystory.org/time-to-focus/) - Well I am making my list of things to get done.....Time to start picking back up on the My Epilepsy Story organization. I have had a lot going on personally but things are settling down so now it is time to get focused on the My Epilepsy Story. I am so excited to see what - [Are You A Leader?](https://myepilepsystory.org/are-you-a-leader/) - What is a leader? Who in your life do you consider a leader? One definition of leader is a person who rules, guides, or inspires others. As I looked this up in the dictionary and have been reflecting on what a leader is I am reminded of the children that have been affected by epilepsy....These - [My baby is gone........](https://myepilepsystory.org/my-baby-is-gone/) - [image source_type="attachment_id" source_value="326" align="left" size="medium" autoHeight="true"] I haven't blogged about my youngest before so I wanted to share about him. David just turned three today and I am amazed at how quickly the time has passed. He is a beautiful blonde hair, blue eyed little boy that is full of life. This little boy has - [What is it like to be you?](https://myepilepsystory.org/what-is-it-like-to-be-you/) - This evening I watched the movie, The Help, and LOVED it! It has the song from Mary J. Blige, The Living Proof, which I also love.... As I watched the movie I laughed, cried, laughed and of course cried some more. One line from the movie stood out more than anything else...."No one had ever asked - [Enjoying the moment....](https://myepilepsystory.org/enjoying-the-moment/) - This has been a very stressful week personally. As I sit here this evening, I am enjoying the moments that I have had with my three beautiful children. I hear the laughter upstairs as they play together and think I am so blessed to have them. Samuel has had another set back today which has - [What Do You DREAM?](https://myepilepsystory.org/what-do-you-dream/) - This evening as I sit here and prepare for my week ahead the word DREAM comes to mind…..You see, dreams do come true when we pursue them. [blockquote cite="Henry David Thoreau"]If one advances confidently in the direction of his dreams, and endeavors to live the life which he has imagined, he will meet with success - [Heidi's Story](https://myepilepsystory.org/heidis-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Heidi writes: Hi, my name is Heidi. I was only diagnosed with epilepsy about a month ago, but the diagnosis should have been made many years ago. My story starts at age - [What Do You Dare To BELIEVE?](https://myepilepsystory.org/what-do-you-dare-to-believe/) - [blockquote cite="Albert Einstein"]It is better to believe than to disbelieve; in doing you bring everything to the realm of possibility.[/blockquote] I was reminded of this quote today. I loved it when I first read it years ago and I still love it today! I decided to look up the definition of "believe" this evening. Believe - [Olivia's Story](https://myepilepsystory.org/olivias-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] Shannon writes: In 2009, my husband, Mike and I, were already the proud parents of 3 beautiful children but we just felt like our family wasn't complete. We always dreamed of a - [Painful Place or Blossom? You Decide...](https://myepilepsystory.org/painful-place-or-blossom-you-decide/) - "AND THE DAY CAME WHEN THE RISK TO REMAIN TIGHT IN A BUD WAS MORE PAINFUL THAN THE RISK IT TOOK TO BLOSSOM." ~Anais Nin I came across this on a card the other day when I was having a girl day with a friend. (Thanks Lauren for giving me the girl day) This saying - [Addison's Story](https://myepilepsystory.org/addisons-story/) - Often, I feature stories from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: We knew febrile seizures were likely when Addison was born in Feb 2007. I had them, her daddy had them, and so did her big brother. So when she had - [What's Your Reason To Be Brave?](https://myepilepsystory.org/whats-your-reason-to-be-brave/) - What's your reason to be BRAVE? My reason to be BRAVE is for everyone that lives with or is affected by neurological disorders. I do not understand the complexities of neurological disorders. They plague so many people in this world. For our family it is AUTISM and EPILEPSY. There is fear, uncertainty, so many unknowns, - [Life is what happens to you while you're busy making other plans.....](https://myepilepsystory.org/life-is-what-happens-to-you-while-youre-busy-making-other-plans/) - This quote from John Lennon, "Life is what happens to you while you're busy making other plans." has really hit home lately. I am a planner by nature, however I am learning about life these days. I am planning for new schools for the children, new place to live, and so many other things....Nothing - [Monica's Story](https://myepilepsystory.org/monicas-story/) - Each month I feature a story from one of my readers who has been affected by epilepsy. Learn how you can share your story. [framed_box] She writes: [image source_type="attachment_id" source_value="241" align="left" size="small" autoHeight="true"] When I was 6 months old I had my first seizure. At the time I was diagnosed with febrile seizures, brought on - [The Journey Begins........](https://myepilepsystory.org/the-journey-begins/) - After much thought and consideration my journey begins as I share My Epilepsy Story....... - [The beginning...](https://myepilepsystory.org/the-beginning/) - At the age of 15 I had a seizure and I was wondering what my life would hold. I didn't want anyone to know that I had epilepsy. I thought would I become one of those kids in the "special" class and would people see me as different? So young and so uninformed on epilepsy, - [Sweet Cece](https://myepilepsystory.org/sweet-cece/) - Last night I had the chance to meet sweet Cece...This sweet little baby suffers from epilepsy. Last night as I stood at the foot of her crib at the hospital and met her parents, my eyes seemed to keep focusing on her. As I listened to her mother tell of what Cece has been going - [Baby Cece....](https://myepilepsystory.org/baby-cece/) - It is with great sadness to say that little Cece died late last night.....This sweet little baby that I had the chance to meet for only a little while has left this earth. As I sit here and process this I think of her parents and the longing they must have to hold their only - [Processing....](https://myepilepsystory.org/processing/) - As I finally sit here to write for the first time since attending Baby Cece's visitation, words cannot even begin to describe the pain I saw in her parents eyes......My heart aches for Lacey and Jim as they begin to somehow try to move forward with their lives. While on my way over to the - [Finding a cure....](https://myepilepsystory.org/finding-a-cure/) - There has been much discussion lately in regards to finding a cure for epilepsy. Some people believe that it is taking away from therapy treatments for patients with epilepsy. As a person who has lived with epilepsy for 20 years, I want a cure for this. I realize that I am in the lucky group - [Mothers.....](https://myepilepsystory.org/mothers-2/) - Lately I have been blessed to meet some wonderful mothers that give me inspiration. As I sit and listen to these mothers talk about their children and the challenges they continue to face living with epilepsy, I am inspired.... These mothers give of themselves tirelessly everyday to make sure their children continue to progress in - [Is he special needs?](https://myepilepsystory.org/is-he-special-needs/) - This past week has been very busy. When I went to exercise at the gym for the first time I was excited. The kids were all ready to go and were ready to meet new people. As I dropped them off at their classes David (2) was a little unsure but decided to give it - [Tears through the test results.....](https://myepilepsystory.org/tears-through-the-test-results/) - Well today has been a day of new beginnings in our home. Samuel started his first day at school and did a great job. The teacher was wonderful with him and seems to be very passionate about the students. The teacher is like a breath of fresh air that was needed at the school.....I know - [Come on people.......](https://myepilepsystory.org/come-on-people/) - Well this has been an interesting time over the last few weeks. As I sat in one of Samuel's classes this week (it was the first day) there were two other moms in the room. When I walked in, the teacher stopped teaching and asked if Samuel was my son. I said "oh yes, he's - [Holding on too tight.....](https://myepilepsystory.org/holding-on-too-tight/) - I have arrived in Atlanta this evening for some meetings with doctors at Emory University and to meet with some people from the Center for Disease Control (CDC). I am excited about tomorrow and Tuesday with the upcoming meetings, yet I have left my loved ones at home..... As I sit here and begin to - [Everyday Health.....](https://myepilepsystory.org/everyday-health/) - There is an exciting new series on Everyday Health.....On October 22 they will air an episode on Canine Assistance Service Dogs featuring someone living with epilepsy...Follow the link below to see the previewwww.everydayhealth.com/tvHope everyone is having a wonderful seizure free day! - [Tears through the testing....](https://myepilepsystory.org/tears-through-the-testing/) - Well today Samuel started his first day of school at the private school here in town. He did a great job and went the whole day. The teacher seems very passionate about teaching the students and great with Samuel. Time will tell as we continue on the journey....I have struggled with whether I should share - [Embrace Where You Are.....](https://myepilepsystory.org/embrace-where-you-are/) - Last week Samuel told the priest all about the "dry, large intestines" while he was about to receive communion. As I was kneeling next to him, all I could do was smile..... I am not going to lie, it was a bit embarrassing when he began trying to have this conversation with the priest. The - [Busy times...](https://myepilepsystory.org/busy-times/) - Life has been extremely busy this past month. As I sit and think of all the new things happening in my life I am overwhelmed.... Samuel has done AMAZING at his new school. I think of where he was just a few short months ago and where he is now. My heart begins to smile - [Taking Chances and Trusting........](https://myepilepsystory.org/taking-chances-and-trusting/) - I had to take some time before I wrote this blog but here it is.......As we walk on this journey with Samuel it can be very exciting, rewarding, confusing, and exhausting all wrapped into one. Many of you know, that he has been homeschooled up until this point. Samuel has come to the point where - [Boston Bound......](https://myepilepsystory.org/boston-bound/) - Well we are headed to Boston to be a part of a research project on children that were exposed to valproate in utero. I am excited to have Samuel participate in the important research study. As the time is getting closer I am also needing to take a few breaths because I know that they - [Day 1 in Boston.....](https://myepilepsystory.org/day-1-in-boston/) - We had a great visit today with Dr. Bauman from the Ladders - [Do I have the strength to keep going......](https://myepilepsystory.org/do-i-have-the-strength-to-keep-going/) - You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. ~Eleanor RooseveltA Facebook friend posted this quote by Eleanor Roosevelt this evening....I have really reflected on this quote. I look at everything that we have gone through with Samuel and I know that we are - [MONEAD Study Group (2020) Summary](https://myepilepsystory.org/monead-study-2020-summary/) - MONEAD Study Group Maternal Outcomes and Neurodevelopmental Effects of Antiepileptic Drugs The Ohio State University Medical Center’s Epilepsy Team held a journal club on the recently published article:Pennell PB, French JA, May RC, Gerard E, Kalayjian L, Penovich P, Gedzelman E, Cavitt J, Hwang S, Pack AM, Sam M, Miller JW, Wilson SH, Brown C, Birnbaum AK, - [Addressing Healthcare Disparities in Women with Epilepsy](https://myepilepsystory.org/addressing-healthcare-disparities-in-women-with-epilepsy/) - My Epilepsy Story (MES) was founded based off inequities of research into epilepsy and women’s health, and the consequences of being in an under researched patient population. We see a continued need to address the healthcare disparities within the women with epilepsy community. Disparities in the quality of healthcare are known to persist in rural - [5 Ways to Help Your Child Cope](https://myepilepsystory.org/5-ways-to-help-your-child-cope/) - Are You a Recently Furloughed or Laid-Off Parent? We live in uncertain times as we are confronted with the collateral damage of the COVID19 pandemic. I understand that not only is our basic way of life being disrupted by the new normal way of personally interacting with each from a distance but the unplanned side effects - [MES Online Support Group](https://myepilepsystory.org/mes-online-support-group/) - Join Us Every Week! My Epilepsy Story is launching a weekly Online Support Group! In this globally chaotic time anything can become or seem overwhelming. Whether you have questions about COVID-19 & Epilepsy, telemedicine during quarantine, have more general questions, or just need someone who understands to listen, we invite you to join us every - [2nd Annual International Women With Epilepsy Day!](https://myepilepsystory.org/2nd-annual-international-women-with-epilepsy-day/) - Facebook Twitter Google-plus Linkedin Instagram Join Us on March 1st To celebrate International Women With Epilepsy Day, My Epilepsy Story will be hosting a Live Chat via Zoom on March 1st, 2020 at 4PM PST/7PM EST where you can: - Learn About Epilepsy & Women's Health - - Meet our MES Ambassadors - - Engage - [Season of Giving 2019](https://myepilepsystory.org/season-of-giving-2019/) - Thank you all for your support this past year! Thank your for supporting our mission to advocate, educate, and research for women and girls living with epilepsy! Your contributions this past year have really made a difference. This year we awarded our annual Kimford J. Meador Research in Women with Epilepsy Award at American Epilepsy Society. - [Heather's Story](https://myepilepsystory.org/heathers-story-2/) - My story with epilepsy began right after my daughter turned two years old. She suddenly started turning blue, staring, and became lethargic. Over six months of testing, the episodes went from once every two weeks to 9 per day. Leighanne’s seizures presented as several other serious health problems, so it wasn’t until a scheduled inpatient - [Melissa's Story](https://myepilepsystory.org/melissas-story/) - My epilepsy story didn’t start until 2012. At that time, I had my first seizure, but did not know it was a seizure. About 2 weeks later, I had 2 more seizures within a few days of each other. One was a deja vu experience and the other was a loss of time experience. Now - [Betty's Story](https://myepilepsystory.org/bettys-story/) - My name is Betty and I have had epilepsy since I was 2 years old. I was not allowed to do anything because of my epilepsy, so it made me feel locked up. I went through school in special classes and made it through getting my high school diploma. When I was 17 years old, - [Rachel's Story](https://myepilepsystory.org/rachels-story-2/) - My name is Rachel and I am from Louisiana. I was diagnosed with Epilepsy in January of 2015. I was 26 years old at the time. It started one afternoon in January when I came home from work and my 2 year old was sick. My Dad cooked dinner that night, and my Mom was - [Epilepsy in Latinx Community](https://myepilepsystory.org/epilepsy-in-latinx-community/) - How Social Stigma Affects Quality of Healthcare in Latinx Community Introduction Epilepsy is a historically misunderstood disease. While professionals are more knowledgeable, community and general knowledge is highly lacking. Approximately 65 million people in the world have some form of epilepsy, and 1 in 26 will develop epilepsy in their lifetime (Sirven & Shafer, 2014). ## Pages - [Home](https://myepilepsystory.org/) - My Epilepsy Story (MES) is an international, non-profit organization that serves to bridge the gap for women and girls diagnosed with epilepsy, as well as the children impacted by their mother’s epilepsy, by Collaborating, Advocating, Researching, and Educating (C.A.R.E.) people everywhere about women’s health and epilepsy. - [Our Team](https://myepilepsystory.org/our-team/) - Meet Our Team Board of Directors BRANDY MCFADDENBrandy McFadden is a wife, mother, patient advocate, patient expert, Executive Director/Founder of My Epilepsy Story(MES), Founder of International Women with Epilepsy Day (IWWED) held every March 1st, Founder of McFadden Media, Host of: Her Voice, Her Story, Her Strength and a woman living with epilepsy. She is - [PDF Library](https://myepilepsystory.org/pdf-library/) - Women's Resources Download Epilepsy and Breastfeeding Seizure First Aid Last Updated 2025 - [Educational Services](https://myepilepsystory.org/educational-services/) - Educational Services Educational Services My Epilepsy Story is proud to offer educational services: Kindergarten through College/Trade School! We offer assistance with IEPs, 504s, Accommodations in the Classroom, Vocational Rehabilitation, Transitioning from High School to College/Trade School, and College/Trade School Advisement.Please contact us to discuss your child’s needs in the “Kindergarten through College/Trade School” educational setting.Email: education@MyEpilepsyStory.org - [Become an MES Ambassador](https://myepilepsystory.org/become-an-mes-ambassador/) - Get Involved. Become an MES Ambassador Becoming an MES Ambassador is all about raising awareness for women and girls living with epilepsy. Do you or a loved one suffer from seizures? If so, this is the perfect opportunity to get involved in the epilepsy community and help enact change through Advocacy, Research, and Education for these valiant females. - [Nutrition and Wellness](https://myepilepsystory.org/nutrition-and-wellness/) - Nutrition and Wellness My Epilepsy Story offers exercise and nutrition advice so that you can be your healthiest self!From exercise routines to weekly meal preps, MES Health & Wellness can help you get in shape and nourish your body from the inside out. Check out our articles for advice! Interested? Let Us Know Below Name - [Support](https://myepilepsystory.org/support/) - MES Support Group MES Support Group Join Us Weekly! The world today seems to be turned upside down, and anything can become or seem overwhelming. That’s why my Epilepsy Story is currently working to develop support groups for women and girls with Epilepsy, and we invite you to get involved and join us to ask - [Video Library](https://myepilepsystory.org/video-library/) - Empowering Girls 5 Videos The Role of the Pharmacist & Epilepsy 6:24 Transitioning from a Pediatric Neurologist to an Adult Neurologist 5:20 Managing Your Epilepsy & Tracking Your Seizures Epilepsy & Stress with Dr. Michael Privitera Help! My Daughter Was Diagnosed with Epilepsy with Dr. Mukundan More Information More Information Dr. James McAuley is Associate - [Get Involved](https://myepilepsystory.org/get-involved/) - Get Involved My Epilepsy Story ambassadors and community help raise awareness about epilepsy in women and girls. On this page, you can learn about the many ways to get involved in spreading awareness, and join us today! MES Ambassador Program MES Ambassador Program Become an MES Ambassador Becoming an MES Ambassador is all about raising - [Physicians](https://myepilepsystory.org/physicians/) - Video Library Videos For Physicians 7 Videos Fertility and Epilepsy - Page B. Pennell, MD, Department of Neurology at Harvard Medical School 11:06 Role of Pharmacist - James McAuley, RPh, PhD, FAPhA, Assoc. Dean , Professor Ohio State Univ. - Phys 4:14 Pregnancy & Epilepsy - Kimford J. Meador, MD, Dept. of Neurology, Stanford University - [Collaborators](https://myepilepsystory.org/collaborators/) - Corporate Collaborators “1 in 52 females will be diagnosed with epilepsy.” Join us in EMPOWERING the lives of millions of women and girls living with epilepsy around the world. Become a Corporate Collaborator. Your financial support helps our mission to Advocate, Research, and Educate women and girls living with epilepsy and the providers that selflessly - [Cynthia Louise Harden Research Award](https://myepilepsystory.org/cynthia-louise-harden-research-award/) - Apply For The Cynthia L. Harden Research in Women with Epilepsy Award About the Cynthia Louise Harden Research Award The Cynthia Louise Harden Award supports vital research on neuroendocrine issues in women and girls with epilepsy. Dr. Harden’s work reveals epilepsy as an endocrine disruptor, highlighting the importance of reproductive health. The award encourages exploration - [Physician Mental Health & Well-being](https://myepilepsystory.org/physician-mental-health-wellbeing/) - For many of the 3.4 million people* living with epilepsy in the United States, their physicians are vital to their care and well-being. They rely on these professionals to provide expert advice and guidance as they manage their condition. But the impact of a physician’s mental health can also have an impact on their patients’ - [Mental Health Wellness](https://myepilepsystory.org/mental-health-wellness/) - For many of the 3.4 million people with epilepsy in the United States, the neurological disorder is just one of the health challenges they face daily. As many as 30% of adults living with epilepsy also suffer from a serious mental health condition such as severe depression, schizophrenia, or bipolar disorder. (source: CDC.gov) Join Us! The - [Donate](https://myepilepsystory.org/donate/) - Donate to Bridge the Gap 1 in every 52 women live with epilepsy. Please consider making a monthly recurring donation to support epilepsy research. Donate to the My Epilepsy Story General Fund By donating to our general funds, you help empower women and girls living with epilepsy by supporting advocacy, research, and education worldwide. Your - [About Us](https://myepilepsystory.org/about/) - Founder's Story How My Epilepsy Story Was Formed​My childhood was healthy, until I had my first tonic-clonic seizure at the age of 15. Luckily, I am fortunate to have only had three seizures since being diagnosed. At the time, I thought that I was an informed patient about epilepsy. I had responded to treatment with - [Blog Style One](https://myepilepsystory.org/blog-style-one/) - [Patients](https://myepilepsystory.org/patients/) - Find a Doctor Provider and Hospital List My Epilepsy Story is excited to share with you a group of amazing doctors that have an interest in women’s health related to epilepsy. Below, you will find a list of doctors for women and girls diagnosed with epilepsy. FIND A DOCTOR Video Library Empowering Girls 5 Videos - [Sandra Helmer's Memorial Scholarship](https://myepilepsystory.org/sandra-helmers-memorial-scholarship/) - The Sandra Helmers Memorial Scholarship About Dr. Sandra Helmers Sandra L. Helmers, M.D., M.P.H. was a pioneer in the field of epilepsy and her distinguished career impacted not only the lives of people living with epilepsy but professional colleagues who she mentored and collaborated with as well. Dr. Helmers held many prominent positions including: Attending Epileptologist - [Kimford J. Meador Research in Women with Epilepsy Award](https://myepilepsystory.org/kimford-j-meador-research-in-women-with-epilepsy-award/) - Apply For The The Kimford J. Meador Research in Women with Epilepsy Award is awarded to support early career clinician-scientists who have contributed significantly to the understanding and better care for women with epilepsy. Application process open on April 13th, 2026! Please apply directly on the American Epilepsy Society (AES) website https://aesnet.org/AES-annual-meeting/abstracts/abstract-awards Kimford J. Meador Research in - [IWWE Annual Seminar & Registration](https://myepilepsystory.org/iwwe-annual-seminar-registration/) - IWWE Annual Seminar & Registration COMING SOON! PAST EVENT: 2022 IWWE Annual SeminarMy Epilepsy Story (MES) and Brigham and Women’s Hospital are proud to present the second annual International Women with Epilepsy Day Seminar! Dedicated leaders in the field will be speaking to share their experiences and answer questions to expand understanding of common issues in treating epilepsy in women - [Login](https://myepilepsystory.org/login/) - [ultimatemember form_id="6162"] - [Register](https://myepilepsystory.org/register/) - [ultimatemember form_id="6161"] - [Privacy Policy](https://myepilepsystory.org/privacy-policy/) - Who we areSuggested text: Our website address is: https://myepilepsystory.org.CommentsSuggested text: When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.An anonymized string created from your email address (also called a hash) may be provided - [Password Reset](https://myepilepsystory.org/password-reset/) - [ultimatemember_password] - [Receipt](https://myepilepsystory.org/receipt/) - [donation_receipt] - [Contact](https://myepilepsystory.org/contact/) - We Want to Hear From You! Contact us with your questions, or inquiries by phone, email, or complete the form below. Our support staff will reach out to you. Location 2817 West End Ave STE 126-426 Nashville, TN 37203-143 Email info@myepilepsystory.org Business Talk +1 (615) 822-4224 We want to hear from you! We’re an open - [Events](https://myepilepsystory.org/events/) - 01 Mar Holy Cross High School Dress Down Fundraiser - 09 Dec 0 Lates blog post with image Lorem ipsum dolor sit amet, eum atom error nonumy, mel agam dictas… Read More 01 Mar British International School of Boston Fundraiser - 09 Dec 0 Lates blog post with image Lorem ipsum dolor sit amet, eum - [Subscription Plan](https://myepilepsystory.org/subscription-plan/) - Why Join... If you are a physician or medical professional working with women and girls with epilepsy, we invite you to join our community. As a member, you’ll: join a community of leaders who are breaking down barriers for women and girls with epilepsy have access to content tailored to physicans have access to content - [Default Redirect Page](https://myepilepsystory.org/default-redirect-page/) - Please login. If you are not a member, we invite you to join today. Physicians Login Here. Username or EmailPassword Keep me signed in RegisterLost your password? Don't have a membership? Join the Movement here! - [Thank You Page](https://myepilepsystory.org/thank-you-page/) - Sorry! 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Qui ea suas utinam indoctum, ex usu ceteros comprehensam, labores facilisis Nullam ## My Templates - [Find A Doctor](https://myepilepsystory.org/?elementor_library=find-a-doctor) - Content Area - [MES - Header](https://myepilepsystory.org/?elementor_library=elementor-header-1801) - Content Area - [The Events Calendar - Dynamic template](https://myepilepsystory.org/?elementor_library=the-events-calendar-dynamic-template) - « All Events This event has passed. postponed (DEMO) This event has been postponed. Your Events Calendar Template March 30 @ 7:37 am $10 My journey with epilepsy began in 1991 after a car accident triggered my first seizure. At the time, medical answers were limited, and surgical options felt long and frightening. But what - [The Events Calendar - Starter](https://myepilepsystory.org/?elementor_library=the-events-calendar-starter) - « All Events This event has passed. postponed (DEMO) This event has been postponed. Your Events Calendar Template March 30 @ 7:37 am $10 Categories: Demo Category Tags: demo-tag-1, demo-tag-2 Website: http://theeventscalendar.com John Doe 555-555-5555 View Organizer Website info@theeventscalendar.com Mock Venue 1005 S Michigan Ave Chicago, Illinois United States + Google Map 123-456-7890 View Venue - [Default Kit](https://myepilepsystory.org/?elementor_library=default-kit) - [MES - simple contact form](https://myepilepsystory.org/?elementor_library=mes-simple-contact-form) - Name Email Phone Subject Message Send - [Elementor Single Post #5893](https://myepilepsystory.org/?elementor_library=elementor-single-post-5893) - Elementor Single Post #5893 July 17, 2022 Brandy McFadden My journey with epilepsy began in 1991 after a car accident triggered my first seizure. At the time, medical answers were limited, and surgical options felt long and frightening. But what I remember most wasn’t the lack of technology — it was confusion. One moment I - [MES - Blog Section](https://myepilepsystory.org/?elementor_library=mes-blog-section) - Latest Blogs and Articles All12Brandy's Personal PostsEducational ServicesEventsFrom The ExpertsGirls with EpilepsyHelpful Epilepsy InformationNews By Brandy McFadden /January 22, 2026 Gifts From the Road That No One Wants to Travel As I begin to look towards what lies ahead, I am grateful for the darkest of days that I have experienced. The dark days taught me - [MES - Footer](https://myepilepsystory.org/?elementor_library=elementor-footer-1865) - Content Area - [MES PDF Library](https://myepilepsystory.org/?elementor_library=mes-pdf-library) - PDF Library Physicians Breastfeeding Handout ASMs and Pregnancy Breastfeeding Article MES Preconception Counseling Fertility and WWE Folic Acid SUDEP in Women PNC Outline - [MES- Video Library](https://myepilepsystory.org/?elementor_library=mes-video-library-2) - Video Library Physicians For Physicians Only 8 Videos Fertility and Epilepsy - Page B. Pennell, MD, Department of Neurology at Harvard Medical School 11:06 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 More Information More Information Dr. Page B. Pennell is a - [MES Video library](https://myepilepsystory.org/?elementor_library=mes-video-library) - Video Library Physicians For Physicians Only 8 Videos Fertility and Epilepsy - Page B. Pennell, MD, Department of Neurology at Harvard Medical School 11:06 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 Sample Video 0:16 More Information More Information Dr. Page B. Pennell is a - [MES Single Post](https://myepilepsystory.org/?elementor_library=mes-single-post) - MES Single Post July 17, 2022 My journey with epilepsy began in 1991 after a car accident triggered my first seizure. At the time, medical answers were limited, and surgical options felt long and frightening. But what I remember most wasn’t the lack of technology — it was confusion. One moment I was fully present - [Sandra Helmers Scholarship](https://myepilepsystory.org/?elementor_library=test) - Content Area - [Sandra Helmers Application](https://myepilepsystory.org/?elementor_library=sandra-helmers-application) - Title Ms. Mrs. Name Permanent Home Address City State Zip Phone Mobile Phone Email Age for Academic Year Date of Birth Gender Your Doctor's Information: Whos Your Doctor Doctors Office Address Doctors City Doctors State Doctors Zip Academic Institution Information: Name of College College Address Colleges Main Phone # College Date Enrolled Academic Highschool Information: - [MES - Find a Doctor](https://myepilepsystory.org/?elementor_library=mes-find-a-doctor) - Adult Neurologists Alabama Jennifer DeWolfe, DOUAB Epilepsy1802 6th Ave SouthBirmingham, AL 35233(205) 934-3866 Arizona David Labiner, MDUniversity of Arizona1501 North Campbell AveTucson, AZ 85724(520) 694-8888 California Kimford Meador, MDStanford Neuroscience Health Center213 Quarry RoadPalo Alto, CA 94304(650) 723-6469Laura Kalayjian, MDKeck School Medicine of USC1520 San Pablo St., Suite 3000Los Angeles, CA 90033(323) 442-5710Christianne Heck, MD, - [MES - Group Block](https://myepilepsystory.org/?elementor_library=mes-group-block) - MES Ambassador Program MES Ambassador Program Become an MES Ambassador Becoming an MES Ambassador is all about raising awareness for women and girls living with epilepsy. Do you or loved one suffer from seizures? If so, then this is the perfect opportunity to get involved in the epilepsy community and help enact change through advocacy, - [MES - Footer contact us](https://myepilepsystory.org/?elementor_library=mes-footer-contact-us) - We want to hear from you! We’re an open door, as a resource for women and girls diagnosed epilepsy. 2817 West End Ave STE 126-426 Nashville, TN 37203-143 (615) 822-4224 info@myepilepsystory.org Message Us Name Email Phone Subject Message Send - [MES - More about us](https://myepilepsystory.org/?elementor_library=mes-more-about-us) - Learn More About Us Board of Directors Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Advisory Board Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Our Staff Lorem ipsum dolor sit amet, consectetur adipiscing elit. - [MES - Brandys Story](https://myepilepsystory.org/?elementor_library=mes-brandys-story) - Brandy's Story My childhood was healthy, until I had my first tonic-clonic seizure at the age of 15. Luckily, I am fortunate to have only had three seizures since being diagnosed. At the time, I thought that I was an informed patient about epilepsy. I had responded to treatment with medication, and epilepsy didn’t affect - [MES - Standard Button](https://myepilepsystory.org/?elementor_library=mes-standard-button) - Learn More - [Unfolding Pictures](https://myepilepsystory.org/?elementor_library=unfolding-pictures) - BRANDY PARKER-MCFADDEN Brandy Parker-McFadden is a wife, mother, patient advocate, Executive Director/Founder of My Epilepsy Story, and a woman living with epilepsy. She is a member of the American Epilepsy Society and American Epilepsy Society Epilepsy Leadership Council (ELC). Mrs. McFadden is a member of the AES ELC: Surveillance/Prevention Working Group and Membership Committee, a - [Brands Story](https://myepilepsystory.org/?elementor_library=brands-story) - Brandy's Story My childhood was healthy, until I had my first tonic-clonic seizure at the age of 15. Luckily, I am fortunate to have only had three seizures since being diagnosed. At the time, I thought that I was an informed patient about epilepsy. I had responded to treatment with medication, and epilepsy didn’t affect - [Default Kit](https://myepilepsystory.org/?elementor_library=default-kit-2) ## Teams - [JACQUELIN R. ARGÜELLO, B.SC.](https://myepilepsystory.org/team/jacquelin-r-arguello-b-sc/) - Jacquelin Argüello, B.Sc., is a Master of Nursing student at Johns Hopkins University. She became interested in Epileptology in 2013 as a clinical research intern working on anti-seizure medication trials and epilepsy surgery projects. In 2015, she presented the poster presentation “Epilepsy surgery at a private Epilepsy center” at the OMICS International Epilepsy & Treatment - [Brandy McFadden](https://myepilepsystory.org/team/brandy-mcfadden/) - Executive Director/Founder - [BRANDY MCFADDEN](https://myepilepsystory.org/team/brandy-parker-mcfadden-2/) - Brandy McFadden is a wife, mother, patient advocate, Executive Director/Founder of My Epilepsy Story, and a woman living with epilepsy. She is a member of the American Epilepsy Society and the American Epilepsy Society Epilepsy Leadership Council (ELC). Mrs. McFadden is a member of the AES ELC: Surveillance/Prevention Working Group and Membership Committee, a Consultant - [TORBJÖRN TOMSON, MD, PHD, FRCP EDIN](https://myepilepsystory.org/team/torbjorn-tomson-md-phd-frcp-edin/) - Torbjörn Tomson is Professor of Neurology and Epileptology at the Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden and head of the Epilepsy Section at the Department of Neurology at Karolinska University Hospital in Stockholm. Dr Tomson received his medical and neurology training at Karolinska Institutet where he gained his MD in 1974 and his - [BASIL O. DOSUNMU](https://myepilepsystory.org/team/2093/) - Basil O. Dosunmu assumed the role of assistant commissioner of Finance and Administration for the Tennessee Department of Human Services on May 23, 2011. He was recently promoted to deputy commissioner of Finance and Administration. Prior to joining DHS, Dosunmu was an auditor with the Metropolitan Nashville Airport Authority. Dosunmu has more than 19 years - [KIMFORD J. MEADOR MD](https://myepilepsystory.org/team/kimford-j-meador-md/) - Dr. Meador is a Professor of Neurology and Neurological Sciences at the Stanford University, and Director of the SHC Epilepsy Monitoring Unit. Dr. Meador graduated from the Georgia Institute of Technology in Applied Biology (with high honor) and received his MD from the Medical College of Georgia. After an internship at the University of Virginia - [GREGORY C. MATHEWS, M.D., PHD](https://myepilepsystory.org/team/gregory-c-mathews-m-d-phd/) - Dr. Mathews is a neurologist in Silver Spring, Maryland and he owns a practice specializing in the diagnosis and treatment of epilepsy. In addition, he is the Medical Director of the Epilepsy Monitoring Unit at Holy Cross Hospital in Silver Spring. Dr. Mathews holds a Bachelor of Science degree in Biology from Georgetown University in - [CARYN DUTTON, M.D.](https://myepilepsystory.org/team/caryn-dutton-m-d/) - Dr. Caryn Dutton is the Division Director of Family Planning in the Department of Obstetrics and Gynecology at Beth Israel Deaconess Medical Center and on faculty at Harvard Medical School in Boston, MA. She obtained her M.D. from the University of Connecticut, then completed residency in Obstetrics and Gynecology at Kaiser Permanente in Santa Clara, - [GREGORY N. BARNES, M.D., PHD](https://myepilepsystory.org/team/gregory-n-barnes-m-d-phd/) - Gregory Barnes, M.D., Ph.D., is the inaugural permanent director of the University of Louisville Autism Center. Dr. Barnes comes to UofL from Vanderbilt University. Barnes also hold the Spafford Ackerly Chair for Child and Adolescent Psychiatry and faculty positions in the departments of Neurology and Pediatrics. “Dr. Barnes is a national leader in providing care - [SARITA MATURU, DO](https://myepilepsystory.org/team/sarita-maturu-do/) - Sarita Maturu, DO is an Epileptologist at Ohio State Wexner Medical Center in Columbus OH. She has obtained her medical degree at Ohio University College of Osteopathic Medicine in Athens, Ohio. She went up north to Henry Ford Hospital in Detroit, MI where she spent the next 4 years completing her Neurology residency. She then - [P. EMANUELA VOINESCU, MD, PHD](https://myepilepsystory.org/team/p-emanuela-voinescu-md-phd/) - Emanuela Voinescu, MD, PhD, is a neurologist at Brigham and Women’s Hospital in Boston, MA, who focuses her clinical and research efforts on improving the care of women with epilepsy. She obtained her medical degree from University of Medicine and Pharmacy, Romania, and her doctoral degree from Harvard University, prior to completing the Partners Neurology - [Jodi Suglio, MS, CF-L1](https://myepilepsystory.org/team/jodi-suglio-ms-cf-l1/) - Health & Wellness Director - [James R. McFadden, II M.Ed.](https://myepilepsystory.org/team/james-r-mcfadden-ii-m-ed/) - Education Director - [Jackie Arguello, B.S.](https://myepilepsystory.org/team/jackie-arguello-b-s/) - Administrative Assistant - [Heather & Leighanne](https://myepilepsystory.org/team/heather-leighanne/) - [Christina Sculley](https://myepilepsystory.org/team/christina-sculley/) - [Antia McCutcheon](https://myepilepsystory.org/team/antia-mccutcheon/) - [Melissa Wastler](https://myepilepsystory.org/team/melissa-wastler/) - [Betty Garland](https://myepilepsystory.org/team/betty-garland/) - [Carmela Isabella](https://myepilepsystory.org/team/carmela-isabella/) - [Ashley Garcia](https://myepilepsystory.org/team/ashley-garcia/) - [Mariellen Ebi](https://myepilepsystory.org/team/mariellen-ebi/) ## Testimonials - [David John](https://myepilepsystory.org/testimonials/david-john/) - Curabitur magna enim, faucibus vel nisi ut, mattis eleifend ipsum. Mauris ut quam et turpis congue facilisis. Vestibulum molestie, purus suscipit congue pellentesque, leo velit eleifend libero, suscipit porta ipsum nibh lobortis sem. Ut vel commodo eros. Duis molestie, nisi - [Ceasan Honston](https://myepilepsystory.org/testimonials/ceasan-honston/) - Curabitur magna enim, faucibus vel nisi ut, mattis eleifend ipsum. Mauris ut quam et turpis congue facilisis. Vestibulum molestie, purus suscipit congue pellentesque, leo velit eleifend libero, suscipit porta ipsum nibh lobortis sem. Ut vel commodo eros. Duis molestie, nisi - [Naura Lavy](https://myepilepsystory.org/testimonials/naura-lavy/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Paul Merry](https://myepilepsystory.org/testimonials/paul-merry/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Luke Wright](https://myepilepsystory.org/testimonials/luke-wright/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Snow White](https://myepilepsystory.org/testimonials/snow-white/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Michael Stark](https://myepilepsystory.org/testimonials/michael-stark/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Sarah Lenty](https://myepilepsystory.org/testimonials/sarah-lenty/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Akcent Fray](https://myepilepsystory.org/testimonials/akcent-fray/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Belli Ellish](https://myepilepsystory.org/testimonials/belli-ellish/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Henry Joe](https://myepilepsystory.org/testimonials/henry-joe/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Peter Mark](https://myepilepsystory.org/testimonials/peter-mark/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [John Doe](https://myepilepsystory.org/testimonials/john-doe/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem - [Roberto Carlos](https://myepilepsystory.org/testimonials/roberto-carlos/) - Lorem ipsum dolor sit amet, per justo iracundia an. Inani tation tritani mea ut. Mundi scriptorem ## Events - [Women's Epilepsy Movement](https://myepilepsystory.org/event/womens-epilepsy-movement/) - Women's Epilepsy Movement Our Mission We ARE dedicated to 'Bridge the Gap' for women and girls diagnosed with epilepsy, provide resources for women and girls living with epilepsy, the providers that care for these females as well as support the children impacted by their mother's epilepsy Our Vision We are dedicated to pushing - [International Women with Epilepsy Day (IWWED)](https://myepilepsystory.org/event/international-women-with-epilepsy-day-iwwed/) - This International Women with Epilepsy Day (IWWED), we honor Strength—and invest in Change. Women with epilepsy lead, create, and make history every day, yet many still face barriers to healthcare, education, employment, and understanding. Today, we come together to change that. Approximately 1 in 26 people will develop epilepsy. Our goal is to inspire 100 people to commit to donating $26 a - [Medical Grand Rounds: Women’s Neurology – Lessons from the Field](https://myepilepsystory.org/event/medical-grand-rounds-womens-neurology-lessons-from-the-field/) - Medical Grand Rounds: Women’s Neurology – Lessons from the Field Speakers: Esther Bui, MD, FRCPC Division of Neurology, University Health Network Assistant Professor, University of Toronto Brandy McFadden Executive Director/Founder, My Epilepsy Story Learning Objectives: Describe the history of Women’s Neurology and why the development of a subspecialty is needed. Review educational gaps and share - [Petite Plume Fundraiser - All March!](https://myepilepsystory.org/event/petite-plume-fundraiser/) - Petite Plume Fundraiser Petite Plume is offering a 20% off code and donating 20% back to My Epilepsy Story for the ENTIRE month of March! Use code: EPILEPSY20 - [Plaid Rabbit Fundraiser](https://myepilepsystory.org/event/plaid-rabbit-fundraiser/) - Plaid Rabbit Fundraiser - Nashville - [International Women with Epilepsy Day](https://myepilepsystory.org/event/international-women-with-epilepsy-day/) - Dr Voinescu Talk: Personalized Treatment Approach for Patients with Epilepsy of Gestational Potential At: Grand Rounds for University of Chicago Department of Neurology - [Holy Cross High School Dress Down Fundraiser](https://myepilepsystory.org/event/holy-cross-high-school-dress-down-fundraiser/) - Holy Cross High School - Scranton, PA Dress Down Fundraiser - [British International School of Boston Fundraiser](https://myepilepsystory.org/event/british-international-school-of-boston-fundraiser/) - British International School of Boston - Boston, MA Fundraiser ## Categories - [Uncategorized](https://myepilepsystory.org/category/uncategorized/) - [Brandy's Personal Posts](https://myepilepsystory.org/category/brandys-personal-posts/) - [Ashley's Advice](https://myepilepsystory.org/category/brandys-personal-posts/ashleys-advice/) - [Educational Services](https://myepilepsystory.org/category/educational-services/) - [Empowering Girls Video Series](https://myepilepsystory.org/category/empowering-girls-video-series/) - [Empowering Women Video Series](https://myepilepsystory.org/category/empowering-women-video-series/) - [Events](https://myepilepsystory.org/category/events/) - [For Physicians](https://myepilepsystory.org/category/for-physicians/) - [From The Experts](https://myepilepsystory.org/category/from-the-experts/) - [Girls with Epilepsy](https://myepilepsystory.org/category/girls-with-epilepsy/) - [Health & Wellness](https://myepilepsystory.org/category/health-wellness/) - [Helpful Epilepsy Information](https://myepilepsystory.org/category/helpful-epilepsy-information/) - [James's Posts](https://myepilepsystory.org/category/jamess-posts/) - [News](https://myepilepsystory.org/category/news/) - [Parents of Girls Diagnosed with Epilepsy](https://myepilepsystory.org/category/parents-of-girls-diagnosed-with-epilepsy/) - [Podcast](https://myepilepsystory.org/category/podcast/) - [Pregnancy](https://myepilepsystory.org/category/pregnancy/) - [Real Life Epilepsy Stories](https://myepilepsystory.org/category/real-life-epilepsy-stories/) - [Types of Epilepsy](https://myepilepsystory.org/category/types-of-epilepsy/) - [Women & Epilepsy](https://myepilepsystory.org/category/women-epilepsy/) - [Epilepsy and Surgery](https://myepilepsystory.org/category/epilepsy-and-surgery/) ## Tags - [Families](https://myepilepsystory.org/tag/families/) - [Personal Story](https://myepilepsystory.org/tag/personal-story/) - [West Nile Virus](https://myepilepsystory.org/tag/west-nile-virus/) - [Epilepsy](https://myepilepsystory.org/tag/epilepsy/) - [Pregnancy](https://myepilepsystory.org/tag/pregnancy/) - [Women](https://myepilepsystory.org/tag/women/) - [Women with Epilepsy](https://myepilepsystory.org/tag/women-with-epilepsy/) - [Epilepsy Awareness Month](https://myepilepsystory.org/tag/epilepsy-awareness-month/) - [Governor Bill Haslam](https://myepilepsystory.org/tag/governor-bill-haslam/) - [Tennessee](https://myepilepsystory.org/tag/tennessee/) - [Epilepsy and Pregnancy](https://myepilepsystory.org/tag/epilepsy-and-pregnancy/) - [Girls with Epilepsy](https://myepilepsystory.org/tag/girls-with-epilepsy/) - [Health Insurance](https://myepilepsystory.org/tag/health-insurance/) - [My Epilepsy Story](https://myepilepsystory.org/tag/my-epilepsy-story/) - [seizure](https://myepilepsystory.org/tag/seizure/) - [college and epilepsy](https://myepilepsystory.org/tag/college-and-epilepsy/) - [juvenile epilepsy](https://myepilepsystory.org/tag/juvenile-epilepsy/) - [Ashley](https://myepilepsystory.org/tag/ashley/) - [epilepsy medication](https://myepilepsystory.org/tag/epilepsy-medication/) - [Real Life Stories](https://myepilepsystory.org/tag/real-life-stories/) - [seizure medication](https://myepilepsystory.org/tag/seizure-medication/) - [CDLK5](https://myepilepsystory.org/tag/cdlk5/) - [Death](https://myepilepsystory.org/tag/death/) - [Loss of a child](https://myepilepsystory.org/tag/loss-of-a-child/) - [Pregnancy and Epilepsy](https://myepilepsystory.org/tag/pregnancy-and-epilepsy/) - [pregnc](https://myepilepsystory.org/tag/pregnc/) - [high school and epilepsy](https://myepilepsystory.org/tag/high-school-and-epilepsy/) - [#1in26campaign](https://myepilepsystory.org/tag/1in26campaign/) - [healthy living](https://myepilepsystory.org/tag/healthy-living/) - [Disability and epilepsy](https://myepilepsystory.org/tag/disability-and-epilepsy/) - [job loss](https://myepilepsystory.org/tag/job-loss/) - [labor laws and epilepsy](https://myepilepsystory.org/tag/labor-laws-and-epilepsy/) - [legal and epilepsy](https://myepilepsystory.org/tag/legal-and-epilepsy/) - [Baby Safety](https://myepilepsystory.org/tag/baby-safety/) - [Caring for your newborn](https://myepilepsystory.org/tag/caring-for-your-newborn/) - [Epilepsy Safety](https://myepilepsystory.org/tag/epilepsy-safety/) - [Giveaways](https://myepilepsystory.org/tag/giveaways/) - [emily hikade](https://myepilepsystory.org/tag/emily-hikade/) - [luxury children's pajamas](https://myepilepsystory.org/tag/luxury-childrens-pajamas/) - [petite-plume](https://myepilepsystory.org/tag/petite-plume/) - [Husband's perspective](https://myepilepsystory.org/tag/husbands-perspective/) - [doctor](https://myepilepsystory.org/tag/doctor/) - [Neurology Appointment](https://myepilepsystory.org/tag/neurology-appointment/) - [nurse](https://myepilepsystory.org/tag/nurse/) - [pharmacists](https://myepilepsystory.org/tag/pharmacists/) - [Party Planning](https://myepilepsystory.org/tag/party-planning/) - [Beauty](https://myepilepsystory.org/tag/beauty/) - [beauty tips](https://myepilepsystory.org/tag/beauty-tips/) - [Dana McDowell](https://myepilepsystory.org/tag/dana-mcdowell/) - [Makeup](https://myepilepsystory.org/tag/makeup/) - [real beauty](https://myepilepsystory.org/tag/real-beauty/) - [Ashley's Advice](https://myepilepsystory.org/tag/ashleys-advice/) - [2018](https://myepilepsystory.org/tag/2018/) - [Global health](https://myepilepsystory.org/tag/global-health/) - [Women's Health](https://myepilepsystory.org/tag/womens-health/) - [Fitness](https://myepilepsystory.org/tag/fitness/) - [Health & wellness](https://myepilepsystory.org/tag/health-wellness/) - [Seizure control](https://myepilepsystory.org/tag/seizure-control/) - [Women Mentors](https://myepilepsystory.org/tag/women-mentors/) - [Birth Control](https://myepilepsystory.org/tag/birth-control/) - [Birth Control and Epilepsy](https://myepilepsystory.org/tag/birth-control-and-epilepsy/) - [Anxiety](https://myepilepsystory.org/tag/anxiety/) - [Depression](https://myepilepsystory.org/tag/depression/) - [fear](https://myepilepsystory.org/tag/fear/) - [panic attack](https://myepilepsystory.org/tag/panic-attack/) - [sad](https://myepilepsystory.org/tag/sad/) - [Suicide Prevention](https://myepilepsystory.org/tag/suicide-prevention/) - [Seizure Freedom](https://myepilepsystory.org/tag/seizure-freedom/) - [Seizure Tracker](https://myepilepsystory.org/tag/seizure-tracker/) - [dance](https://myepilepsystory.org/tag/dance/) - [American Epilepsy Society](https://myepilepsystory.org/tag/american-epilepsy-society/) - [Dr. Kimford J. Meador](https://myepilepsystory.org/tag/dr-kimford-j-meador/) - [Epilepsy Award](https://myepilepsystory.org/tag/epilepsy-award/) - [Epilepsy Research](https://myepilepsystory.org/tag/epilepsy-research/) - [Kimford J. Meador Research in Women with Epilepsy Award](https://myepilepsystory.org/tag/kimford-j-meador-research-in-women-with-epilepsy-award/) - [Dr. Michael Kinney](https://myepilepsystory.org/tag/dr-michael-kinney/) - [Epilepsy Education](https://myepilepsystory.org/tag/epilepsy-education/) - [Seizure Type](https://myepilepsystory.org/tag/seizure-type/) - [Epilepsy and Fertility](https://myepilepsystory.org/tag/epilepsy-and-fertility/) - [Epilepsy and Infertility](https://myepilepsystory.org/tag/epilepsy-and-infertility/) - [Fertility](https://myepilepsystory.org/tag/fertility/) - [Infertility](https://myepilepsystory.org/tag/infertility/) - [cannabidiol](https://myepilepsystory.org/tag/cannabidiol/) - [cannabis](https://myepilepsystory.org/tag/cannabis/) - [CBD](https://myepilepsystory.org/tag/cbd/) - [Dravet Syndrome](https://myepilepsystory.org/tag/dravet-syndrome/) - [Epidiolex](https://myepilepsystory.org/tag/epidiolex/) - [FDA](https://myepilepsystory.org/tag/fda/) - [Tuberous Sclerosis](https://myepilepsystory.org/tag/tuberous-sclerosis/) - [Education](https://myepilepsystory.org/tag/education/) - [Graduation](https://myepilepsystory.org/tag/graduation/) - [Off to College](https://myepilepsystory.org/tag/off-to-college/) - [catamenial epilepsy](https://myepilepsystory.org/tag/catamenial-epilepsy/) - [epilepsy and cycles](https://myepilepsystory.org/tag/epilepsy-and-cycles/) - [epilepsy and girls](https://myepilepsystory.org/tag/epilepsy-and-girls/) - [epilepsy and menstration](https://myepilepsystory.org/tag/epilepsy-and-menstration/) - [epilepsy and women](https://myepilepsystory.org/tag/epilepsy-and-women/) - [women and epilepsy](https://myepilepsystory.org/tag/women-and-epilepsy/) - [epilepsy and teenagers](https://myepilepsystory.org/tag/epilepsy-and-teenagers/) - [teens with epilepsy](https://myepilepsystory.org/tag/teens-with-epilepsy/) - [daughter with epilepsy](https://myepilepsystory.org/tag/daughter-with-epilepsy/) - [Dr. Chetan Mukundan](https://myepilepsystory.org/tag/dr-chetan-mukundan/) - [epilepsy and teens](https://myepilepsystory.org/tag/epilepsy-and-teens/) - [Pediatrician](https://myepilepsystory.org/tag/pediatrician/) - [Pediatrician and epilepsy](https://myepilepsystory.org/tag/pediatrician-and-epilepsy/) - [Epilepsy and Travel](https://myepilepsystory.org/tag/epilepsy-and-travel/) - [Travel](https://myepilepsystory.org/tag/travel/) - [Travel safety](https://myepilepsystory.org/tag/travel-safety/) - [Educational Video](https://myepilepsystory.org/tag/educational-video/) - [Physician Videos](https://myepilepsystory.org/tag/physician-videos/) - [Internal Medicine](https://myepilepsystory.org/tag/internal-medicine/) - [primary care doctor](https://myepilepsystory.org/tag/primary-care-doctor/) - [adoption](https://myepilepsystory.org/tag/adoption/) - [epilepsy and adoption](https://myepilepsystory.org/tag/epilepsy-and-adoption/) - [hydrocephalus and epilepsy](https://myepilepsystory.org/tag/hydrocephalus-and-epilepsy/) - [Mother's of girls with epilepsy](https://myepilepsystory.org/tag/mothers-of-girls-with-epilepsy/) - [pediatric epilepsy](https://myepilepsystory.org/tag/pediatric-epilepsy/) - [Vanderbilt neurology](https://myepilepsystory.org/tag/vanderbilt-neurology/) - [World Changer](https://myepilepsystory.org/tag/world-changer/) - [epilepsy and exercise](https://myepilepsystory.org/tag/epilepsy-and-exercise/) - [exercise](https://myepilepsystory.org/tag/exercise/) - [Epilepsy and NICU](https://myepilepsystory.org/tag/epilepsy-and-nicu/) - [NICU](https://myepilepsystory.org/tag/nicu/) - [preemie](https://myepilepsystory.org/tag/preemie/) - [Brigham Women's](https://myepilepsystory.org/tag/brigham-womens/) - [Dr. Voinescu](https://myepilepsystory.org/tag/dr-voinescu/) - [Harvard](https://myepilepsystory.org/tag/harvard/) - [American Academy of Neurology](https://myepilepsystory.org/tag/american-academy-of-neurology/) - [epilepsy & Stress](https://myepilepsystory.org/tag/epilepsy-stress/) - [Michael Privitera](https://myepilepsystory.org/tag/michael-privitera/) - [seizures](https://myepilepsystory.org/tag/seizures/) - [stress](https://myepilepsystory.org/tag/stress/) - [International Women with Epilepsy Day](https://myepilepsystory.org/tag/international-women-with-epilepsy-day/) - [SUDEP](https://myepilepsystory.org/tag/sudep/) - [epilepsy surgery](https://myepilepsystory.org/tag/epilepsy-surgery/) - [Epilepsy Education Day](https://myepilepsystory.org/tag/epilepsy-education-day/) - [UK Healthcare](https://myepilepsystory.org/tag/uk-healthcare/) - [back to school](https://myepilepsystory.org/tag/back-to-school/) - [educational plan](https://myepilepsystory.org/tag/educational-plan/) - [elementary school](https://myepilepsystory.org/tag/elementary-school/) - [parents of girls with epilepsy](https://myepilepsystory.org/tag/parents-of-girls-with-epilepsy/) - [seizure plan](https://myepilepsystory.org/tag/seizure-plan/) - [seizure safety](https://myepilepsystory.org/tag/seizure-safety/) - [SeizureTracker.com](https://myepilepsystory.org/tag/seizuretracker-com/) - [Neurologist Story](https://myepilepsystory.org/tag/neurologist-story/) - [Neurology](https://myepilepsystory.org/tag/neurology/) - [Women Empowering Women](https://myepilepsystory.org/tag/women-empowering-women/) - [Women in Science](https://myepilepsystory.org/tag/women-in-science/) - [Empowering Women with Epilepsy](https://myepilepsystory.org/tag/empowering-women-with-epilepsy/) - [From the Experts](https://myepilepsystory.org/tag/from-the-experts/) - [Harvard medical school](https://myepilepsystory.org/tag/harvard-medical-school/) - [Breastfeeding and Epilepsy](https://myepilepsystory.org/tag/breastfeeding-and-epilepsy/) - [Breastfeeding and seizure medication](https://myepilepsystory.org/tag/breastfeeding-and-seizure-medication/) - [Georgetown University](https://myepilepsystory.org/tag/georgetown-university/) - [Georgetown University Hospital](https://myepilepsystory.org/tag/georgetown-university-hospital/) - [Female Neurologist](https://myepilepsystory.org/tag/female-neurologist/) - [Women in Medicine](https://myepilepsystory.org/tag/women-in-medicine/) - [#girlswithepilepsy](https://myepilepsystory.org/tag/girlswithepilepsy/) - [#IWWE](https://myepilepsystory.org/tag/iwwe/) - [#womenwithepilepsy](https://myepilepsystory.org/tag/womenwithepilepsy/) - [Coronavirus](https://myepilepsystory.org/tag/coronavirus/) - [COVID-19](https://myepilepsystory.org/tag/covid-19/) - [Emergency Kit](https://myepilepsystory.org/tag/emergency-kit/) - [CDC](https://myepilepsystory.org/tag/cdc/) - [Centers for Disease Control and Prevention](https://myepilepsystory.org/tag/centers-for-disease-control-and-prevention/) - [Educational Resources](https://myepilepsystory.org/tag/educational-resources/) - [Online Classes](https://myepilepsystory.org/tag/online-classes/) - [Prevention](https://myepilepsystory.org/tag/prevention/) - [school closed](https://myepilepsystory.org/tag/school-closed/) - [schools closing](https://myepilepsystory.org/tag/schools-closing/) - [WHO](https://myepilepsystory.org/tag/who/) - [World Health Organization](https://myepilepsystory.org/tag/world-health-organization/) - [onlinesupportgroup](https://myepilepsystory.org/tag/onlinesupportgroup/) - [Healthcare Disparities](https://myepilepsystory.org/tag/healthcare-disparities/) - [rural health](https://myepilepsystory.org/tag/rural-health/) - 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